Brain Injury Association of Illinois

www.biail.org
The Brain Injury Association of Illinois provides programs and services to children, teens and adults who have sustained an acquired brain injury, the families/caregivers, and professionals working with those individuals, as well as an injury prevention program to prevent the preventable injury. The BIA of IL provides an Information & Resource Center, Summer Camps for children and adults, support groups, educational programs, and annual educational conference.

 

Zacharias Center

http://www.zcenter.org
Zacharias Sexual Abuse Center provides 24-hour crisis intervention, counseling services and advocacy support for victims and their loved ones, of sexual assault, abuse and rape. The Center also offers educational prevention and awareness programs for Northeastern Illinois communities.

Autism Society of America

http://www.autism-society.org/
The Autism Society was founded in 1965 by Bernard Rimland, Ph.D. His book,Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, was written in late 1964 and was one of the first of its kind. In 1968, Ruth Sullivan, Ph.D., became the organization’s first elected president. Over the last 40 years, the Society has grown from a handful of parents into the leading source of information, research, reference and support on the autism spectrum. The Autism Society is the oldest and largest grassroots organization within the autism community.

Walk Right In Ministries

http://www.walkrightin.org
Walk Right In Ministries equips people to connect and grow in Christ-centered communities while discovering adventure in life’s challenges. We have a special passion to encourage caregivers by helping them plug into relationships and resources that keep them growing with others and developing intimacy with Christ. We are also a Ministry Affiliate of Joni and Friends International, dedicated to enhancing disability awareness and ministry worldwide.

The Parent Care Solution

http://www.parentcaresolution.com
How do you care for your aging parents without financially or emotionally destroying your family? Fortunately there is a solution. The Parent Care Solutionª, can help today’s families prepare for tomorrow, preserving family wealth and even more important, preserving family relationships. The Parent Care Solution is a new tool for today. It is a proactive, caring process involving parents and their adult children specifically created to initiate this vital dialog and facilitate communication. Parent Care Specialistsª work with all family members in unison to develop and implement a total plan to strategically, lovingly solve the problem of caring for aging parents without financially or emotionally destroying the family. The Parent Care Solution helps preserve wealth and family relationships. It is an innovative solution to a serious problem. It effectively defuses the family relationship time bomb allowing you to leave… A Legacy of love.

Tennessee Adult Brothers and Sisters

http://kc.vanderbilt.edu/kennedy/community/adultsiblings.html
Through the Kennedy Center at Vanderbilt University in Nashville, TABS is a resource for adult brothers and sisters of those with Special Needs. We are focused on identifying the concerns and issues for this unique group of individuals and on providing resources to address those questions. As parents age, siblings often become more involved in care and planning and have both a desire and need to understand what’s involved and what resources are available. -Join TABS to stay informed about activities related to issues that affect adult brothers and sisters -Meet other siblings in Tennessee.

Spina Bifida Association of Kentucky

http://www.sbak.org
The Spina Bifida Association of Kentucky (SBAK) began as a grassroots effort by parents and professionals concerned and affected by spina bifida. Since its beginning in 1982, the SBAK has offered services free of charge. Spina Bifida Association of Kentucky (SBAK) is a non-profit organization classified as a 501c3 and the Federal Tax Exempt number is 31-1081176. SBAK is a state chapter of the national organization Spina Bifida Association. www.sbaa.org Our Mission is to promote the prevention of spina bifida and to enhance the lives of all affected. We provide services for children with spina bifida, their families and adults with spina bifida.

Spina Bifida Association of Greater New England

http://sbagreaterne.org/
The Spina Bifida Association of Massachusetts is dedicated to helping individuals with spina bifida in the Bay State achieve their maximum potential. A member of the Spina Bifida Association of America, the sbaMass was founded in 1973 to promote the prevention of spina bifida and to enhance the lives of all affected by it.

South Dakota Parent Connection

http://www.sdparent.org
South Dakota Parent Connection, Inc., is a Parent Training and Information Center. We are a non-profit organization formed by parents, educators, and services personnel to provide information and training to parents of children with disabilities or special health care needs throughout the state of South Dakota.

