In January, 2005, our two-and-a-half year old daughter was diagnosed with Spinal Muscular Atrophy (SMA). About one month later, I began writing about our rocky experience with her symptoms, our doctors, and her eventual diagnosis.
“My children BJ & Caytie are now 16-year-olds and were part of a set of quadruplets who were born 3 months premature. Their brothers Andrew and Daniel lived for 6 and 7 days. It is a pain in my soul that I have living reminders of every day.