Support Groups
Listings
Ohio Comission of Rehabilitation Agency
The Commission is interested in funding projects which are innovative, culturally sensitive and specific in their approach toward reduction of the incidence and severity of those diseases or conditions which are responsible for excess morbidity and mortality in minority populations.
Oklahoma Family Network, Inc
http://www.oklahomafamilynetwork.org
Oklahoma's statewide nonprofit mentorship and resource referral network, empowering families who are raising children with special health care or disability needs.
Pacific Northwest Angelman Syndrome Foundation
Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing public awareness of Angelman Syndrome (AS) and serving as a resource and source of support for individuals with AS and their families in the states of Washington, Oregon and Alaska. The organization is comprised of elected officers and directors, who serve on a strictly volunteer basis, and the membership is open to interested individuals, families and professionals. PNWASF is associated with the national organization, Angelman Syndrome Foundation (ASF) and has contacts with various other international AS organizations.
Parent Connection Network of Alabama
Unique in the nation, the Alabama Department of Rehabilitation Services is comprised of state and federal programs that provide a continuum of services from birth through life for Alabamians with disabilities. ADRS has four major programs:
Parent to Parent of Colorado
We are a non-profit organization committed to quality Parent to Parent support across Colorado. We offer encouragement to each other on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking support with a support parent.
Parent to Parent of Connecticut
PATH was formed in 1986 as an information and support network of families who have experienced a difficult pregnancy, premature birth, the loss of a young child or who have a child with medical needs, developmental delays and/or disabilities.
Parent to Parent of Georgia
http://www.parenttoparentofga.org
Parent to Parent provides support and information to parents of children with disabilities. One of the most meaningful sources of support are other parents who have experienced parenting a child with a disability
Parent to Parent of Maine
The Maine Parent Federation, Inc. is a statewide private non-profit organization that provides information, advocacy, education, and training to parents and professionals to benefit all children. We promote individual aspirations and community inclusion for people with disabilities. In existence since 1984, MPF is physically located in Augusta Maine, but assistance is available on a statewide basis.
Parent to Parent of New Hampshire
Learning that your child has special medical needs or a disability can be a traumatic experience. As a parent you may have questions and concerns about dealing with your child's needs and your own feelings. You are not alone. We have been there.
Parent to Parent of New York State
http://www.parenttoparentnys.org
Parent to Parent of NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs. There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs.
Parent to Parent of Pennsylvania
Parent to Parent of Pnnsylvania matches parents and family members of children and adults with disabilities or special needs, to supporting parents, on a one on one basis, according to condition or concerns.
Parent to Parent of Vermont
Parent to Parent envisions a world in which:
Families live in communities where differences are embraced.
Families, health care providers and educators partner in the care of children. Families are knowledgeable about and able to access the resources they need. Parent to Parent is a respected, richly resourced organization that partners with families, policy makers, providers, educators and community members to keep the vision alive.
Parent to Parent of Virginia
Parent to Parent contact can help families regain their sense of strength, of purpose and of independence. Through its network of volunteers, and all of the staff of Parent to Parent of Virginia have a family member with disabilities and/or have a college degree in the field of disabilities.
Parent to Parent of Wisconsin
http://www.familyresourceconnection.org/ptpow.htm
The Family Resource Connection was established in 1997 by a group of community members seeking a vehicle to provide comprehensive, community-based services for families in Northern Wisconsin. During a year-long feasibility study, the core group investigated principles of family support, models for family resource centers and assessed the needs of Northwoods residents. A business plan was developed encompassing all that was learned and submitted to Sacred Heart-Saint Mary's Hospitals, Inc., with a request for funding to open the Family Resource Connection. Saint Mary's Hospital's administration granted the request for start-up funds and also became the fiscal agent to the newly formed family resource center.
Parent to Parent support Program
The Arc of Washington State's mission is to promote the education, health, self-sufficiency, self-advocacy, inclusion and choices of individuals with developmental disabilities and their families.
Parents Reaching Out
http://www.parentsreachingout.org
Parents Reaching Out is a network of programs woven together to meet the ever changing needs of New Mexico families. We offer workshops and materials designed for families. We provide opportunities for connecting with other parents and resources in communities across our state. Our mission guides what we do to enhance outcomes for children and their families and build strong partnerships with the systems that touch their lives.
Parkview Acres Care & Rehabilitation Center
http://www.parkviewacres.com/BuildPageC.asp?lFacID=104&PageID=H
Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care.
The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.
Pogoda Family Fragile X Resource Group of New York (Central, Western and Upstate)
http://www.fragilex.org/html/upstatenyhome.htm
We will unite the Fragile X community, enrich lives through educational and emotional support, promote public and professional awareness while supporting advanced research toward improved treatments and a cure for Fragile X Syndrome.
Rehabilitation Associates
http://www.rehabassociatesinc.com/
Since our inception in 1979, our mission has remained consistent: to enhance the quality of life for all people who require our services. We want everyone to be able to reach his or her maximum potential in all aspects of life.
Rehabilitation Institute of Southern California
RIO attains its goal of improving the quality of life of disabled persons by providing comprehensive, coordinated programs which increase the ability of disabled individuals to function at home and school, on the job, and in the community.
Ryan's Hope for Family & Friends
Ryan’s HOPE is on a mission to raise awareness about the nation’s forgotten, unserved, and underserved special needs children. It is the organization’s wish to improve the lives of special needs children and to keep their families together.
Search and Respond
EP Global Communications, Inc. and Exceptional Parent magazine add perspective on the recent FDA public notification concerning adverse events reported in children with cerebral palsy who have received treatment with Botulinum Toxin (BOTOX®) injections
Sharing our Strengths (SOS) Missouris Parent to Parent Network
http://www.sharingourstrengths.com
Welcome to Sharing Our Strength's (SOS), Missouri's parent to parent/peer support network for parents of children with developmental disabilities or special healthcare needs, individuals with disabilities, and professionals. You may have questions and concerns about dealing with your child's needs and your own feelings. You are not alone. We have been there. Let us be there for you.
South Coast Medical Center
http://www.southcoastmedcenter.com/content/
A 208-bed, community, not-for-profit general acute care hospital, South Coast Medical Center provides patient care services ranging from critical care, same-day surgery, sub-acute care and 24-hour emergency services to chemical dependency, psychiatric service, eating disorder treatment, radiation oncology and extensive rehabilitation services. In addition, we also provide free physician referral services and a health resource center.
South Dakota Parent Connection
South Dakota Parent Connection, Inc., is a Parent Training and Information Center. We are a non-profit organization formed by parents, educators, and services personnel to provide information and training to parents of children with disabilities or special health care needs throughout the state of South Dakota.
