Directory List

Welcome to Your Special Needs Directory List

When you’re caring for a family member with special needs, having extra help is always appreciated. Here you’ll find an abundance of useful resources to help you in every aspect of the care and development of your loved one.

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  • About Special Kids

    http://www.aboutspecialkids.org/
    Welcome to About Special Kids (formerly the Indiana Parent Information Network)! We have changed our name to more accurately reflect the fact that we are the place for families and professionals in Indiana to go to “ASK” questions about children with special needs and to access information and resources about a variety of topics such as health insurance, special education, community resources and medical homes.

  • accessABILITY Center for Independent Living, Inc.

    http://www.abilityindiana.org
    Our mission is to support all people with any type of disability and age to live more independently in the setting of their choice, improve the overall quality of life and remove community barriers to inclusion. Since 1987, we have assisted over 15,000 people with disabilities in Central Indiana.

  • American Self-Help Group Clearinghouse

    http://www.php.com/american-self-help-group-clearinghouse
    Online searchable database on all types of self-help support groups for disabilities, parenting, health, mental health, bereavement, addictions and more. Provides contact information for national self-help group headquarters, online, and one-of-a-kind groups, local self-help clearinghouses, and toll-free numbers for various specialty helplines.

  • Angelman Syndrome Foundation

    http://www.angelman.org/
    The Angelman Syndrome Foundation is a national organization of families, caregivers and professionals who care about those with Angelman Syndrome. It is a member organization of the International Angelman Syndrome Organization (IASO). As described in our by-laws, ASF’s Mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families, and other concerned parties.

  • Anne Carlsen Center

    http://www.annecenter.org
    The Anne Carlsen Center offers a rich tradition of empowering individuals with disabilities and their families. Our experienced staff provides compassion, training, services and supports in homes and communities across North Dakota.

  • Any Baby Can of San Antonio

    http://www.anybabycansa.org/
    Provide support, resources and education through Case Managment to families raising a child with a chronic illness, developmental disability or health risk, that reside in Bexar County or the 18 surrounding counties. Any Baby Can also has additional programs to support the entire family, including Prescription Assistance, Sibling Support, Any Body Can Health and Wellness Program, Center for Infant and Child Loss and Reaching Families Facing Autism.

  • Arizona Center for the Blind and Visually Impaired

    http://www.acbvi.org/
    Arizona Center for the Blind and Visually Impaired (ACBVI) has been providing services for individuals since 1947. ACBVI is committed to “enhancing the quality of life for people who are blind or otherwise visually impaired.” Our services are available to adults who are legally blind or visually impaired as well as those who have a degenerative eye condition which may eventually become a visual impairment. These services are offered separately or concurrently according to the individual needs of the qualifying client.

  • Arizona- Raising Special Kids

    http://www.raisingspecialkids.org
    Raising Special Kids is a non-profit organization serving families of children with disabilities and special health needs in Arizona. All programs and services are provided to families free of charge. At all ages and stages of a child’s development.

  • Assistive Technology Resource Centers of Hawaii

    http://www.atrc.org
    Assistive Technology Resource Centers of Hawaii (ATRC) is a 501 (c)(3) non-profit organization committed to linking people with technology and empowering individuals through its use.

  • At Risk and Special Education Services

    http://www.schools.utah.gov/sars/
    We provide support to empower students with disabilities ages 3-21. Through Informatin and resources, Laws, Regulations and Polices, Family Invovement and Partnerships.

  • Autism Society of America

    http://www.autism-society.org/
    The Autism Society was founded in 1965 by Bernard Rimland, Ph.D. His book,Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, was written in late 1964 and was one of the first of its kind. In 1968, Ruth Sullivan, Ph.D., became the organization’s first elected president. Over the last 40 years, the Society has grown from a handful of parents into the leading source of information, research, reference and support on the autism spectrum. The Autism Society is the oldest and largest grassroots organization within the autism community.

  • Autism Society of Greater Orlando

    http://www.asgo.org
    The Autism Society of Greater Orlando is a not-for-profit organization that was set up by families for families. Our mission is is that all individuals within the autism spectrum will be provided a lifetime network of opportunities to become fully accepted, included, and actively participating members of our community, through family support, education, and advocacy, and public awareness.

  • Autism Society of Illinois

    http://www.autismillinois.org/
    ASI is a not-for-profit 501(C)(3) organization created more than 31 years ago for individuals with Autism, parents, families, professionals, corporate partners and friends whose lives have been touched by autism. ASI Mission Statement: To improve the lives of Illinois individuals and families affected by autism spectrum disorders

  • Autism Society of Wisconsin

    http://www.asw4autism.org
    The mission of the Autism Society of Wisconsin is to improve the lives of all affected by autism in Wisconsin.

  • Bend Work Activity Center

    http://www.ofco.org/
    The Opportunity Foundation is a non-profit organization with the mission of providing life improvement services to Central Oregonians with disabilities. With the Opportunity Foundation’s support, adults with disabilities in Deschutes, Crook and Jefferson counties work toward their individual goals for meaningful work, a comfortable home and the opportunity to be an active part of the community.

  • Birth Defect Research for children

    http://www.birthdefects.org
    The National Birth Defect Registry is a research project designed through a collaboration of seven prominent scientists. The registry collects information on all categories of structural and functional birth defects as well as the health, genetic and environmental exposure histories of the mothers and fathers of these children.

