http://www.fhfswla.org
Our mission is to provide information and referral, education and training, peer support and advocacy skills to individuals with disabilities and their families. Our vision is that individuals with disabilities and their families will be strong, effective, informed advocates for themselves and others.
Archives
Familial Dysautonomia Now
http://www.fdnow.org
What is FD NOW? Ann and Ken Slaw and other FD families and friends founded the FD NOW fund at Partnership for Cures, a 501c3, to raise funds to support research that will drive better treatments and cures for patients with FD in two years or less.
Evanston Citizens for Appropriate Special Education
http://evanstoncase.org
Evanston Citizens for Appropriate Special Education (CASE) is a community advocacy organization working to improve special education policies and programs in pre-school, elementary and high school.
EP Magazine
https://www.epmagazine.com/
EP Global Communications, Inc. and Exceptional Parent magazine add perspective on the recent FDA public notification concerning adverse events reported in children with cerebral palsy who have received treatment with Botulinum Toxin (BOTOX®) injections.
Empower Colorado
http://empowercolorado.org/
Empower Colorado is an organization created by families to support, educate, and provide resources for Advocacy for families. We define family as anyone who directly contributes to caring for children and youth who have, or are at risk for developing mental health disorders, also known as Brain Disorders. Children are not always diagnosed with a specific disorder but exhibit symptoms where they struggle with social, emotional, mental and/or behavioral challenges. Some of the common diagnoses our children have include: Bipolar Disorder, Major Depression, ADD/ADHD, Tourette’s Disorder, PDD Spectrum Disorder (Autism, Asperger’s Syndrome), Schizophrenia, Attachment Disorders (RAD), Fetal Alcohol Syndrome, PTSD and Trauma. Anxiety is one of the most common symptoms present in almost all of the diagnoses but in many cases it is also a disorder unto itself. Some of the common Anxiety Disorders seen in children include: Obsessive-Compulsive Disorder, Generalized Anxiety Disorder, Panic Disorder, Selective Mutism, Separation Anxiety Disorder and Phobic Disorders.
Designs for Change
http://www.designsforchange.org/sped.html
DFC’s Special Education Reform Program provides assistance to families, principals, teachers, Local School Councils, and social service agencies to assist them in creating appropriate educational programs for Chicago students with disabilities to ensure that students with disabilities are educated in the regular education program and master the regular education curriculum, consistent with the most current federal law (Individuals with Disabilities Education Act or IDEA) and with the Corey H. Settlement Agreements. The ABLE Coalition: Advocates Behind Legal Education DFC encourages parents of children with disabilities to take advantage of training opportunities and join a parent support group. A parent support group will provide needed emotional support and valuable feedback and information from other parents. You will also get a better idea of systemic issues and how they impact on other children with disabilities. Parent group meetings are a great place to compare strategies and share stories from the field!
Craig Hospital
http://www.craighospital.org/
Craig Hospital in Denver, Colorado is world renowned as a premier center for specialty rehabilitation and research for people with spinal cord injury and traumatic brain injury.
Countryside Association
https://greatnonprofits.org/org/countryside-association-for-people-with-disabilities-inc
The mission of Countryside Association for People with Disabilities is to advocate on behalf of persons with disabilities and their families and to support them in their efforts to live and work successfully in their chosen community. Countryside Association is a nonprofit organization located both in Palatine and Waukegan Illinois. The organization provides the spectrum of vocational services to individuals with developmental disabilities including job placement, sheltered employment, senior services and volunteer opportunities.
Children and Adults with Attention Deficit Disorder of Northern Illinois
http://www.meetup.com/CHADD-Northern-Illinois/
CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. This group is facilitated by Eric Tivers, LCSW, MSSW. Eric Tivers is a Licensed Clinical Social Worker, and a Certified School Social Worker in private practice. He specializes in working with individuals and families living with ADD, autism spectrum disorders, and other related disorders. We hold monthly support group meetings for anyone living with AD/HD and/or caregivers, spouses/partners, educators, professionals, etc. looking for information, education, and understanding. Meetings are the 3rd Monday of every month at 6:45pm in McHenry. (See meetup.com page for details) Meetings are Free.
CHADD of Nassau County (Children and Adults with Attention Deficit Disorders)
http://www.chadd.net/105
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt organization providing education, advocacy and support for individuals with AD/HD. We are proud to be one of the longest standing affiliates in New York. Our local Nassau County chapter was founded in 1989 in order to support and educate the families in our community who were experiencing frustration and a sense of isolation when dealing with issues concerning AD/HD.
CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder)
http://www.chadd.org/
CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others.
Central Florida Parent Center
https://www.parentcenterhub.org/find-your-center/
Our mission is to provide parents of children and young adults with all disabilities and special needs (ages 0-26) in central and northeast Florida with accurate information, interactive training, quality assistance, and empathetic support.
CASPAN: Chicago Asperger’s Adult Network
http://aspergers.meetup.com/213
Meet adults 18+ affected by Asperger’s and similar PDDs/NLDs for support, discussion and social activities.
California- Parents Helping Parents
http://www.php.com
Parents Helping Parents (PHP) is a family resource and service center for parents of children with special needs and the professionals who serve them.
