Welcome to Your Special Needs Directory List
When you’re caring for a family member with special needs, having extra help is always appreciated. Here you’ll find an abundance of useful resources to help you in every aspect of the care and development of your loved one.
Adrenal Diseases Foundation
Our Mission The National Adrenal Diseases Foundation is a 501(c)(3) non-profit organization dedicated to providing support, information and education to individuals having Addison’s disease as well as other diseases of the adrenal glands.
Adult Growth Hormone Deficiency
Is your child growing normally? If your child does not have a diagnosed syndrome or confirmed growth hormone deficiency, start researching by clicking here or read the information below. We are Parents who have been “there”. We fought to find answers for our children’s lack of normal growth because we were concerned about their health. And because our children were “affected” we are passionate about getting information “out there” for other parents. Growth hormone and all growth disorders are a reflection of overall health.
6645 W. North Avenue Oak Park, Illinois 60302
American Foundation for the Blind-West
The American Foundation for the Blind (AFB) is a national nonprofit that expands possibilities for people with vision loss. AFB’s priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources.
2 Penn Plaza, Suite 1102 New York, NY 10121
Internet safe haven, dedicated to the strength and determination of all of the people with crainiofacial differences and their families.
Applied Behavioral Services
Welcome to Applied Behavioral Services! ABS is an educational placement program specializing in serving children and adolescents with Autism Spectrum Disorder as well as other cognitive and developmental delays. We are an Autism Scholarship Provider as well as a John Peterson Scholarship provider with the Ohio Department of Education and are proud to offer small classroom ratios, highly individualized curriculums, and behavioral management programs all overseen by one of our highly trained BCaBA’s or BCBA’s. Applied Behavioral Services has been serving children for the past 15 years with over 25 years of collective experience with children with special needs. Our programs and classrooms are very individualized based upon the assessment and needs of the student. A student may begin our program in a 1-1 or 1-2 setting and then move to our Step-UP Programs where social skills, academics and classroom routine are stressed as a priority. Applied Behavioral Services is the largest as well as the number one private educational placement choice among our families with in the greater Cincinnati area and Dayton area. Contact us for a tour or more information about all of our programs, class placements or therapies for your child today!
2570 Technical Drive Miamisburg, OH 45342
The national nonprofit organization representing the needs and interests of children and families affected by apraxia. We hope that you will want to learn more about us and join our efforts.
416 Lincoln Avenue 2nd Fl., Pittsburgh, PA 15209
Arc of Illinois
The Arc of Illinois truly believes that we are all people first and because of that, regardless of any developmental or intellectual differences, everyone deserves the same rights and opportunities. In order to do this we regularly host events that bring in family members, self advocates, and professionals in the field to educate them on the latest and best practices. The Arc of Illinois also provides updates on a daily basis on all issues involving individuals with intellectual and developmental disabilities. In addition to this, The Arc of Illinois has many different programs that are there to provide a plethora of resources to help each family member, advocate, and professional with their questions.
2200 South Main Street Suite 203 Lombard, IL 60148
Arizona Industries for the Blind
Arizona Industries for the Blind was established in 1952 to provide employment and training opportunities for Arizonans who are legally blind. Most individuals of working age who are legally blind can compete successfully for good jobs if they’re given the opportunity to develop skills and increase their self-confidence.
Arthritis Foundation – New Jersey Chapter
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions. Founded in 1948, with headquarters in Atlanta, the Arthritis Foundation has multiple service points located throughout the country.
1330 W. Peachtree Street.; Suite 100 Atlanta, GA 30309
The Arthritis Society offers a wide range of programs and resources dealing with arthritis. These services, including the examples below, can benefit people with arthritis as well as family members and caregivers.
ASB, Associated Services for the Blind and Visually Impared
Our many divisions serve the local Philadelphia and Delaware Valley areas and beyond.It is our goal at ASB to help the blind and visually impaired regain their independence, self-esteem and confidence so that they may lead active, productive and healthy lives.
919 Walnut Street Philadelphia, PA 19107
Aspergers Syndrome Coalition
2020 Pennsylvania Avenue NW, Box 771 Washington, DC 20006
Ataxia, A-T Childrens Project
The A-T Children’s Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.
5300 W. Hillsboro Blvd., Suite 105 Coconut Creek, FL 33073
Autism Action Partnership
Our Mission is to improve the quality of life of persons on the Autism Spectrum and their families through education, advocacy and support, thereby enabling them to be an integral part of the community. We provide a central clearinghouse for information pertaining to the diagnosis, treatment, and community resources for individuals diagnosed on the Autism Spectrum and their families. This information is available at (877) ASD-AAP1 or (402) 763-8830 during regular business hours and through our website at www.autismaction.org.
Autism National Commitee
This is the only autism advocacy organization dedicated to “Social Justice for All Citizens with Autism” through a shared vision and a commitment to positive approaches.
Welcome to Autism Resources, with information and links regarding the developmental disabilities autism and Asperger’s Syndrome.
Autism Society of Alabama
Mission Statement: To improve services for persons with Autism Spectrum Disorders and their families through education and advocacy. Constituency: Persons with Autism Spectrum Disorders and their families Principle Beliefs: Every individual has inherent worth and dignity Inclusion in the community is preferred over exclusion; Options and opportunities should be available for every person; Services should focus on the family and the individuals; Accessible, individualized, comprehensive services should be available; Services should strive to be a model of excellence and incorporate validated innovations; Consumers should expect and receive effective advocacy and leadership; Consumers deserve to receive current information on diverse therapeutic options.