  • Brain Injury Association of America

    http://www.biausa.org
    The Brain Injury Association of America’s mission is to be the voice of brain injury, and to offer help, hope and healing to people with brain injury, family members and the professionals that serve them. Founded in 1980, with a network of over 40 state affiliate offices around the country, it is the only national advocacy organization dedicated solely to people with brain injury

  • Brain Injury Association of Illinois

    www.biail.org
    The Brain Injury Association of Illinois provides programs and services to children, teens and adults who have sustained an acquired brain injury, the families/caregivers, and professionals working with those individuals, as well as an injury prevention program to prevent the preventable injury. The BIA of IL provides an Information & Resource Center, Summer Camps for children and adults, support groups, educational programs, and annual educational conference.

     

  • Brain Injury Association of Utah, Inc.

    http://biau.org/
    The mission of the Brain Injury Association of Utah is to create a better future through brain injury prevention, research, education and advocacy.

  • Brain Injury Association of WI

    http://www.biaw.org
    The Brain Injury Association of Wisconsin (BIAW) is a nonprofit, 501 (c) 3 organization committed to serving individuals with an acquired brain injury and their families. The association was formed in 1980 by a group of individuals with brain injury, their family members, friends and professionals in response to the lack of available services specific to the unique needs of individuals with brain injury. BIAW is a chartered member affiliate of the national Brain Injury Association, Inc.

  • Brooks Memorial Hospital Rehabilitation Center

    http://www.brooksrehab.org/
    Brooks has a long-standing tradition of providing quality inpatient and outpatient rehabilitation care to Florida and Southeast Georgia. The 143-bed acute physical rehab hospital is unique in the region with a highly trained staff and an unmatched range of services. Brooks has an extensive network of 25 outpatient centers and an established home health services division, Brooks Home Care Advantage, which provides the best continuum of post-acute services possible to the communities served. Brooks also has a cutting-edge research facility offering over 20 clinical trials.

  • C-4 Work Center

    http://www.c4chicago.org/
    Since 1972, C4 has been successfully helping individuals and families who are struggling with mental illness, emotional trauma, substance abuse and the aftermath of sexual assault recover and heal their lives. Through our compassionate and community-based services, we have helped them return to work or school, reestablish personal relationships, keep their homes, and live as good neighbors.

  • California- Parents Helping Parents

    http://www.php.com
    Parents Helping Parents (PHP) is a family resource and service center for parents of children with special needs and the professionals who serve them.

  • Cancer- American Cancer Society

    http://www.cancer.org/docroot/home/index.asp
    Get help making treatment decisions, understanding the effects of treatment, finding treatment centers and doctors, coping with side effects, and talking with others.

  • CASPAN: Chicago Asperger’s Adult Network

    http://aspergers.meetup.com/213
    Meet adults 18+ affected by Asperger’s and similar PDDs/NLDs for support, discussion and social activities.

  • Center for Independent Futures

    http://www.independentfutures.com/
    The Center for Independent Futures is a not-for-profit organization that forms innovative partnerships to create product and service models that give adults with disabilities and their families the skills and opportunities to realize full lives. We use our proprietary processes to establish sustainable solutions through community living options, personal networks, lifelong planning and education.

  • Center for Persons with Disabilities

    http://www.cpdusu.org/
    The Center for Persons with Disabilities (CPD) is Utah’s University Center for Excellence in Developmental Disabilities Education, Research, and Services (UCEDD). Our mission statement expresses both our values and the ways in which we choose to work: “We collaborate with partners to strengthen families and individuals across the lifespan through education, policy, research and services.”

  • Central Florida Parent Center

    http://centralfloridaparentcenter.org/
    Our mission is to provide parents of children and young adults with all disabilities and special needs (ages 0-26) in central and northeast Florida with accurate information, interactive training, quality assistance, and empathetic support.

  • Cerebral Palsy of Colorado

    http://www.abilityconnectioncolorado.org/
    Our Mission is to create, support, and encourage inclusive opportunities for Coloradoans of all abilities and their families, through early intervention, education, employment, statewide training, information and referral, advocacy, public education services and collaborative strategies with emphasis on diversity, dignity, quality of life and the advancement of human potential.

  • CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder)

    http://www.chadd.org/
    CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others.

  • CHADD of Nassau County (Children and Adults with Attention Deficit Disorders)

    http://www.chadd.net/105
    Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt organization providing education, advocacy and support for individuals with AD/HD. We are proud to be one of the longest standing affiliates in New York. Our local Nassau County chapter was founded in 1989 in order to support and educate the families in our community who were experiencing frustration and a sense of isolation when dealing with issues concerning AD/HD.

  • Children and Adults with Attention Deficit Disorder of Northern Illinois

    http://www.meetup.com/CHADD-Northern-Illinois/
    CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. This group is facilitated by Eric Tivers, LCSW, MSSW. Eric Tivers is a Licensed Clinical Social Worker, and a Certified School Social Worker in private practice. He specializes in working with individuals and families living with ADD, autism spectrum disorders, and other related disorders. We hold monthly support group meetings for anyone living with AD/HD and/or caregivers, spouses/partners, educators, professionals, etc. looking for information, education, and understanding. Meetings are the 3rd Monday of every month at 6:45pm in McHenry. (See meetup.com page for details) Meetings are Free.

  • Community Enterprises

    http://www.communityenterprises.com/
    Provides supported education services in a community college setting, supported employment including job training, placement and folow up, transitional services from group homes and other settings to supported living within the community.