Queens Special Education Parent Center (QSEPC)

http://www.uwsofny.org/info_page.php?pageid=11
The Mission of UWS/QSEPC is to promote in the community and school system attitudes and practices that are inclusive to persons with disabilities, who are culturally and linguistically responsive to diversity. Ensuring that parents are knowledgeable of their rights and responsibilities under the Individual with Disability Education Act “(IDEA”) and other statues and regulations.

Parents Reaching Out

http://www.parentsreachingout.org
Parents Reaching Out is a network of programs woven together to meet the ever changing needs of New Mexico families. We offer workshops and materials designed for families. We provide opportunities for connecting with other parents and resources in communities across our state. Our mission guides what we do to enhance outcomes for children and their families and build strong partnerships with the systems that touch their lives.

Parent to Parent of Virginia

https://ptpofva.wordpress.com/
Parent to Parent contact can help families regain their sense of strength, of purpose and of independence. Through its network of volunteers, and all of the staff of Parent to Parent of Virginia have a family member with disabilities and/or have a college degree in the field of disabilities.

Parent to Parent of New York State

http://www.parenttoparentnys.org
Parent to Parent of NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs. There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs.

Parent to Parent of New Hampshire

http://www.p2pnh.org
Learning that your child has special medical needs or a disability can be a traumatic experience. As a parent you may have questions and concerns about dealing with your child’s needs and your own feelings. You are not alone. We have been there.

Parent to Parent of Maine

http://www.mpf.org
The Maine Parent Federation, Inc. is a statewide private non-profit organization that provides information, advocacy, education, and training to parents and professionals to benefit all children. We promote individual aspirations and community inclusion for people with disabilities. In existence since 1984, MPF is physically located in Augusta Maine, but assistance is available on a statewide basis.

Parent to Parent of Connecticut

http://www.pathct.org
PATH was formed in 1986 as an information and support network of families who have experienced a difficult pregnancy, premature birth, the loss of a young child or who have a child with medical needs, developmental delays and/or disabilities.

Parent to Parent of Colorado

http://www.p2p-co.org
We are a non-profit organization committed to quality Parent to Parent support across Colorado. We offer encouragement to each other on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking support with a support parent.

Pacific Northwest Angelman Syndrome Foundation

http://www.pnwasf.org
Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing public awareness of Angelman Syndrome (AS) and serving as a resource and source of support for individuals with AS and their families in the states of Washington, Oregon and Alaska. The organization is comprised of elected officers and directors, who serve on a strictly volunteer basis, and the membership is open to interested individuals, families and professionals. PNWASF is associated with the national organization, Angelman Syndrome Foundation (ASF) and has contacts with various other international AS organizations.

Ohio Comission of Rehabilitation Agency

http://www.mih.ohio.gov/
The Commission is interested in funding projects which are innovative, culturally sensitive and specific in their approach toward reduction of the incidence and severity of those diseases or conditions which are responsible for excess morbidity and mortality in minority populations.

Noble

http://www.mynoblelife.org
Founded in 1953, Noble expands opportunities and enhances the quality of life for people with disabilities and their families through individualized services. We serve approximately 1,600 children, adults and families in Central and Eastern Indiana annually.

New Jersey Statewide Parent to Parent

http://www.spannj.org/support
SPAN provides support to parents/caregivers through: Offering emotional support and information to parents through a bilingual, multi-racial staff of parents of children with and without disabilities.Acting as a valuable resource to families, with targeted support to underserved families in Abbott districts and rural communities. Offering assistance in learning the necessary skills to help parents face the challenges of raising their child. Building a statewide network of parents supporting families of children with developmental delays, disabilities, and special health needs. Training parents of children with disabilities to help other parents.

National Family Caregivers Association

http://www.thefamilycaregiver.org
America’s family caregivers are family, friends, partners, and neighbors. To better understand the experience and the meaning of being a family caregiver go to The National Family Caregiver Story Project. The NFCA Story Project is a collection of first-person accounts by family caregivers. It is the gateway to becoming part of a growing group of family caregivers who have reached out to share their thoughts, feelings and find solace in the words of others.