4217 Dolly Ridge Road Birmingham, AL 35243
Autism Society of Greater New Orleans
Provides information and referrals, advocacy and support for individuals with Autism Spectrum Disorder (ASD) and their families: to help families identify qualified professionals in their communities; to assist families in securing benefits and services provided by law; and to promote lifelong opportunities for persons with Autism Spectrum Disorder in order to be fully included members of their communities.
New Orleans, LA 70186
Autism Society of Southeastern Wisconsin
Our Mission: To support people with Autism Spectrum Disorders, their families, professionals, and others, by sharing information, supporting research, providing networking opportunities and promoting awareness through education and training.
3720 N. 124th Street, Suite O Wauwatosa, WI 53222
Autism Speaks is an international consortium of researchers, philanthropists, government funding agencies, and participating families dedicated. At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders. We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis.
1 East 33rd Street 4th Floor New York, NY 10016
Autism Spectrum and Developmental Disorders Resource Center
Individuals within the autistic spectrum of developmental disorders often face a variety of unique mental health challenges throughout their lifetime. It can be confusing for parents and families to know how to locate the essential services, or even how to identify the services that their child, adolescent, or young adult needs. The Autism Spectrum and Developmental Disorders Resource Center can assist families through this confusing and sometimes frustrating process. Our expert Clinical Navigator of the Resource Center works with individuals and families to help assess their needs, and facilitate a triage of those vital services. The Autism Spectrum and Developmental Disorders Resource Center is made available to families in our community through the generosity of our individual and corporate partners. Families may then be directed to either services within the Alexian Brothers Health System, or they may be referred to services in the community.
800 Biesterfield Road Elk Grove Village, IL 60007
Bipolar Disorder, Child and Adolescent Foundation
The Child & Adolescent Bipolar Foundation improves the lives of families raising children and teens living with bipolar disorder and related conditions.
Bipolar Disorder, formerly known as Manic Depression, is a highly disruptive brain disorder. Since 1994 Pendulum.org has been the web’s premier resource for bipolar information.
Blind Babies Foundation
Young children in Central and Northern California who are blind or visually impaired and may have additional disabilities receive critical early intervention and education services from Blind Babies Foundation, a program of Wayfinder Family Services. Children increase visual functioning, sensory awareness, communication and social skills, as well as improve physical, cognitive and emotional development. Families learn to become successful advocates for their children’s education and care. Our vision impairment specialists collaborate with family members, medical professionals, caregivers and teachers.
Brain Injury Alliance of WI
The Brain Injury Alliance of Wisconsin (BIAW) is a nonprofit, 501 (c) 3 organization committed to serving individuals with an acquired brain injury and their families. The association was formed in 1980 by a group of individuals with brain injury, their family members, friends and professionals in response to the lack of available services specific to the unique needs of individuals with brain injury. BIAW is a chartered member affiliate of the national Brain Injury Alliance, Inc.
N63 W23583 Main Street, Suite A Sussex, WI 53089
Brain Injury Association of America
The Brain Injury Association of America’s mission is to be the voice of brain injury, and to offer help, hope and healing to people with brain injury, family members and the professionals that serve them. Founded in 1980, with a network of over 40 state affiliate offices around the country, it is the only national advocacy organization dedicated solely to people with brain injury
1608 Spring Hill Road, Suite 110 Vienna, VA 22182
Brain Injury Association of Florida
The mission of this Association is to improve the quality of life for persons with brain injury and their families by creating a better future through brain injury prevention, research, education, support services, and advocacy. BIAF is a non-profit organization, founded in 1985 by the mother of a young man who sustained a traumatic brain injury from an automobile crash. It is an organization of individuals with brain injuries, their families, and professionals working to help people cope with the long term effects of brain injury.
Brain Injury Association of Hawaii
Welcome to the website of the Brain Injury Association of Hawaii, a non-profit 501(C)3 agency. We are dedicated to serving those affected by brain injury through advocacy, education, prevention, and support.
Brain Injury Association of Illinois
The Brain Injury Association of Illinois provides programs and services to children, teens and adults who have sustained an acquired brain injury, the families/caregivers, and professionals working with those individuals, as well as an injury prevention program to prevent the preventable injury. The BIA of IL provides an Information & Resource Center, Summer Camps for children and adults, support groups, educational programs, and annual educational conference.
Chicago, IL 60664
Brain Injury Association of Utah, Inc.
The mission of the Brain Injury Association of Utah is to create a better future through brain injury prevention, research, education and advocacy.
5280 So.Commerce Dr. Suite E-190, Murray, UT 84107
Brent Woodall Foundation for Exceptional Children
Since it is not realistic for the Foundation to provide even modest financial and hands-on technical assistance to all of the families affected by autism, even in the US, the Foundation focuses on a two part plan, with both prongs aimed primarily at the youngest children with autism.