  • Countryside Association

    http://www.countrysideassn.org/
    The mission of Countryside Association for People with Disabilities is to advocate on behalf of persons with disabilities and their families and to support them in their efforts to live and work successfully in their chosen community. Countryside Association is a nonprofit organization located both in Palatine and Waukegan Illinois. The organization provides the spectrum of vocational services to individuals with developmental disabilities including job placement, sheltered employment, senior services and volunteer opportunities.

  • Craig Hospital

    http://www.craighospital.org/
    Craig Hospital in Denver, Colorado is world renowned as a premier center for specialty rehabilitation and research for people with spinal cord injury and traumatic brain injury.

  • Delano Regional Medical Center

    http://www.drmc.com/
    Delano Regional Medical Center (DRMC) is proud to be known throughout California and beyond as an innovative regional hospital, deeply rooted in the local communities and committed to providing an exceptional patient experience.

  • Desert Regional Medical Center

    https://www.desertregional.com/
    As the regional medical center in the Coachella Valley, Desert Regional Medical Center’s vision is the continuous improvement of the health and well-being of the communities we serve. A commitment to clinical excellence shall be demonstrated through measurable quality outcomes, while ongoing financial stability will enable Desert Regional Medical Center to fulfill its mission and attain its vision.

  • Designs for Change

    http://www.designsforchange.org/sped.html
    DFC’s Special Education Reform Program provides assistance to families, principals, teachers, Local School Councils, and social service agencies to assist them in creating appropriate educational programs for Chicago students with disabilities to ensure that students with disabilities are educated in the regular education program and master the regular education curriculum, consistent with the most current federal law (Individuals with Disabilities Education Act or IDEA) and with the Corey H. Settlement Agreements. The ABLE Coalition: Advocates Behind Legal Education DFC encourages parents of children with disabilities to take advantage of training opportunities and join a parent support group. A parent support group will provide needed emotional support and valuable feedback and information from other parents. You will also get a better idea of systemic issues and how they impact on other children with disabilities. Parent group meetings are a great place to compare strategies and share stories from the field!

  • Doctors Baptist Hospital

    https://baptisthealth.net/en/facilities/doctors-hospital/pages/default.aspx
    Baptist Health South Florida is the largest not-for-profit health care organization in the region. Affiliates of the Baptist Health include Baptist Hospital of Miami, Baptist Children’s Hospital, South Miami Hospital, Homestead Hospital, Mariners Hospital, Doctors Hospital and Baptist Cardiac & Vascular Institute. Baptist Health also offers a variety of health care services, such as outpatient diagnostic and treatment facilities and home health care.

  • Down Syndrome, National Association

    http://www.nads.org/
    NADS is the oldest organization in the country serving individuals with Down syndrome and their families.

  • Easter Seals of Tennessee

    http://www.tn.easter-seals.org
    The mission of Easter Seals Tennessee is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their community.

  • El Valor

    https://www.elvalor.org//
    El Valor is a non-profit community-based organization founded in 1973. El Valor is the first bilingual, bicultural rehabilitation center in Illinois. Their strategic goals are: to be the best in the nation in early childhood care in the Hispanic community; to become the premier organization developing leadership for the Hispanic community; and to be an international model for inclusion of people with disabilities in the Hispanic community.

  • Empower Colorado

    http://empowercolorado.org/
    Empower Colorado is an organization created by families to support, educate, and provide resources for Advocacy for families. We define family as anyone who directly contributes to caring for children and youth who have, or are at risk for developing mental health disorders, also known as Brain Disorders. Children are not always diagnosed with a specific disorder but exhibit symptoms where they struggle with social, emotional, mental and/or behavioral challenges. Some of the common diagnoses our children have include: Bipolar Disorder, Major Depression, ADD/ADHD, Tourette’s Disorder, PDD Spectrum Disorder (Autism, Asperger’s Syndrome), Schizophrenia, Attachment Disorders (RAD), Fetal Alcohol Syndrome, PTSD and Trauma. Anxiety is one of the most common symptoms present in almost all of the diagnoses but in many cases it is also a disorder unto itself. Some of the common Anxiety Disorders seen in children include: Obsessive-Compulsive Disorder, Generalized Anxiety Disorder, Panic Disorder, Selective Mutism, Separation Anxiety Disorder and Phobic Disorders.

  • EP Magazine

    http://www.eparent.com/
    EP Global Communications, Inc. and Exceptional Parent magazine add perspective on the recent FDA public notification concerning adverse events reported in children with cerebral palsy who have received treatment with Botulinum Toxin (BOTOX®) injections.

  • Evanston Citizens for Appropriate Special Education

    http://evanstoncase.org
    Evanston Citizens for Appropriate Special Education (CASE) is a community advocacy organization working to improve special education policies and programs in pre-school, elementary and high school.

  • Familial Dysautonomia Now

    http://www.fdnow.org
    What is FD NOW? Ann and Ken Slaw and other FD families and friends founded the FD NOW fund at Partnership for Cures, a 501c3, to raise funds to support research that will drive better treatments and cures for patients with FD in two years or less.

  • Families helping Families of SWLA

    http://www.fhfswla.org
    Our mission is to provide information and referral, education and training, peer support and advocacy skills to individuals with disabilities and their families. Our vision is that individuals with disabilities and their families will be strong, effective, informed advocates for themselves and others.

  • Family Connection of South Carolina

    http://www.familyconnectionsc.org
    Having a baby is one of life’s greatest moments, and every parent dreams of having a happy, healthy one. So when a child with disabilities or special needs enters a family, at birth or diagnosis, it is rarely what the parents expected. Treasures are found in the unexpected, however, just as all children are a gift, Family Connection of South Carolina helps families recognize and celebrate the potential of that gift.