Birth Defect Research for children
http://www.birthdefects.org
The National Birth Defect Registry is a research project designed through a collaboration of seven prominent scientists. The registry collects information on all categories of structural and functional birth defects as well as the health, genetic and environmental exposure histories of the mothers and fathers of these children.
Bend Work Activity Center
http://www.ofco.org/
The Opportunity Foundation is a non-profit organization with the mission of providing life improvement services to Central Oregonians with disabilities. With the Opportunity Foundation’s support, adults with disabilities in Deschutes, Crook and Jefferson counties work toward their individual goals for meaningful work, a comfortable home and the opportunity to be an active part of the community.
Autism Society of Wisconsin
http://www.asw4autism.org
The mission of the Autism Society of Wisconsin is to improve the lives of all affected by autism in Wisconsin.
Autism Society of Greater Orlando
http://www.asgo.org
The Autism Society of Greater Orlando is a not-for-profit organization that was set up by families for families. Our mission is is that all individuals within the autism spectrum will be provided a lifetime network of opportunities to become fully accepted, included, and actively participating members of our community, through family support, education, and advocacy, and public awareness.
Assistive Technology Resource Centers of Hawaii
http://www.atrc.org
Assistive Technology Resource Centers of Hawaii (ATRC) is a 501 (c)(3) non-profit organization committed to linking people with technology and empowering individuals through its use.
Arizona- Raising Special Kids
http://www.raisingspecialkids.org
Raising Special Kids is a non-profit organization serving families of children with disabilities and special health needs in Arizona. All programs and services are provided to families free of charge. At all ages and stages of a child’s development.
Anne Carlsen Center
https://annecarlsen.org/
The Anne Carlsen Center offers a rich tradition of empowering individuals with disabilities and their families. Our experienced staff provides compassion, training, services and supports in homes and communities across North Dakota.
American Self-Help Group Clearinghouse
https://developmentaldisabilities.networkofcare.org/lanterman-ca/services/agency?pid=americanselfhelpgroupclearinghouse_581_6_0#:~:text=The%20American%20Self%2DHelp%20Group,and%20other%20stressful%20life%20situations.
Online searchable database on all types of self-help support groups for disabilities, parenting, health, mental health, bereavement, addictions and more. Provides contact information for national self-help group headquarters, online, and one-of-a-kind groups, local self-help clearinghouses, and toll-free numbers for various specialty helplines.
About Special Kids
https://earlylearningin.org/about-special-kids/
Welcome to About Special Kids (formerly the Indiana Parent Information Network)! We have changed our name to more accurately reflect the fact that we are the place for families and professionals in Indiana to go to “ASK” questions about children with special needs and to access information and resources about a variety of topics such as health insurance, special education, community resources and medical homes.
Cancer- American Cancer Society
http://www.cancer.org/docroot/home/index.asp
Get help making treatment decisions, understanding the effects of treatment, finding treatment centers and doctors, coping with side effects, and talking with others.
Williams Syndrome Changing Lives Foundation
https://www.williams-syndrome.org/
The Williams Syndrome Changing Lives Foundation is a non-profit foundation centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians, and therapists. Resource materials available for download as well as a bi-monthly newsletter. No membership fees.
Williams Syndrome Association
http://www.williams-syndrome.org/
The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. The WSA supports research into all facets of the syndrome, and the development of the most up to date educational materials regarding Williams syndrome.
Washington Department of Services for the Blind
http://www.dsb.wa.gov/
The Washington State Department of Services for the Blind (DSB) is a state rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in accommodating or hiring workers with vision loss.
US Autism & Asperger Association
http://www.usautism.org/
The USAAA mission is to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing educational and family support through conferences/seminars, published and electronic mediums, and research.
United Supports for Autism
http://www.unitedsupportsforautism.com
Dr. Brian Goldberg is a licensed psychologist and a board certified behavior analyst. He is the owner of United Supports for Autism, which consists of multiple professions. While United Supports for Autism specializes in autism spectrum disorders, the practice also provides services for individuals with other diagnoses, such as ADHD, oppositional defiant disorder, and anxiety disorders. United Supports for Autism also provides services for individuals who do not have a diagnosis, but exhibit problem behaviors (e.g., aggression, noncompliance, disruptions, tantrums, etc.) and/or developmental skill deficits (e.g., toileting, sleeping, feeding, self care, etc.).
United Cerebral Palsy of Mobile
http://www.ucpmobile.org/
UCP of Mobile is dedicated to advancing the independence of people with disabilities. UCP offers a wide range of services for people of all ages, starting with one of our early intervention programs and continuing through adulthood with our supported employment program.
United Cerebral Palsy Association of Hawaii
http://www.ucpahi.org/
UCPA of Hawaii is part of a nationwide network of approximately 153 state and local affiliates which provide services, conduct public and professional education programs and support research in cerebral palsy. The local UCPA has been providing services in the islands since 1959.
United Cerebral Palsy Association Greater Chicagoland
http://www.ucpnet.org/
The mission of United Cerebral Palsy is to advance the independence of people with disabilities, enrich their lives, provide support to their families, and advocate for their inclusion in every facet of community life.