3021 Gateway Drive, Suite 295 Irving, Texas 75063
C-CAD Center of United Cerebral Palsy of Metropolitan Dallas
What do we do? United Cerebral Palsy (UCP) is one of the nation’s leading organizations serving and advocating for more than 54 million Americans with disabilities. Many UCP consumers are people with disabilities other than cerebral palsy. Here in north Texas UCP offers services to individuals, families and communities, such as early childhood development and education, community living assistance and support services (CLASS), home and community support (HCS), consumer direct services (CDS), group homes, adult Impact program, and removing limits through technology with our assistive technology programs. Additionally, UCP of North Texas provides OT, PT, and speech therapy along with a vast array of adaptive equipment available through our equipment loan program.
8802 Harry Hines Blvd. Dallas, Texas 75235
Center for Autism Research at The Children’s Hospital of Philadelphia
The Center for Autism Research (CAR) is a collaborative effort between The Children’s Hospital of Philadelphia and the University of Pennsylvania. CAR’s goals are to identify the causes of autism spectrum disorders (ASD) and develop effective treatments. CAR conducts research studies for infants at risk for being diagnosed with ASD (due to having a sibling already diagnosed) as well as toddlers and school-aged children on the autism spectrum. Families receive comprehensive assessment reports and are paid for their time and travel costs. Typically developing children and adults are also needed for comparison purposes. For more information, please visit http://www.centerforautismresearch.com.
3535 Market St # 3535, Philadelphia, PA 19104
Center for Persons with Disabilities
The Center for Persons with Disabilities (CPD) is Utah’s University Center for Excellence in Developmental Disabilities Education, Research, and Services (UCEDD). Our mission statement expresses both our values and the ways in which we choose to work: “We collaborate with partners to strengthen families and individuals across the lifespan through education, policy, research and services.”
6800 Old Main Hill, Logan, UT 84322-6800
Center for the Partially Blind
The mission of The Center for the Partially Sighted is to promote independent living for people of all ages with impaired sight.
6101 W. Centinela Ave. Suite 150 Culver City, CA 90230
Child and Family Project
The research programs conducted in our lab began about 25 years ago. Our research has been supported by grants from the National Institutes of Health and private foundations. We collaborate with colleagues at several other institutions both in the Boston area and elsewhere.
100 Cummington Mall Boston MA 02215
Citilink Fort Wayne
Provides transportation to Fort Wayne City limits. Hours of operation are 5:45am-9:30pm Monday-Friday. Saturday hours are 7:30am-6:00pm. Also provides paratransit services during the same hours for those who are ADA eligible and certified.
801 Leesburg Road Fort Wayne, IN 46808
Commonwealth Autism Service
The mission of Commonwealth Autism Service is to provide leadership in the implementation of a statewide system of services to maximize the potential and quality of life of each Virginian with autism across the lifespan. Our website includes information about autism, autism services, and providers, as well as helping you to keep up to date on policy and research.
4108 E. Parham Rd. Richmond, Va. 23228
Conklin Center for the Blind
The mission of the Florida Lions Conklin Center is to train, assist, and support individuals that are blind and have one or more other disabilities to obtain gainful employment, live independently, participate in community life and have the freedom to make their own choices with dignity. Our students may have been born blind or suffered an injury or illness that caused the loss of sight. they are also challenged by another physical or cognitive or developmental disability such as deafness, cerebral palsy, learning disabilities or borderline mental retardation, to name a few.
405 White St. Daytona Beach, FL 32114
CSD (a.k.a. Communication Service for the Deaf, Inc.) was established in 1975, primarily to provide sign language interpreting services to deaf and hard of hearing adults in South Dakota. Today, CSD employs nearly 2,000 individuals in offices across the nation, providing a broad continuum of social and human services programs, as well as telecommunications relay and contact center services. CSD is a private nonprofit agency dedicated to providing quality services; ensuring public accessibility; and increasing awareness of issues affecting the deaf, hard of hearing and individuals with speech disabilities.
200 W. Cesar Chavez Ste 650, Austin TX 78701
Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
6931 Arlington Road 2nd floor Bethesda, MD 20814
Depression and Bipolar Support Alliance
The Depression and Bipolar Support Alliance (DBSA) is the leading patient-directed national organization focusing on the most prevalent mental illnesses. The organization fosters an environment of understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically-based tools and information written in language the general public can understand. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments and discover a cure. The organization works to ensure that people living with mood disorders are treated equitably.
55 E. Jackson Blvd, Suite 490 Chicago, Illinois 60604
Doug Flutie, Jr. Foundation for Autism
Our primary goal is to promote awareness and support families affected by autism spectrum disorders. We are committed to funding organizations that provide direct services, family support grants, education, advocacy and recreational opportunities with the purpose of improving the quality of life for individuals with autism and their families.
Down Syndrome Foundation of Florida
The mission of The Foundation is to empower lives for a brighter future by facilitating projects that enhance the welfare, education, health, and artistic and athletic abilities of individuals with Down syndrome. The vision of The Foundation is to create an environment where people with Down syndrome are included in every facet of the community. The Foundation provides several scholarships, informational and training workshops and an internet resource room related to the information and needs of individuals with Down syndrome and their families, professionals, and caregivers.
Orlando, FL 32853-3462
Down Syndrome Guild of Greater Kansas City
The Down Syndrome Guild of Greater Kansas City is a 501 c 3 nonprofit organization whose mission is to provide support and resources for individuals with Down syndrome and their families. DSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.
5960 Dearborn Street, Suite 100 Mission, KS 66202
Down Syndrome Network
The Down Syndrome Network’s mission is to provide comprehensive education, support and advocacy for individuals and families affected by Down syndrome.