  • Family Network on Disabilities of Florida, Inc.

    http://www.fndfl.org
    Family Network on Disabilities of Florida, Inc. is a statewide network of families and individuals of all ages who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens. Our mission is to ensure through collaboration that Floridians have full access to family-driven support, education, information, resources, and advocacy and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities described in section 602(3) of IDEA.

  • Family Resource Associates, Inc.

    http://www.frainc.org
    Family Resource Associates (FRA) is a New Jersey non-profit agency located in Shrewsbury, NJ. FRA assists individuals of all ages who have developmental delays or disabilities. FRA provides home-based early intervention for infants, therapeutic recreation programs and assistive technology services (through TECHConnection), along with family and sibling support groups. TECHConnection @ FRA offers programs and services that can make using the computer easier for people of all abilities and ages.

  • Family Support Network of North Carolina

    http://www.fsnnc.org
    Family Support Network of North Carolina promotes and provides support for families with children who have special needs. Families are in a unique position to offer information and support to other families. An experienced family member can share the most practical advice and help a parent navigate the complex service system.

  • Family Ties of Massachusetts

    http://www.massfamilyties.org
    Family TIES of Massachusetts is a statewide information and parent-to-parent support project for families of children with special needs and chronic illness. It is administered by parent coordinators housed in each of the regional offices of the Massachusetts Department of Public Health.

  • Family Ties of Nevada

    http://www.familytiesnv.org
    Increasing the hope, confidence and independence of people with disabilities of all ages and their circle of support through training, information, emotional support and advocacy. Discover helpful services & resources for you, your family or your clients with the Family TIES of Nevada Resource Directory.

  • Family to Family Network of Rhode Island

    http://www.ric.edu/uap/F2F/home.html
    Family to Family of Rhode Island is a network created by families for families of children and adults with special needs. We offer opportunities for families to connect with one another to share experiences, information, and/or support. Family to Family of Rhode Island is sponsored by Family Voices of RI and Paul V. Sherlock Center on Disabilities.

  • FEGS Human and Health Services

    http://www.fegs.org
    Long Island, NY region ONLY. FEGS is a UJA Federation agency that provides health and human services across the board. With partial grant funding from the Butler Foundation through UJA Federation, the Family Advocacy Information and Referral (or FAIR) program allows for a list of services to families with children, of any age, who have intellectual (cognitive) and developmental delays and/or learning differences. Such services are: I/R (information and referral), guidance and advocacy for C(P)SE meetings, guidance and advocacy for navigating the government systems such as Medicaid and SS(D)I, transitional case management from Early Intervention through post high school planning, assistance in applying for OPWDD eligibility and other LIDDSO services. FAIR also provides workshops for parents and trainings for professionals related to any topic in the special needs arena.

  • Floortime Repository

    http://www.floortimerepository.com
    Online Social network and support group was created for parents and professionals who want to share ideas for engagement, and collaborate on educational goals and strategies using the dirfloortime model.

  • Florida Hospital Rehabilitation Center

    https://www.floridahospital.com/rehabilitation
    Our first responsibility as a Christian hospital is to extend the healing ministry of Christ to all patients who come to us. We endeavor to deliver high-quality service, showing concern for patients’ emotional and spiritual needs, as well as their physical condition. It is our desire to serve patients promptly, with consideration and dignity.

  • Florida Institute of Rehabilitation Education (FIRE)

    http://www.firesight.org/
    FIRE is a nonprofit agency dedicated to assisting people who are visually impaired or blind to achieve a maximum level of independence in their lives. Free services are provided on an outreach (one on one) or group basis and are provided without charge, without regard to individual or family income level, race, creed, age, disability or national origin.

  • Food Allergic Multicultural Society of Delaware

    http://www.famsod.webs.com
    Food Allergy Support Group – Delaware.

  • Fragile X Alliance of Ohio

    http://www.fragilexohio.org/
    The Goals of the group are to: 1. Provide mutual support and information to Fragile X families in Ohio. 2. Promote the education and awareness of Fragile X Syndrome to physicians, therapists, educators and the general public. 3. Support and promote research on Fragile X Syndrome.

  • Fragile X Association of Alabama

    http://www.fragilex.org/community/community-support-network/southeast/northern-alabama-fragile-x/
    The Fragile X Association of Alabama is early in its formation started by several parents with children with Fragile X. As the group continues to grow, it will have a strong emphasis of parental support while promoting awareness, fundraising, and advocacy. There are many ways to participate in the formation of this group and hopefully grow into a strong support group.

  • Fragile X Association of Central Illinois

    http://www.fragilex.org/community/community-support-network/central/central-illinois-fragile-x/
    The Central Illinois Fragile X Resource Group unites the Fragile X Community to enrich lives through emotional and educational support, to promote public and professional awareness, and to advance research towards improved treatments and a cure for Fragile X.

  • Fragile X Association of Dallas Texas

    http://www.fragilex.org/2013/community-support-network/fragile-x-walks-across-texas/
    The Texas Fragile X Association is made up of families and professionals who share a common goal of providing resources and education to those seeking guidance on Fragile X issues. Our members understand the everyday challenges of providing for children and adults affected by Fragile X Syndrome and our families strive to further the understanding of Fragile X by participating in various carrier and effected studies.