Minnesota Pacer Center

http://www.pacer.org/
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

Idaho Parent to Parent

http://www.familiestogether.org
Families Together is a nonprofit organization that believes family involvement and support are essential for individuals with disabilities to reach their potential and maintain a life that is secure and meaningful.

Hand In Hand Family Support

http://www.hihfs.org/
Our Purpose- Hand in Hand, Family Support helps families with…….Providing parent training, Meaningful parents involvement. Better communication between families and schools. Connecting families to TN Division of Special Education’s Regional Resource Center, Accessing State and National resources, Developing Special Education Family Advisory Committees, Identifying local needs and developing action plans

Fragile X Society of Phoenix Arizona

http://www.fragilex.org/
The Fragile X Society of Arizona is represented by Cheryl Fisher who has a daughter with fragile X syndrome. She is a strong advocate and has successfully lobbied at the state and federal levels of government to improve funding for children with disabilities and for fragile X research. In an effort to raise awareness of fragile X in the local community, group members have participated in various programs including the Physician Residency Training Program and Pre-Service Teaching Program offered by Raising Special Kids.

Fragile X Resource Group of The Twin Cites in Minnetsota

http://www.fragilex.org/
The Twin Cities Fragile X Resource Group is a group of Parents of children with Fragile X, their siblings, extended Families and their friends that provide support and information to each other. We are in the beginning stages but we are a wonderful group that is committed to raise awareness about the Fragile X Syndrome.

Fragile X Resource Group of South Florida

http://www.fragilex.org/community/community-support-network/southeast/central-florida-fragile-x/
The South Florida Fragile X Resource Group provides resources and support for families and professionals who work with children and adults with Fragile X syndrome in Broward, Miami-Dade, and Palm Beach counties. The group was begun in 2000 as part of Conquer Fragile X Foundation and since 2004 has been a shared resource of both National Fragile X Foundation and Conquer Fragile X Foundation.

Fragile X Resource Group of New Hampshire

http://www.fragilex.org/
The New Hampshire Fragile X Resource Group is devoted to providing information and support for families and friends of individuals with Fragile X syndrome. We strive to increase awareness of Fragile X within the community by advancing the education of physicians, other professionals, and the general public. We seek to increase identification, support progress in research, and find a cure for Fragile X syndrome.

Fragile X Resource Group of Maryland

http://www.mdfragilex.org/
The Maryland Fragile X Resource Group is a community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X. The group was founded in August of 1999 and currently supports 80 families. We welcome all who share this common interest and hope that you find the information presented on this site beneficial.

Fragile X Resource Group of Maine

http://www.fragilex.org/
The Maine Fragile X Resource Group is dedicated to providing educational and emotional support for those affected by Fragile X, promoting public and professional awareness, and supporting research toward improved treatments and a cure for Fragile X Syndrome.

Fragile X Resource Center of Missouri

http://www.fragilex.org/community/community-support-network/southwest/fragile-x-resource-center-of-missouri/
The Fragile X Resource Center of Missouri provides support and information to individuals with FXS and their families. The Center offers annual workshops for teachers, therapists and parents. The Center also sponsors fundraisers that support research to understand FXS and find a cure, and that develop educational methods to enhance the abilities of persons with FXS. The Center is a not-for-profit organization currently run by volunteer parents of children with Fragile X. Our center hosts support group meetings throughout the year.

Fragile X Association of Southern California

http://www.fraxsocal.org/
Our organization was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome.

Fragile X Association of Northern California

http://www.fragilex.org/
The Northern California Fragile X Association of California (NOCFXA) was formed by parents to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals. We also provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and to support scientific research on Fragile X Syndrome.

Fragile X Association of Georgia

http://www.fragilex.org/community/community-support-network/southeast/greater-atlanta-fragile-x/
The Fragile X Association of Georgia was formed in 1992 by Gail Heyman and Janet Schatten (parents) to provide resources and support for families and professionals who work with children and adults with fragile X syndrome. Working closely with research scientists from Emory University, Department of Human Genetics, the association sponsors a resource center, holds meetings for affected families, friends, teachers, and other professionals, and has established a Parents’ Network to provide support within the fragile X community.