Tempe AZ 85284
Down Syndrome, National Association
NADS is the oldest organization in the country serving individuals with Down syndrome and their families.
1460 Renaissance Drive, Suite #405 Park Ridge, IL 60068
Dyscalulia- Web Site
This web site list resources that are useful for the parents and educators working with children with Dyscalulia.
7420 Calhoun Street, Dearborn, Michigan, 48126
Dyslexia-The Gift, Davis Dyslexia Association International
Join us as we explore the positive talents that give rise to dyslexia, and share our knowledge about the best ways for dyslexic people to learn.
Dyslexia, The International Association
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Our goalis to provide the most comprhensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.
40 York Rd., 4th Floor
Baltimore, MD 21204
The Dyspraxia Foundation is a country Wide charity, founded in 1987 as the Dyspraxia Trust by two mothers who met at Great Ormond Street Hospital for Sick Children. After being told that their children had Dyspraxia they were astonished and dismayed to discover that no facilities existed to help or inform parents and children with the condition. They decided to form their own group to help others to help themselves.
8 West Alley, Hitchin, Herts, SG5 1EG.
Dyspraxia USA NFP
We are an organization that helps all people in the United states with Neuro Diverse learning conditions. We focus mainly on Dyspraxia a condition that affects 6 percent of the population and since I have the condition I decided it was time to make a stand for my people!We are here to educate,inform and make aware to all aspect of the community schooling and other sectors the hidden conditions that go unnoticed due to limited social know how!
4 Westover Road Highwood, IL 60040
Eastern Blind Rehabilitation Center
The mission of Blind Rehabilitation Service is to coordinate a healthcare service delivery system that provides a continuum of care for blinded veterans extending from their home environment to the local VA facility and to the appropriate rehabilitation setting. These services include adjustment to blindness counseling, patient and family education, benefits analysis, comprehensive residential inpatient training, outpatient rehabilitation services, the provision of assistive technology, and research.
“The Epilepsy Foundation will ensure that people with seizures are able to participate in all experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services.”
8301 Professional Place East, Suite 200 Landover, MD 20785-2353
Epilepsy Foundation North/Central Illinois
The Epilepsy Foundation North/Central Illinois will ensure that people with seizures are able to participate in all life experiences; and will prevent, control, and cure epilepsy through services, education, advocacy and research. We serve the following counties in North/Central Illinois: Boone, Bureau, Carroll, DeKalb, Henry, Jo Daviess, Fulton, Henderson, Knox, LaSalle, Lee, McHenry, Marshall, McDonough, Mercer, Ogle, Peoria, Putnam, Rock Island, Stark, Stephenson, Warren, Whiteside, Winnebago.
Epilepsy Foundation of Greater Chicago
Provides referral, education, outreach, advocacy, casemanagement, medical clinics, pharmaceutical assistance referral, vocational counseling, and support groups. Also provides employment and educational advocacy to those dealing with epilepsy and seizure disorder.
17 N. State Street Suite 650 Chicago, IL 60602
Epilepsy Foundation of Hawaii, Inc.
The Epilepsy Foundation of Hawaii (EFH) provides direct services to individuals with seizure disorders. It is estimated that over 18,000 Hawaii residents suffer from epilepsy and over 75,000 people are touched by it. For over 20 years the EFH has provided information and educational services to individuals and groups with questions pertaining to epilepsy. The EFH is a private, nonprofit agency, whose mission is to increase public awareness of epilepsy and to build a sense of community, enabling persons with epilepsy to participate fully in the community at large.
1050 Ala Moana Boulevard Suite 2550 Honolulu, HI 96814
Epilepsy, The Network
This corporation is a non-profit 501(c)(3) public benefit corporation, organized for charitable purposes.The specific purposes for which this corporation is organized are to provide education, charitable assistance, encouragement, support, information, referrals, and advocacy for those touched by epilepsy.
Dayton, OH 45475
Family Ideas Network for Down Syndrome (FINDS)
We are a parent support group providing education, support, community awareness to families with children with Down Syndrome in the McHenry County area.
Crystal Lake, IL, 60039-1441
Fetal Alcohol Syndrome, National Orginization
NOFAS is committed to raising public awareness of Fatel Alcohol Syndrome (FAS)- the leading known cause of menatl retardation- and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities throughout the nation.
1200 Eton Court, NW, Third Floor, Washington, D.C. 20007
Florida Institute of Rehabilitation Education (FIRE)
FIRE is a nonprofit agency dedicated to assisting people who are visually impaired or blind to achieve a maximum level of independence in their lives. Free services are provided on an outreach (one on one) or group basis and are provided without charge, without regard to individual or family income level, race, creed, age, disability or national origin.
3071 Highland Oaks Terrace, Tallahassee, FL 32301
Foundation Fighting Blindness
The urgent mission of the Foundation Fighting Blindness, Inc. (FFB) is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
7168 Columbia Gateway Drive, Suite 100, Columbia, MD 21046
Geneva Center for Autism
Geneva Centre for Autism is an international leader in the development and delivery of training, support and clinical intervention services for individuals with Autism Spectrum Disorder.