  • Fragile X Association of Georgia

    http://www.fragilex.org/community/community-support-network/southeast/greater-atlanta-fragile-x/
    The Fragile X Association of Georgia was formed in 1992 by Gail Heyman and Janet Schatten (parents) to provide resources and support for families and professionals who work with children and adults with fragile X syndrome. Working closely with research scientists from Emory University, Department of Human Genetics, the association sponsors a resource center, holds meetings for affected families, friends, teachers, and other professionals, and has established a Parents’ Network to provide support within the fragile X community.

  • Fragile X Association of Michigan

    http://www.fragilex.org/community/community-support-network/mid-atlantic/fragile-x-association-of-michigan/
    The Fragile X Association of Michigan unites the fragile X community to Enrich lives through educational and emotional support, Promote public and professional awareness and Advance research toward improved treatments and a cure for fragile X syndrome.

  • Fragile X Association of Northern California

    http://www.fragilex.org/
    The Northern California Fragile X Association of California (NOCFXA) was formed by parents to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals. We also provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and to support scientific research on Fragile X Syndrome.

  • Fragile X Association of Southern California

    http://www.fraxsocal.org/
    Our organization was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome.

  • Fragile X Association of Washington State

    http://www.fragilex.org/community/community-support-network/northwest/fragile-x-association-of-washington-state/
    Fragile X Association of Washington State serves as a resource for families, physicians, educators and therapists. Our mission is to increase awareness about fragile X in our community

  • Fragile X Resource Center of Missouri

    http://www.fragilex.org/community/community-support-network/southwest/fragile-x-resource-center-of-missouri/
    The Fragile X Resource Center of Missouri provides support and information to individuals with FXS and their families. The Center offers annual workshops for teachers, therapists and parents. The Center also sponsors fundraisers that support research to understand FXS and find a cure, and that develop educational methods to enhance the abilities of persons with FXS. The Center is a not-for-profit organization currently run by volunteer parents of children with Fragile X. Our center hosts support group meetings throughout the year.

  • Fragile X Resource Group of Maine

    http://www.fragilex.org/
    The Maine Fragile X Resource Group is dedicated to providing educational and emotional support for those affected by Fragile X, promoting public and professional awareness, and supporting research toward improved treatments and a cure for Fragile X Syndrome.

  • Fragile X Resource Group of Maryland

    http://www.mdfragilex.org/
    The Maryland Fragile X Resource Group is a community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X. The group was founded in August of 1999 and currently supports 80 families. We welcome all who share this common interest and hope that you find the information presented on this site beneficial.

  • Fragile X Resource Group of New Hampshire

    http://www.fragilex.org/
    The New Hampshire Fragile X Resource Group is devoted to providing information and support for families and friends of individuals with Fragile X syndrome. We strive to increase awareness of Fragile X within the community by advancing the education of physicians, other professionals, and the general public. We seek to increase identification, support progress in research, and find a cure for Fragile X syndrome.

  • Fragile X Resource Group of South Florida

    http://www.fragilex.org/community/community-support-network/southeast/central-florida-fragile-x/
    The South Florida Fragile X Resource Group provides resources and support for families and professionals who work with children and adults with Fragile X syndrome in Broward, Miami-Dade, and Palm Beach counties. The group was begun in 2000 as part of Conquer Fragile X Foundation and since 2004 has been a shared resource of both National Fragile X Foundation and Conquer Fragile X Foundation.

  • Fragile X Resource Group of The Twin Cites in Minnetsota

    http://www.fragilex.org/
    The Twin Cities Fragile X Resource Group is a group of Parents of children with Fragile X, their siblings, extended Families and their friends that provide support and information to each other. We are in the beginning stages but we are a wonderful group that is committed to raise awareness about the Fragile X Syndrome.

  • Fragile X Society of Phoenix Arizona

    http://www.fragilex.org/
    The Fragile X Society of Arizona is represented by Cheryl Fisher who has a daughter with fragile X syndrome. She is a strong advocate and has successfully lobbied at the state and federal levels of government to improve funding for children with disabilities and for fragile X research. In an effort to raise awareness of fragile X in the local community, group members have participated in various programs including the Physician Residency Training Program and Pre-Service Teaching Program offered by Raising Special Kids.

  • Franklin Skilled Nursing and Rehabilitation Center

    http://www.franklinhealthrehab.com/center/services
    Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care. The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.

  • George Washington University Medical Center

    http://www.gwdocs.com/
    The George Washington University Medical Faculty Associates (MFA) is the largest multi-specialty physician practice in Washington, DC that is conveniently located in one building. We are committed to providing the best possible, most comprehensive, and most convenient care to our patients.

  • Goleta Valley Cottage Hospital

    http://www.cottagehealth.org/
    This 122-bed acute care hospital was founded in 1966 to serve the growing community of Goleta Valley. Today, we admit more than 2,000 patients a year, and see more than 17,000 emergency visits. We are also recognized for our comprehensive Breast Care Center and our level IV trauma designation. We take great pride in fulfilling our goal of providing each patient with comfortable, personalized care.

  • Greater Baltimore Medical Center

    http://www.gbmc.org/
    GBMC includes Greater Baltimore Medical Center (GBMC), Central Maryland’s leading community hospital; Gilchrist Hospice Care, which provides comfort and care to patients with life-limiting illnesses; and the GBMC Foundation, which supports the GBMC mission by managing fundraising efforts. The 292-bed Medical Center, located on a beautiful suburban campus, serves nearly 22,000 inpatients annually as well as providing some 50,000 emergency room visits.