UCP of Northeastern Pennsylvania
http://www.ucpnepa.org
UCP of Northeastern Pennsylvania provides an array of services for children and adults with various disabilities. Although we have expertise in the field of cerebral palsy, over 75% of the people receiving our services have disabilities other than cerebral palsy.
Turner Syndrome Foundation, Inc.
http://TurnerSyndromeFoundation.org
Turner syndrome affects 1 in 2000 females. We can help. The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop educational programs which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome. Toll-free hotline: 800-594-4585.
Tucson Association for the Blind and Visually Imparied
http://www.saavi.us/
SAAVI is a non-profit agency serving visually impaired adults in Southern Arizona since 1964. By promoting independence, SAAVI enhances the quality of life for those with vision loss through programs offering services, skills training and social and recreational opportunities.
The National Down Syndrome Society
https://ndss.org/
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.
The National Alliance on Mental Illness
http://www.nami.org/
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses.
The Daniel Jordan Fiddle Foundation
http://www.djfiddlefoundation.org
The Daniel Jordan Fiddle Foundation is the national autism organization focused exclusively on adults living with Autism Spectrum Disorders(ASD). The mission is to develop and fund The Daniel Jordan Fiddle Foundation Signature Programs that address critical needs and gaps in services and supports for the diverse population of adults living with ASD.
The Autism Project
http://theautismproject.org
The Autism Project provides support and training for educators and families who have children with Autism Spectrum Disorders. Social Skills groups for ages 4 through adults, help teach our children how to navigate the social world.
Talking About Curing Autism – TACA
http://talkaboutcuringautism.org/
Talk About Curing Autism (TACA) provides information, resources, and support to families affected by autism. For families who have just received the autism diagnosis, TACA aims to speed up the cycle time from the autism diagnosis to effective treatments. TACA helps to strengthen the autism community by connecting families and the professionals who can help them, allowing them to share stories and information to help people with autism be the best they can be.
Stand Among Friends Center
http://www.standamongfriends.org
Stand Among Friends is a 501(C)(3) non-profit organization that promotes opportunities for people with neurological disabilities to live a life without limits and experience the highest degree of independence and success in their communities. Stand Among Friends provides service and support through its comprehensive Web site, television programming, video resources and through the development of models and research design to improve quality of life daily.
St Jude Brain Injury Network
http://www.tbioc.org/
The St. Jude Brain Injury Network is a non-profit program that provides long-term planning and support services for adults 18 years and older living in Orange County who have experienced an external force traumatic brain injury (TBI). The network is grant-funded by the California State Department of Mental Health.
Spina Bifida Association of America
http://spinabifidaassociation.org/
The Spina Bifida Association of America is to promote the prevention of Spina Bifida and to enhance the lives of all affected. The association was founded in 1973 to address the specific needs of the Spina Bifida community and serves as the national rep of almost 60 chapters.
Southern Arizona Network for Down Syndrome
http://www.sandsaz.org
Southern Arizona Network for Down Syndrome seeks to inspire, educate and support individuals, families and communities living with Down syndrome through out Southern Arizona. We belive that every individual with Down syndrome should be given the opportunity to reach their highest potential and live fulfilling and productive lives within our community.
Southeastern Rett Syndrome Alliance
https://www.serett.org/
The Southeastern Rett Syndrome Alliance (SRSA) is a grassroots organization, established in January 2007, to provide a network of information and emotional support for families and caregivers of Rett Syndrome (RTT) children and adults; and to increase public awareness of Rett Syndrome. The southeastern location of the organization inspired the lineage to RTT families residing in the states of Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee. SRSA serves as an International Rett Syndrome Foundation regional representative, to provide direct support and advocacy at the local level. SRSA‘s purpose is to develop understanding and awareness of Rett Syndrome; to promote the general welfare of those with Rett Syndrome; to assist in indentifying persons with Rett Syndrome; to support families in coping with the disorder, and conduct activities aimed at prevention, treatment and eradication of Rett Syndrome.
Society for The Blind
http://www.societyfortheblind.org/
Society for the Blind serves thousands of blind and visually impaired people throughout the Sacramento area and surrounding counties. We are the only center in this region that trains blind and low vision people on Braille, life skills, computers and job skills. Our mission is to empower individuals who are blind or have low vision to live productively and independently by building confidence through training, tools and mentorship.
Smith-Magenis Syndrome, Parents and Researchers interested in- (PRISMS)
http://www.prisms.org/
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS.
Sensory Processing Disorder, SENSORIZE
https://familydoctor.org/condition/sensory-processing-disorder-spd/
Toys, Products, Strategies, and Advice for dealing with Sensory Processing and Sensory Integration Issues.
Sensory Processing Disorder Resource Center
http://www.sensory-processing-disorder.com/
This is now one of the top online resources for parents, teachers, children, and other professionals who interact with children, about this often misunderstood and misdiagnosed NEUROLOGICAL DISORDER, otherwise known as a Sensory Processing Disorder.
Schizophrenia.com
http://www.schizophrenia.com
Started in 1995, Schizophrenia.com is a leading non-profit web community dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia.