Mesothelioma Guide

https://www.mesotheliomaguide.com
Mesothelioma is a rare cancer caused by exposure to asbestos particles and affects the lining of the lungs, heart, and abdomen. The average latency period that mesothelioma takes to develop is anywhere from 20-40 years. Since this period is so long, mesothelioma usually affects older adults in their 60’s and 70’s. We specialize in connecting patients with doctors and treatment options that are best suited for them. Our information services and resources are 100% free to patients and family members.

Brain Injury Association of Illinois

www.biail.org
The Brain Injury Association of Illinois provides programs and services to children, teens and adults who have sustained an acquired brain injury, the families/caregivers, and professionals working with those individuals, as well as an injury prevention program to prevent the preventable injury. The BIA of IL provides an Information & Resource Center, Summer Camps for children and adults, support groups, educational programs, and annual educational conference.

 

Eastern Blind Rehabilitation Center

http://www.rehab.va.gov/blindrehab/
The mission of Blind Rehabilitation Service is to coordinate a healthcare service delivery system that provides a continuum of care for blinded veterans extending from their home environment to the local VA facility and to the appropriate rehabilitation setting. These services include adjustment to blindness counseling, patient and family education, benefits analysis, comprehensive residential inpatient training, outpatient rehabilitation services, the provision of assistive technology, and research.

Citilink Fort Wayne

http://www.fwcitilink.com
Provides transportation to Fort Wayne City limits. Hours of operation are 5:45am-9:30pm Monday-Friday. Saturday hours are 7:30am-6:00pm. Also provides paratransit services during the same hours for those who are ADA eligible and certified.

Williams Syndrome Changing Lives Foundation

http://www.wschanginglives.org/
The Williams Syndrome Changing Lives Foundation is a non-profit foundation centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians, and therapists. Resource materials available for download as well as a bi-monthly newsletter. No membership fees.

Williams Syndrome Association

http://www.williams-syndrome.org/
The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. The WSA supports research into all facets of the syndrome, and the development of the most up to date educational materials regarding Williams syndrome.

Washington Department of Services for the Blind

http://www.dsb.wa.gov/
The Washington State Department of Services for the Blind (DSB) is a state rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in accommodating or hiring workers with vision loss.

US Autism & Asperger Association

http://www.usautism.org/
The USAAA mission is to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing educational and family support through conferences/seminars, published and electronic mediums, and research.

United Supports for Autism

http://www.unitedsupportsforautism.com
Dr. Brian Goldberg is a licensed psychologist and a board certified behavior analyst. He is the owner of United Supports for Autism, which consists of multiple professions. While United Supports for Autism specializes in autism spectrum disorders, the practice also provides services for individuals with other diagnoses, such as ADHD, oppositional defiant disorder, and anxiety disorders. United Supports for Autism also provides services for individuals who do not have a diagnosis, but exhibit problem behaviors (e.g., aggression, noncompliance, disruptions, tantrums, etc.) and/or developmental skill deficits (e.g., toileting, sleeping, feeding, self care, etc.).

United Cerebral Palsy of Mobile

http://www.ucpmobile.org/
UCP of Mobile is dedicated to advancing the independence of people with disabilities. UCP offers a wide range of services for people of all ages, starting with one of our early intervention programs and continuing through adulthood with our supported employment program.

United Cerebral Palsy Association of Hawaii

http://www.ucpahi.org/
UCPA of Hawaii is part of a nationwide network of approximately 153 state and local affiliates which provide services, conduct public and professional education programs and support research in cerebral palsy. The local UCPA has been providing services in the islands since 1959.

UCP of Northeastern Pennsylvania

http://www.ucpnepa.org
UCP of Northeastern Pennsylvania provides an array of services for children and adults with various disabilities. Although we have expertise in the field of cerebral palsy, over 75% of the people receiving our services have disabilities other than cerebral palsy.

Turner Syndrome Foundation, Inc.

http://TurnerSyndromeFoundation.org
Turner syndrome affects 1 in 2000 females. We can help. The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop educational programs which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome. Toll-free hotline: 800-594-4585.

The National Down Syndrome Society

http://www1.ndss.org/
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.

The National Alliance on Mental Illness

http://www.nami.org/
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses.

The Daniel Jordan Fiddle Foundation

http://www.djfiddlefoundation.org
The Daniel Jordan Fiddle Foundation is the national autism organization focused exclusively on adults living with Autism Spectrum Disorders(ASD). The mission is to develop and fund The Daniel Jordan Fiddle Foundation Signature Programs that address critical needs and gaps in services and supports for the diverse population of adults living with ASD.

The Autism Project

http://theautismproject.org
The Autism Project provides support and training for educators and families who have children with Autism Spectrum Disorders. Social Skills groups for ages 4 through adults, help teach our children how to navigate the social world.

Talking About Curing Autism – TACA

http://talkaboutcuringautism.org/
Talk About Curing Autism (TACA) provides information, resources, and support to families affected by autism. For families who have just received the autism diagnosis, TACA aims to speed up the cycle time from the autism diagnosis to effective treatments. TACA helps to strengthen the autism community by connecting families and the professionals who can help them, allowing them to share stories and information to help people with autism be the best they can be.

Stand Among Friends Center

http://www.standamongfriends.org
Stand Among Friends is a 501(C)(3) non-profit organization that promotes opportunities for people with neurological disabilities to live a life without limits and experience the highest degree of independence and success in their communities. Stand Among Friends provides service and support through its comprehensive Web site, television programming, video resources and through the development of models and research design to improve quality of life daily.