  • Hand In Hand Family Support

    http://www.hihfs.org/
    Our Purpose- Hand in Hand, Family Support helps families with…….Providing parent training, Meaningful parents involvement. Better communication between families and schools. Connecting families to TN Division of Special Education’s Regional Resource Center, Accessing State and National resources, Developing Special Education Family Advisory Committees, Identifying local needs and developing action plans

  • Homestead Healthcare & Rehabilitation Center

    http://homesteadrehab.com/
    Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care. The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.

  • Idaho Parent to Parent

    http://www.familiestogether.org
    Families Together is a nonprofit organization that believes family involvement and support are essential for individuals with disabilities to reach their potential and maintain a life that is secure and meaningful.

  • Illinios Valley Center For Independent Living

    http://www.ivcil.com/
    An organization made up of persons with disabilities who enlighten other persons with disabilities and their families about their rights; to empower persons with disabilities to assume maximum responsibility to realize their potentials; and to enrich the lives of all person in Bureau, LaSalle, Marshall, Putnam and Stark counties in Illinois, by working toward full inclusion of each individual in society. Services provided: Systems and Individual Advocacy, Peer Counseling, Independent Living Skills Training and Information and Referral. Programs offered: Deaf Services, Community Reintegration, Personal Assistant and Youth Services.

  • Indiana Parent Information Association

    http://www.aboutspecialkids.org/
    Welcome to About Special Kids (formerly the Indiana Parent Information Network)! About Special Kids is a “Parent to Parent” organization that works throughout the state of Indiana to answer questions and provide support, information and resources.

  • International Craniofacial Institute Family Forum

    http://www.icifamilyforum.com
    ICIFamilyForum.com is an online support group that helps patients and families deal with Craniofacial Syndromes and Conditions. It is a place where these special people can connect with one another and get support and advice.

  • John Muir Medical Center

    http://www.johnmuirhealth.com/
    John Muir Health is proud to offer a wide array of inpatient clinical treatment services, advanced technologies, hospital and other medical facilities and equipment. We provide a broad spectrum of outpatient medical treatment services, medical research and community education and outreach programs and are dedicated to improving the health of the communities we serve.

  • Miami Lighthouse for the Blind

    http://www.miamilighthouse.com/
    Miami Lighthouse has an experienced management team. Its CEO and other senior management have demonstrated outstanding professional acumen in their respective fields. This team is dedicated to offering the most effective state-of-the-art techniques and care to persons who are blind or severely visually impaired, as well as its new initiative in eye wellness.

  • Minnesota Pacer Center

    http://www.pacer.org/
    The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

  • Mums National Parent to Parent Network (Mothers United for Moral Support)

    http://www.netnet.net/mums
    MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. MUMS’ main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.

  • NAMI of Wisconsin

    http://www.namiwisconsin.org
    The mission of NAMI Wisconsin is to improve the quality of life of people affected by mental illnesses and to promote recovery.

  • NAMI-Utah (National Alliance for the Mentally Ill)

    http://www.namiut.org/
    NAMI Utah is Utah’s voice on mental illness. Our mission is to ensure dignity and improve the lives of those who suffer mental illness and their families through education, support, and advocacy.

  • National Family Caregivers Association

    http://www.thefamilycaregiver.org
    America’s family caregivers are family, friends, partners, and neighbors. To better understand the experience and the meaning of being a family caregiver go to The National Family Caregiver Story Project. The NFCA Story Project is a collection of first-person accounts by family caregivers. It is the gateway to becoming part of a growing group of family caregivers who have reached out to share their thoughts, feelings and find solace in the words of others.

  • National Organization for Rare Diseases (NORD)

    http://rarediseases.org/
    Mission Statement: The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

  • New Jersey Statewide Parent to Parent

    http://www.spannj.org/support
    SPAN provides support to parents/caregivers through: Offering emotional support and information to parents through a bilingual, multi-racial staff of parents of children with and without disabilities.Acting as a valuable resource to families, with targeted support to underserved families in Abbott districts and rural communities. Offering assistance in learning the necessary skills to help parents face the challenges of raising their child. Building a statewide network of parents supporting families of children with developmental delays, disabilities, and special health needs. Training parents of children with disabilities to help other parents.

  • Noble

    http://www.mynoblelife.org
    Founded in 1953, Noble expands opportunities and enhances the quality of life for people with disabilities and their families through individualized services. We serve approximately 1,600 children, adults and families in Central and Eastern Indiana annually.

  • Ohio Comission of Rehabilitation Agency

    http://www.mih.ohio.gov/
    The Commission is interested in funding projects which are innovative, culturally sensitive and specific in their approach toward reduction of the incidence and severity of those diseases or conditions which are responsible for excess morbidity and mortality in minority populations.

  • Oklahoma Family Network, Inc.

    http://www.oklahomafamilynetwork.org
    Oklahoma’s statewide nonprofit mentorship and resource referral network, empowering families who are raising children with special health care or disability needs.

  • Pacific Northwest Angelman Syndrome Foundation

    http://www.pnwasf.org
    Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing public awareness of Angelman Syndrome (AS) and serving as a resource and source of support for individuals with AS and their families in the states of Washington, Oregon and Alaska. The organization is comprised of elected officers and directors, who serve on a strictly volunteer basis, and the membership is open to interested individuals, families and professionals. PNWASF is associated with the national organization, Angelman Syndrome Foundation (ASF) and has contacts with various other international AS organizations.