112 Merton Street Toronto, Ontario Canada M4S 2Z8
Glenkirk’s mission is to provide quality, lifetime supports and services which empower individuals with developmental disabilities to participate fully in all areas of community life. Glenkirk will advocate for and provide support and service based on the principles of informed choice, personal dignity, responsibility and individualization thereby enhancing the quality of life for all those whom Glenkirk serves.
3504 Commercial Avenue Northbrook, Illinois 60062
Hearing & Service Dogs of Minnesota
Hearing and Service Dogs of Minnesota has been helping people with disabilities through the use of assistance dogs since 1987. We work with individuals who are deaf, hard-of-hearing or physically disabled, pairing them with dogs specially trained to alert them to important sounds or assist them in the activities of daily living.
9440 Science Center Drive New Hope, MN 55428
Hope Delivery Systems, Inc.
Hope Delivery Systems, Inc. is a social service organization providing private pay client service and consultation in the form of education, advocacy, and therapy to the community – specializing in families with children, and adults on the Autism Spectrum while simultaneously developing The Hope Delivery Systems Foundation for extended community outreach and development.
710 W. BUENA AVE. CHICAGO, IL 60613
Huntington’s Disease Society of America Help for Today. Hope for Tomorrow. HDSA Mission — The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington’s Disease and their families. To promote and support research and medical efforts to eradicate Huntington’s Disease. To assist people and families affected by Huntington’s Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington’s disease.
505 Eighth Avenue Suite 902 New York, NY 10018
Idaho Commission For The Blind And Visually Impaired
Our mission is to empower persons who are blind or visually impaired by providing vocational rehabilitation training, skills training and educational opportunities to achieve self-fulfillment through quality employment and independent living; to serve as a resource to families and employers and to expand public awareness regarding the potential of all persons who are blind or visually impaired.
Illinois Branch of The International Dyslexia Association
We are dedicated to the study and remediation of dyslexia and to the support and encouragement of individuals with dyslexia and their families.
751 Roosevelt Road, Suite 116, Glen Ellyn, IL 60137-5905
International Mosaic Down Syndrome Association
International Mosaic Down Syndrome Association is designed to provide support, information and research to individuals, families and professionals touched by mosaic Down syndrome.
Stow, MA 01775
Kentucky Department for the Blind
The Kentucky Office for the Blind is a state government rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in hiring or accommodating workers who have a vision loss.
275 East Main Street Frankfort KY 40621
Kids Health- Auditory Processing Disorder
KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. Created by The Nemours Foundation’s Center for Children’s Health Media, the award-winning KidsHealth provides families with accurate, up-to-date, and jargon-free health information they can use. KidsHealth has been on the Web since 1995 — and has been accessed by about half a billion visitors. On a typical weekday, more than 500,000 visitors access KidsHealth’s reliable information.
LD OnLine seeks to help children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD.
Learning Disabilities Association of America
LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.
4156 Library Road Pittsburgh, PA 15234-1349
Learning Disabilities, National Center for
The site features content on implementing RTI from preschool to secondary; information for administrators, teachers, specialists, and families; unprecedented access to the nation’s top researchers and experienced implementers; as well as numerous networking opportunities to talk to colleagues nationwide.
32 Laight Street, Second Floor New York, NY 10013
Madison Area Down Syndrome Society, Inc.
MADSS is a 501 (c)3 non-profit organization affiliated with the National Down Syndrome Society, theNational Down Syndrome Congress and theDown Syndrome Affiliates in Action. We are parents, siblings and relatives of people with Down syndrome and community leaders who want to make a difference in the lives of individuals with Down syndrome in the greater Madison community.
Madison, WI 53744
189 S. Orange Ave., Suite 1620 Orlando, FL 32801
Mesothelioma is a rare cancer caused by exposure to asbestos particles and affects the lining of the lungs, heart, and abdomen. The average latency period that mesothelioma takes to develop is anywhere from 20-40 years. Since this period is so long, mesothelioma usually affects older adults in their 60’s and 70’s. We specialize in connecting patients with doctors and treatment options that are best suited for them. Our information services and resources are 100% free to patients and family members.
Miami Lighthouse for the Blind
Miami Lighthouse has an experienced management team. Its CEO and other senior management have demonstrated outstanding professional acumen in their respective fields. This team is dedicated to offering the most effective state-of-the-art techniques and care to persons who are blind or severely visually impaired, as well as its new initiative in eye wellness.
601 SW 8th Avenue Miami, FL 33130
Mitochondrial Disease, United Foundation
The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
8085 Saltsburg Road, Suite 201, Pittsburgh, PA 15239
Muscular Dystophy Association
MDA is the world’s leading nonprofit health organization sponsoring research seeking the causes of and effective treatments for neuromuscular diseases. MDA research grants currently are supporting more than 250 projects worldwide.
222 S. Riverside Plaza, Suite 1500 Chicago, Illinois 60606
National Alliance for the Mentally Ill
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country.
3803 N. Fairfax Drive, Suite 100 Arlington, VA 22203
National Aphasia Association
The NAA’s mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment.