St Jude Brain Injury Network

http://www.tbioc.org/
The St. Jude Brain Injury Network is a non-profit program that provides long-term planning and support services for adults 18 years and older living in Orange County who have experienced an external force traumatic brain injury (TBI). The network is grant-funded by the California State Department of Mental Health.

Spina Bifida Association of America

http://spinabifidaassociation.org/
The Spina Bifida Association of America is to promote the prevention of Spina Bifida and to enhance the lives of all affected. The association was founded in 1973 to address the specific needs of the Spina Bifida community and serves as the national rep of almost 60 chapters.

Southern Arizona Network for Down Syndrome

http://www.sandsaz.org
Southern Arizona Network for Down Syndrome seeks to inspire, educate and support individuals, families and communities living with Down syndrome through out Southern Arizona. We belive that every individual with Down syndrome should be given the opportunity to reach their highest potential and live fulfilling and productive lives within our community.

Southeastern Rett Syndrome Alliance

http://www.serett.org
The Southeastern Rett Syndrome Alliance (SRSA) is a grassroots organization, established in January 2007, to provide a network of information and emotional support for families and caregivers of Rett Syndrome (RTT) children and adults; and to increase public awareness of Rett Syndrome. The southeastern location of the organization inspired the lineage to RTT families residing in the states of Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee. SRSA serves as an International Rett Syndrome Foundation regional representative, to provide direct support and advocacy at the local level. SRSA‘s purpose is to develop understanding and awareness of Rett Syndrome; to promote the general welfare of those with Rett Syndrome; to assist in indentifying persons with Rett Syndrome; to support families in coping with the disorder, and conduct activities aimed at prevention, treatment and eradication of Rett Syndrome.

Society for The Blind

http://www.societyfortheblind.org/
Society for the Blind serves thousands of blind and visually impaired people throughout the Sacramento area and surrounding counties. We are the only center in this region that trains blind and low vision people on Braille, life skills, computers and job skills. Our mission is to empower individuals who are blind or have low vision to live productively and independently by building confidence through training, tools and mentorship.

Schizophrenia.com

http://www.schizophrenia.com
Started in 1995, Schizophrenia.com is a leading non-profit web community dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia.

Rocky Mountain MS Center

http://www.mscenter.org
The mission of the Rocky Mountain MS Center is to improve the lives of people with Multiple Sclerosis (MS) and their families through care, support, education and research. We are a patient centered organization striving to change how we think about and treat MS. For our patients and their families we incorporate wellness, exercise, diet and stress management, and supportive services in addition to the most progressive medical care.

Resource Center

http://www.tgen.org
Translational genomics research is a relatively new field employing innovative advances arising from the Human Genome Project and applying them to the development of diagnostics, prognostics and therapies for cancer, neurological disorders, diabetes and other complex diseases.

Propionic Acidemia Foundation

http://www.pafoundation.com
The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Prader-willi Syndrome Association

http://www.pwsausa.org/
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members.

PKU Organization of Illinois

http://www.pkuil.org
The understanding of the developments with PKU and coping with the issues of the diet are critical for our families. On a quarterly basis, we publish a newsletter, The PKU Press, which serves as a forum for the exchange of new information, ideas, recipes and encouragement. Additionally, the Organization sponsors PKU cooking schools to better enable families to offer more variety and flavor while complying with the diet. The PKU Organization of Illinois is committed to the support of appropriate research initiatives to better understand PKU and eventually find a cure. Research initiative such as the Maternal PKU Project and Gene Therapy projects are supported and followed by the Organization.

Parents in Toto Autism Resource Center

http://www.parentsintoto.org
Located in Pennsylvania, our center provides supports and products related to autism spectrum disorders and related conditions generally not available elsewhere in one location. Our vision is to create a comfortable, welcoming environment where parents, diagnosed individuals, families, and friends can gather socially, educationally, and spiritually without judgment or prejudice. Please consult our website for more information.

Ontario Federation for Cerebral Palsy

http://www.ofcp.ca
Ontario Federation for Cerebral Palsy is a non-profit, charitable organization which strives to address the changing needs of people in Ontario with cerebral palsy by way of the following core activities. (1) Assisting people with cerebral palsy and their families with education, funding for equipment, planning for the future, and accessing community services. (2) Funding assistance for Member Groups who provide services to assist people with cerebral palsy and other physical disabilities. (3) Supporting and funding the most advanced and highest quality cerebral palsy medical research. (4) Advocating and promoting awareness, understanding, and acceptance of persons with cerebral palsy.

National Resource Center on ADHD

http://www.help4adhd.org
The National Resource Center on AD/HD: A Program of CHADD is the nation’s clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD). Funded through a cooperative agreement with the Centers for Disease Control and Prevention, the NRC provides information on this disorder which affects how millions of children and adults function on a daily basis. The NRC was created to meet the information needs of professionals and the general public.

National Organization for Disorders of the Corpus Callosum

http://www.nodcc.org
The NODCC is a nonprofit organization established in 2002 by professionals, parents and individuals affected by a disorder of the corpus callosum. Our mission is to enhance the quality of life and promote opportunities for individuals affected by the disorder. We work to raise the profile, understanding and acceptance of these disorders through education, advocacy and networking. We disseminate information and newsletters, host family conferences and facilitate family networking through our family partnership programs.

National Institute of Arthritis & Musculoskeltal & Skin Diseases

http://www.niams.nih.gov
The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.

National Aphasia Association

http://www.aphasia.org/
The NAA’s mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment.

Muscular Dystophy Association

http://mda.org/
MDA is the world’s leading nonprofit health organization sponsoring research seeking the causes of and effective treatments for neuromuscular diseases. MDA research grants currently are supporting more than 250 projects worldwide.