  • Parent to Parent of Colorado

    http://www.p2p-co.org
    We are a non-profit organization committed to quality Parent to Parent support across Colorado. We offer encouragement to each other on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking support with a support parent.

  • Parent to Parent of Connecticut

    http://www.pathct.org
    PATH was formed in 1986 as an information and support network of families who have experienced a difficult pregnancy, premature birth, the loss of a young child or who have a child with medical needs, developmental delays and/or disabilities.

  • Parent to Parent of Maine

    http://www.mpf.org
    The Maine Parent Federation, Inc. is a statewide private non-profit organization that provides information, advocacy, education, and training to parents and professionals to benefit all children. We promote individual aspirations and community inclusion for people with disabilities. In existence since 1984, MPF is physically located in Augusta Maine, but assistance is available on a statewide basis.

  • Parent to Parent of New Hampshire

    http://www.p2pnh.org
    Learning that your child has special medical needs or a disability can be a traumatic experience. As a parent you may have questions and concerns about dealing with your child’s needs and your own feelings. You are not alone. We have been there.

  • Parent to Parent of New York State

    http://www.parenttoparentnys.org
    Parent to Parent of NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs. There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs.

  • Parent to Parent of Pennsylvania

    http://www.parenttoparent.org
    Parent to Parent of Pnnsylvania matches parents and family members of children and adults with disabilities or special needs, to supporting parents, on a one on one basis, according to condition or concerns.

  • Parent to Parent of Virginia

    https://ptpofva.wordpress.com/
    Parent to Parent contact can help families regain their sense of strength, of purpose and of independence. Through its network of volunteers, and all of the staff of Parent to Parent of Virginia have a family member with disabilities and/or have a college degree in the field of disabilities.

  • Parent to Parent of Wisconsin

    http://www.chw.org/childrens-and-the-community/parenting-resources/family-resource-centers/
    Our Family Resource Centers are a place where parents can learn to be the best parents they can be. These nurturing environments allow parents to connect with resources, take part in parenting programs and enjoy activities with their children at no cost.

  • Parents Reaching Out

    http://www.parentsreachingout.org
    Parents Reaching Out is a network of programs woven together to meet the ever changing needs of New Mexico families. We offer workshops and materials designed for families. We provide opportunities for connecting with other parents and resources in communities across our state. Our mission guides what we do to enhance outcomes for children and their families and build strong partnerships with the systems that touch their lives.

  • Queens Special Education Parent Center (QSEPC)

    http://www.uwsofny.org/info_page.php?pageid=11
    The Mission of UWS/QSEPC is to promote in the community and school system attitudes and practices that are inclusive to persons with disabilities, who are culturally and linguistically responsive to diversity. Ensuring that parents are knowledgeable of their rights and responsibilities under the Individual with Disability Education Act “(IDEA”) and other statues and regulations.

  • Rehabilitation Associates

    http://www.rehabassociatesinc.com/
    Since our inception in 1979, our mission has remained consistent: to enhance the quality of life for all people who require our services. We want everyone to be able to reach his or her maximum potential in all aspects of life.

  • Resources for Community Living

    http://www.rcl2bindependent.org
    Resources for Community Living (RCL) offers adults with developmental and/or physical disabilities opportunities to achieve greater self-esteem, dignity and participation in all aspects of community life through affordable housing options, individualized skill instruction and necessary support services. RCL utilizes funds to offer innovative services targeted at increasing the independence as well as the quality of life with services that may include affordable housing, homeownership programs, individualized support programs, social groups, vocational services, and rent subsidy programs. To offer adults with developmental and/or physical disabilities opportunities to achieve greater self-esteem, dignity and participation in all aspects of community life through affordable housing options, individualized skill instruction and necessary support services.

  • South Dakota Parent Connection

    http://www.sdparent.org
    South Dakota Parent Connection, Inc., is a Parent Training and Information Center. We are a non-profit organization formed by parents, educators, and services personnel to provide information and training to parents of children with disabilities or special health care needs throughout the state of South Dakota.

  • Spina Bifida Association of Greater New England

    http://sbagreaterne.org/
    The Spina Bifida Association of Massachusetts is dedicated to helping individuals with spina bifida in the Bay State achieve their maximum potential. A member of the Spina Bifida Association of America, the sbaMass was founded in 1973 to promote the prevention of spina bifida and to enhance the lives of all affected by it.

  • Spina Bifida Association of Illinois

    http://www.sbail.org/
    The Spina Bifida Association of Illinois® (SBA of IL) is a non-profit organization dedicated to improving the quality of life of people with Spina Bifida through direct services, information, referral, research, and public awareness. The SBA of IL is a 501(c)(3) nonprofit organization that was founded in 1969.

  • Spina Bifida Association of Iowa

    http://www.spinabifidaia.com
    The Mission of the Spina Bifida Association of Iowa is to promote the prevention of spina bifida and to enhance the lives of all affected.

  • Spina Bifida Association of Kentucky

    http://www.sbak.org
    The Spina Bifida Association of Kentucky (SBAK) began as a grassroots effort by parents and professionals concerned and affected by spina bifida. Since its beginning in 1982, the SBAK has offered services free of charge. Spina Bifida Association of Kentucky (SBAK) is a non-profit organization classified as a 501c3 and the Federal Tax Exempt number is 31-1081176. SBAK is a state chapter of the national organization Spina Bifida Association. www.sbaa.org Our Mission is to promote the prevention of spina bifida and to enhance the lives of all affected. We provide services for children with spina bifida, their families and adults with spina bifida.

  • Spina Bifida Association of Minnesota

    http://www.sbamn.com
    The Spina Bifida Association of Minnesota is a non-profit organization made up of volunteers. Our purpose is to increase awareness about Spina Bifida and enhance the lives of those affected.

  • St. Lawrence Rehabilitation Center

    http://www.slrc.org/
    Helping Our Patients Return to a Full & Active Life- We are a private, not-for-profit hospital sponsored by the Roman Catholic Diocese of Trenton, dedicated to meeting the physical, emotional, and spiritual needs of our patients. While we are receptive to changes in our community and the healthcare environment, our goal has always been and continues to be providing excellence in rehabilitative services.

  • Support for Families of Children with Disabilities

    http://www.supportforfamilies.org
    Is a parent-run San Francisco-based nonprofit organization founded in 1982. We support families of children with any kind of disability or special health care need as they face challenges.

  • Tennessee Adult Brothers and Sisters

    http://kc.vanderbilt.edu/kennedy/community/adultsiblings.html
    Through the Kennedy Center at Vanderbilt University in Nashville, TABS is a resource for adult brothers and sisters of those with Special Needs. We are focused on identifying the concerns and issues for this unique group of individuals and on providing resources to address those questions. As parents age, siblings often become more involved in care and planning and have both a desire and need to understand what’s involved and what resources are available. -Join TABS to stay informed about activities related to issues that affect adult brothers and sisters -Meet other siblings in Tennessee.

  • The Arc of Dallas

    https://arcdallas.org/
    The Arc of Dallas is a 501(c)(3) membership nonprofit organization whose mission is to improve the quality of life for people with intellectual and related developmental disabilities. The Arc of Dallas service area includes Collin, Dallas and Rockwall counties. Most programs and services take place in local communities and neighborhoods in conjunction with community partners including schools, churches, recreation centers, and others.

  • The Parent Care Solution

    http://www.parentcaresolution.com
    How do you care for your aging parents without financially or emotionally destroying your family? Fortunately there is a solution. The Parent Care Solutionª, can help today’s families prepare for tomorrow, preserving family wealth and even more important, preserving family relationships. The Parent Care Solution is a new tool for today. It is a proactive, caring process involving parents and their adult children specifically created to initiate this vital dialog and facilitate communication. Parent Care Specialistsª work with all family members in unison to develop and implement a total plan to strategically, lovingly solve the problem of caring for aging parents without financially or emotionally destroying the family. The Parent Care Solution helps preserve wealth and family relationships. It is an innovative solution to a serious problem. It effectively defuses the family relationship time bomb allowing you to leave… A Legacy of love.

  • United Cerebral Palsy of Orange County

    http://www.ucp-oc.org/UCP/
    Founded in the early 1950s by parents and volunteers to serve the needs of children with cerebral palsy, UCP of Orange County now serves children with all types of developmental disabilities and provides vital support to families. Each year, we provide direct services to more than 3,800 people, with disabilities including cerebral palsy, autism, Down syndrome muscular dystrophy and other developmental disabilities. Our staff of highly trained professionals includes leaders in inclusion, early intervention, advocacy and community resources, providing services and materials in English, Spanish and Vietnamese.

  • United Spinal Association

    www.unitedspinal.org
    United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals.

    We believe no person should be excluded from opportunity on the basis of their disability. Our goal is to provide people living with SCI/D programs and services that maximize their independence and enable them to remain active in their communities.

    Each year, United Spinal helps thousands of wheelchair-users, veterans, and people with multiple sclerosis and other spinal cord disorders overcome the daily challenges of living with a disability. And we extend our support to those most important in their lives–– their family members and caregivers. We have more than 60 local chapters and support groups nationwide, connecting people with SCI/D to their peers and fostering an expansive grassroots network that enriches lives.

  • Upstate NY Families for Effective Autism Treatment

    http://www.unyfeat.org
    UNYFEAT is the leading not-for-profit advocacy organization for individuals with Autism Spectrum Disorder (ASD) and their families in the Rochester area. Anyone is welcome to join UNYFEAT and we especially encourage families new to the diagnosis or area to join us.

  • Utah Birth Defect Network

    http://hlunix.hl.state.ut.us/birthdefect/
    The Utah Birth Defect Network (UBDN) seeks to prevent birth defects and secondary disabilities by monitoring occurrence, conducting research, providing education and outreach. We hope that the information on this Web site will meet your needs.

  • Vista Center for the Blind & Visually Impaired, Palo Alto

    http://www.vistacenter.org/
    Today we are Vista Center, the premier resource for individuals with vision loss in San Mateo, Santa Clara, San Benito and Santa Cruz counties. Serving more than 1,900 clients and families each year, Vista Center helps clients reach their highest potential through programs that promote independence and improve quality of life.

  • Walk Right In Ministries

    http://www.walkrightin.org
    Walk Right In Ministries equips people to connect and grow in Christ-centered communities while discovering adventure in life’s challenges. We have a special passion to encourage caregivers by helping them plug into relationships and resources that keep them growing with others and developing intimacy with Christ. We are also a Ministry Affiliate of Joni and Friends International, dedicated to enhancing disability awareness and ministry worldwide.

  • Zacharias Center

    http://www.zcenter.org
    Zacharias Sexual Abuse Center provides 24-hour crisis intervention, counseling services and advocacy support for victims and their loved ones, of sexual assault, abuse and rape. The Center also offers educational prevention and awareness programs for Northeastern Illinois communities.