Scarsdale, NY 10583
National Ataxia Foundation
The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
2600 Fernbrook Lane Suite 119 Minneapolis, MN 55447
National Down Syndrome Congress
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
30 Mansell Court, Suite 108 Roswell, GA 30076
National Institute of Arthritis & Musculoskeltal & Skin Diseases
The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
Bethesda, MD 20892-3675
National Organization for Disorders of the Corpus Callosum
The NODCC is a nonprofit organization established in 2002 by professionals, parents and individuals affected by a disorder of the corpus callosum. Our mission is to enhance the quality of life and promote opportunities for individuals affected by the disorder. We work to raise the profile, understanding and acceptance of these disorders through education, advocacy and networking. We disseminate information and newsletters, host family conferences and facilitate family networking through our family partnership programs.
PMB 363, 18032-C Lemon Dr. Yorba Linda, California 92886
National Research & Training Center on Blindness Mississippi State University
The mission of the RRTC is to enhance employment and independent living outcomes for individuals who are blind or visually impaired through research, training, education, and dissemination
108 Herbert South, Room 150 Industrial Education Department Building, Mississippi State University Mississippi State, MS 39762
National Resource Center on ADHD
The National Resource Center on AD/HD: A Program of CHADD is the nation’s clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD). Funded through a cooperative agreement with the Centers for Disease Control and Prevention, the NRC provides information on this disorder which affects how millions of children and adults function on a daily basis. The NRC was created to meet the information needs of professionals and the general public.
4601 Presidents Drive, Suite 300 Lanham, MD 20706
New Jersey Commission for the Blind and Visually Impaired
Offers Services for the totally blind, legally blind, visually impaired, deaf blind and more with eye health, counseling, educational, recreational, computer training, amd vocational services.
Newark, NJ 07101-47017
Nonverbal Learning Disorder
Educating the care givers and assciates of individuals with NLD is the prime goal of this web site.
Nonverbal Learning Disorder Association
NLDA is a non-profit corporation dedicated to research, education, and advocacy for nonverbal learning disorders.
507 Hopmeadow St. Simsbury, CT. 06070
North Carolina Division of Services for the Blind
Since 1935, the mission of the North Carolina Division of Services for the Blind has been to enable people who are blind or visually impaired to reach their goals of independence and employment.
2001 Mail Service Center Raleigh, NC 27699-2001
Ontario Federation for Cerebral Palsy
Ontario Federation for Cerebral Palsy is a non-profit, charitable organization which strives to address the changing needs of people in Ontario with cerebral palsy by way of the following core activities. (1) Assisting people with cerebral palsy and their families with education, funding for equipment, planning for the future, and accessing community services. (2) Funding assistance for Member Groups who provide services to assist people with cerebral palsy and other physical disabilities. (3) Supporting and funding the most advanced and highest quality cerebral palsy medical research. (4) Advocating and promoting awareness, understanding, and acceptance of persons with cerebral palsy.
1630 Lawrence Ave W, Toronto, ON M6L, Canada
Parents in Toto Autism Resource Center
Located in Pennsylvania, our center provides supports and products related to autism spectrum disorders and related conditions generally not available elsewhere in one location. Our vision is to create a comfortable, welcoming environment where parents, diagnosed individuals, families, and friends can gather socially, educationally, and spiritually without judgment or prejudice. Please consult our website for more information.
143 S. Main Street, Zelienople PA 16063
PKU Organization of Illinois
The understanding of the developments with PKU and coping with the issues of the diet are critical for our families. On a quarterly basis, we publish a newsletter, The PKU Press, which serves as a forum for the exchange of new information, ideas, recipes and encouragement. Additionally, the Organization sponsors PKU cooking schools to better enable families to offer more variety and flavor while complying with the diet. The PKU Organization of Illinois is committed to the support of appropriate research initiatives to better understand PKU and eventually find a cure. Research initiative such as the Maternal PKU Project and Gene Therapy projects are supported and followed by the Organization.
Palatine, IL 60078
Prader-willi Syndrome Association
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members.
8588 Potter Park Drive, Suite 500 Sarasota, FL 34238
Propionic Acidemia Foundation
The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.
1963 McCraren Rd. Highland Park, IL 60035
ResCare Premier Texas
ResCare Premier Texas is a unique group of interrelated treatment facilities that together form a comprehensive continuum of care. We offer a variety of programs and services to address the needs of individuals with brain injury and other neurological impairments. ResCare Premier Texas is a continuum of interrelated treatment programs dedicated to individuals with acquired brain injury and other neurological disorders. Our programs specialize in neurobehavioral rehabilitation, residential rehabilitation and long-term support services. Since 1978, ResCare Premier Texas has served over 1500 individuals with brain injury and other neurological disorders from across the United States, Canada and Guam.
Translational genomics research is a relatively new field employing innovative advances arising from the Human Genome Project and applying them to the development of diagnostics, prognostics and therapies for cancer, neurological disorders, diabetes and other complex diseases.
445 N. Fifth Street, Phoenix, AZ 85004
Rimland Services NFP
Since 1971 Rimland Services NFP has pioneered successful, community-based programs that support individuals with autism as they achieve their full human potential, living in the community of their choice to the maximum extent possible. Rimland has been at the forefront in lowering walls that separate individuals with autism. Over the years, Rimland has successfully established community living options for adults with autism in Des Plaines, Evanston, Highland Park, Maywood, and Mount Prospect.
1265 Hartrey Avenue, Evanston, IL 60202
Rocky Mountain MS Center
The mission of the Rocky Mountain MS Center is to improve the lives of people with Multiple Sclerosis (MS) and their families through care, support, education and research. We are a patient centered organization striving to change how we think about and treat MS. For our patients and their families we incorporate wellness, exercise, diet and stress management, and supportive services in addition to the most progressive medical care.
8845 Wagner Street Westminster, CO 80031
Santa Clara Valley Blind Center, Inc.
For more than 50 years, SCVBC has provided support to individuals facing the uncertainties, fears, and challenges related to uncorrectable vision loss. We are a community-based organization dedicated to increasing the confidence, independence, and quality of life of the blind and visually impaired. SCVBC tackles complex vision loss issues comprehensively through rehabilitative, educational, and recreational services that ensure the long-term independence and empowerment of our clients.
101 North Bascom Avenue San Jose, CA 95128
Started in 1995, Schizophrenia.com is a leading non-profit web community dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia.
Sensory Processing Disorder Resource Center
This is now one of the top online resources for parents, teachers, children, and other professionals who interact with children, about this often misunderstood and misdiagnosed NEUROLOGICAL DISORDER, otherwise known as a Sensory Processing Disorder.
Sensory Processing Disorder, SENSORIZE
Toys, Products, Strategies, and Advice for dealing with Sensory Processing and Sensory Integration Issues.
Smith-Magenis Syndrome, Parents and Researchers interested in- (PRISMS)
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS.
21800 Town Center Plaza, Suite #266A-633, Sterling, VA 20164
Society for The Blind
Society for the Blind serves thousands of blind and visually impaired people throughout the Sacramento area and surrounding counties. We are the only center in this region that trains blind and low vision people on Braille, life skills, computers and job skills. Our mission is to empower individuals who are blind or have low vision to live productively and independently by building confidence through training, tools and mentorship.
1238 S Street Sacramento, CA 95811
Southeastern Rett Syndrome Alliance
The Southeastern Rett Syndrome Alliance (SRSA) is a grassroots organization, established in January 2007, to provide a network of information and emotional support for families and caregivers of Rett Syndrome (RTT) children and adults; and to increase public awareness of Rett Syndrome. The southeastern location of the organization inspired the lineage to RTT families residing in the states of Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee. SRSA serves as an International Rett Syndrome Foundation regional representative, to provide direct support and advocacy at the local level. SRSA‘s purpose is to develop understanding and awareness of Rett Syndrome; to promote the general welfare of those with Rett Syndrome; to assist in indentifying persons with Rett Syndrome; to support families in coping with the disorder, and conduct activities aimed at prevention, treatment and eradication of Rett Syndrome.
7564 Windsong Dr Trussville AL 35173-1898
Southern Arizona Network for Down Syndrome
Southern Arizona Network for Down Syndrome seeks to inspire, educate and support individuals, families and communities living with Down syndrome through out Southern Arizona. We belive that every individual with Down syndrome should be given the opportunity to reach their highest potential and live fulfilling and productive lives within our community.
Tucson, AZ 85731
Southwestern Blind Rehabilitation Center
The mission of Blind Rehabilitation Service is to coordinate a healthcare service delivery system that provides a continuum of care for blinded veterans extending from their home environment to the local VA facility and to the appropriate rehabilitation setting. These services include adjustment to blindness counseling, patient and family education, benefits analysis, comprehensive residential inpatient training, outpatient rehabilitation services, the provision of assistive technology, and research.
3601 South Sixth Avenue Tucson, AZ 85723
Spina Bifida Association of America
The Spina Bifida Association of America is to promote the prevention of Spina Bifida and to enhance the lives of all affected. The association was founded in 1973 to address the specific needs of the Spina Bifida community and serves as the national rep of almost 60 chapters.
1600 Wilson Blvd, Suite 800 Arlington, VA 22209
Spina Bifida Association of Arizona
The Spina Bifida Assoc of Arizona serves people all over the state of Arizona. We provide programs such a Support Groups, Housing, Urinary Care Supplies, Lunch as Clinic, Holiday Parties, free bike events, welcome baby packets and soon to come a sleep over summer camp. SBAAZ’s mission is to promote the prevention of spina bifida abd enhance the lives of all affected. We do this through such programs as FSACT (Folic Acid and Spina Bifida Awarness Culinary Training), housing, free hand cycle events, support group, Welcome Baby program, Holiday Party, and so many more. Soon to come will be a sleep over Camp to open in 2011 for those with spina bifida in Arizona.
1001 East Fairmount Avenue Phoenix, Arizona 85014
St Jude Brain Injury Network
The St. Jude Brain Injury Network is a non-profit program that provides long-term planning and support services for adults 18 years and older living in Orange County who have experienced an external force traumatic brain injury (TBI). The network is grant-funded by the California State Department of Mental Health.
130 W. Bastanchury Rd. Fullerton, CA 92835
Stand Among Friends Center
Stand Among Friends is a 501(C)(3) non-profit organization that promotes opportunities for people with neurological disabilities to live a life without limits and experience the highest degree of independence and success in their communities. Stand Among Friends provides service and support through its comprehensive Web site, television programming, video resources and through the development of models and research design to improve quality of life daily.
777 Glades Road Bldg. NU84, Suite 120 Boca Raton, FL 33431
Talking About Curing Autism – TACA
Talk About Curing Autism (TACA) provides information, resources, and support to families affected by autism. For families who have just received the autism diagnosis, TACA aims to speed up the cycle time from the autism diagnosis to effective treatments. TACA helps to strengthen the autism community by connecting families and the professionals who can help them, allowing them to share stories and information to help people with autism be the best they can be.
2222 Martin St., Suite 140 Irvine, CA 92612
The Autism Project
The Autism Project provides support and training for educators and families who have children with Autism Spectrum Disorders. Social Skills groups for ages 4 through adults, help teach our children how to navigate the social world.
1516 Atwood Avenue Johnston, RI 02919
The Daniel Jordan Fiddle Foundation
The Daniel Jordan Fiddle Foundation is the national autism organization focused exclusively on adults living with Autism Spectrum Disorders(ASD). The mission is to develop and fund The Daniel Jordan Fiddle Foundation Signature Programs that address critical needs and gaps in services and supports for the diverse population of adults living with ASD.
The National Alliance on Mental Illness
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses.
3803 N. Fairfax Drive, Suite 100 Arlington, VA 22203
The National Down Syndrome Society
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.
666 Broadway, 8th Floor, New York, New York, 10012
Tucson Association for the Blind and Visually Imparied
SAAVI is a non-profit agency serving visually impaired adults in Southern Arizona since 1964. By promoting independence, SAAVI enhances the quality of life for those with vision loss through programs offering services, skills training and social and recreational opportunities.
3767 East Grant Road Tucson, AZ 85716
Turner Syndrome Foundation, Inc.
Turner syndrome affects 1 in 2000 females. We can help. The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop educational programs which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome. Toll-free hotline: 800-594-4585.
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730
UCP of Northeastern Pennsylvania
UCP of Northeastern Pennsylvania provides an array of services for children and adults with various disabilities. Although we have expertise in the field of cerebral palsy, over 75% of the people receiving our services have disabilities other than cerebral palsy.
425 Wyoming Avenue Scranton, PA 18503
United Cerebral Palsy
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.
1825 K Street NW Suite 600 Washington, DC 20006
United Cerebral Palsy Association Greater Chicagoland
The mission of United Cerebral Palsy is to advance the independence of people with disabilities, enrich their lives, provide support to their families, and advocate for their inclusion in every facet of community life.
3100 S Central Ave, Cicero, IL 60804
United Cerebral Palsy Association of Hawaii
UCPA of Hawaii is part of a nationwide network of approximately 153 state and local affiliates which provide services, conduct public and professional education programs and support research in cerebral palsy. The local UCPA has been providing services in the islands since 1959.
414 Kuwili Street, Suite 105 Honolulu, Hawaii 96817-5362
United Cerebral Palsy Associations of New Jersey
Cerebral Palsy of New Jersey is dedicated to changing lives and bringing independence to people with all types of disabilities. We believe in the innate potential in each person to achieve success. While you may see a person with a disability, Cerebral Palsy of New Jersey sees a citizen, a friend, a taxpayer, a voter, a lawyer, a parent, a child – a person with unlimited potential.
1005 Whitehead Road Extension, Suite 1, Ewing, New Jersey 08638
United Cerebral Palsy of Mobile
UCP of Mobile is dedicated to advancing the independence of people with disabilities. UCP offers a wide range of services for people of all ages, starting with one of our early intervention programs and continuing through adulthood with our supported employment program.
3058 Dauphin Square Connector Mobile, AL 3660
United Cerebral Palsy of Orange County
Founded in the early 1950s by parents and volunteers to serve the needs of children with cerebral palsy, UCP of Orange County now serves children with all types of developmental disabilities and provides vital support to families. Each year, we provide direct services to more than 3,800 people, with disabilities including cerebral palsy, autism, Down syndrome muscular dystrophy and other developmental disabilities. Our staff of highly trained professionals includes leaders in inclusion, early intervention, advocacy and community resources, providing services and materials in English, Spanish and Vietnamese.
980 Roosevelt, Suite 100 Irvine, CA 92620
United Supports for Autism
Dr. Brian Goldberg is a licensed psychologist and a board certified behavior analyst. He is the owner of United Supports for Autism, which consists of multiple professions. While United Supports for Autism specializes in autism spectrum disorders, the practice also provides services for individuals with other diagnoses, such as ADHD, oppositional defiant disorder, and anxiety disorders. United Supports for Autism also provides services for individuals who do not have a diagnosis, but exhibit problem behaviors (e.g., aggression, noncompliance, disruptions, tantrums, etc.) and/or developmental skill deficits (e.g., toileting, sleeping, feeding, self care, etc.).
283 Commack Road, Suite 205 Commack, NY 11725
US Autism & Asperger Association
The USAAA mission is to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing educational and family support through conferences/seminars, published and electronic mediums, and research.
12180 S. 300 E. #532 Draper, UT 84020-0532
Washington Department of Services for the Blind
The Washington State Department of Services for the Blind (DSB) is a state rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in accommodating or hiring workers with vision loss.
3411 S. Alaska Street Seattle, WA 98118
Williams Syndrome Association
The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. The WSA supports research into all facets of the syndrome, and the development of the most up to date educational materials regarding Williams syndrome.
570 Kirts Boulevard, Ste. 223 Troy, MI 48084-4156
Williams Syndrome Changing Lives Foundation
The Williams Syndrome Changing Lives Foundation is a non-profit foundation centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians, and therapists. Resource materials available for download as well as a bi-monthly newsletter. No membership fees.