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Abilities Expos
http://www.abilitiesexpo.com
Abilities Expos have seved the Community of people with a disability since 1979. In 2016 events will be held in NY Metro (4/29-5/1), Chicago (6/24-6/26), Houston (8/5-8/7), Boston (9/16-9/18) Bay Area (11/18-11/20), DC Metro (12/2-12/4) and Los Angeles (3/24/17-3/26/17).
16501 Ventura Blvd., Suite 510 Encino, CA 91436
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Ability First
http://www.abilityfirst.org/
AbilityFirst provides programs and services for children and adults with disabilities. Established in 1926 as the Cripples Children’s Society of Southern California, our mission is to help people with disabilities realize their full potential throughout their lives.
1300 E. Green Street, Pasadena, CA 91106
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About Special Kids
http://www.aboutspecialkids.org/
Welcome to About Special Kids (formerly the Indiana Parent Information Network)! We have changed our name to more accurately reflect the fact that we are the place for families and professionals in Indiana to go to “ASK” questions about children with special needs and to access information and resources about a variety of topics such as health insurance, special education, community resources and medical homes.
7172 GRAHAM ROAD SUITE 100 INDIANAPOLIS, IN 46250
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accessABILITY Center for Independent Living, Inc.
http://www.abilityindiana.org
Our mission is to support all people with any type of disability and age to live more independently in the setting of their choice, improve the overall quality of life and remove community barriers to inclusion. Since 1987, we have assisted over 15,000 people with disabilities in Central Indiana.
5302 East Washington Street Indianapolis, IN 46219
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Acoustic Neuroma Association
http://www.anausa.org
The mission of ANA is to inform, educate and provide national and local support networks for those affected by acoustic neuromas, and to be an essential resource for health care professionals who treat acoustic neuroma patients.
600 Peachtree Pkwy. Suite 108 Cumming, GA 30041
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Adrenal Diseases Foundation
http://www.nadf.us
Our Mission The National Adrenal Diseases Foundation is a 501(c)(3) non-profit organization dedicated to providing support, information and education to individuals having Addison’s disease as well as other diseases of the adrenal glands.
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Adult Growth Hormone Deficiency
http://www.magicfoundation.org
Is your child growing normally? If your child does not have a diagnosed syndrome or confirmed growth hormone deficiency, start researching by clicking here or read the information below. We are Parents who have been “there”. We fought to find answers for our children’s lack of normal growth because we were concerned about their health. And because our children were “affected” we are passionate about getting information “out there” for other parents. Growth hormone and all growth disorders are a reflection of overall health.
6645 W. North Avenue Oak Park, Illinois 60302
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Alstrom Syndrome International
http://www.alstrom.org/
To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome.
14 Whitney Farm Road Mount Desert, Maine 04660
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American Association on Intellectual and Developmental Disabilities
http://www.aamr.org
THE AAIDD is the professional association run by and for professionals who support people with intellectual and developmental disabilities.
501 3rd Street, NW Suite 200, Washington, DC 20001
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American Foundation for the Blind-West
http://www.afb.org/
The American Foundation for the Blind (AFB) is a national nonprofit that expands possibilities for people with vision loss. AFB’s priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources.
2 Penn Plaza, Suite 1102 New York, NY 10121
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American Parkinson Disease Association (APDA)
http://www.apdaparkinson.org
APDA provides education, support, information, and referrals to people with Parkinson’s disease, their family members, friends, and healthcare providers, while at the same time raising money for scientific research. APDA is known as the largest grassroots PD organization and has a network of centers, chapters, and support groups throughout the country. APDA also operates two Centers dedicated to serving special populations: Veterans and those with young onset Parkinson’s disease.
135 Parkinson Avenue Staten Island, NY 10305
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American Self-Help Group Clearinghouse
http://www.php.com/american-self-help-group-clearinghouse
Online searchable database on all types of self-help support groups for disabilities, parenting, health, mental health, bereavement, addictions and more. Provides contact information for national self-help group headquarters, online, and one-of-a-kind groups, local self-help clearinghouses, and toll-free numbers for various specialty helplines.
400 Parkmoor Avenue Suite 100 San Jose, CA 95126
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Angelman Syndrome Foundation
http://www.angelman.org/
The Angelman Syndrome Foundation is a national organization of families, caregivers and professionals who care about those with Angelman Syndrome. It is a member organization of the International Angelman Syndrome Organization (IASO). As described in our by-laws, ASF’s Mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families, and other concerned parties.
75 Executive Drive, Suite 327 Aurora, IL 60504
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Anne Carlsen Center
http://www.annecenter.org
The Anne Carlsen Center offers a rich tradition of empowering individuals with disabilities and their families. Our experienced staff provides compassion, training, services and supports in homes and communities across North Dakota.
Jamestown, ND 58402
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Any Baby Can of San Antonio
http://www.anybabycansa.org/
Provide support, resources and education through Case Managment to families raising a child with a chronic illness, developmental disability or health risk, that reside in Bexar County or the 18 surrounding counties. Any Baby Can also has additional programs to support the entire family, including Prescription Assistance, Sibling Support, Any Body Can Health and Wellness Program, Center for Infant and Child Loss and Reaching Families Facing Autism.
217 Howard Street San Antonio, TX 78212
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Apert Syndrome
http://www.apert.org/
Internet safe haven, dedicated to the strength and determination of all of the people with crainiofacial differences and their families.
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Applied Behavioral Services
http://www.appliedbehavioralservices.com/
Welcome to Applied Behavioral Services! ABS is an educational placement program specializing in serving children and adolescents with Autism Spectrum Disorder as well as other cognitive and developmental delays. We are an Autism Scholarship Provider as well as a John Peterson Scholarship provider with the Ohio Department of Education and are proud to offer small classroom ratios, highly individualized curriculums, and behavioral management programs all overseen by one of our highly trained BCaBA’s or BCBA’s. Applied Behavioral Services has been serving children for the past 15 years with over 25 years of collective experience with children with special needs. Our programs and classrooms are very individualized based upon the assessment and needs of the student. A student may begin our program in a 1-1 or 1-2 setting and then move to our Step-UP Programs where social skills, academics and classroom routine are stressed as a priority. Applied Behavioral Services is the largest as well as the number one private educational placement choice among our families with in the greater Cincinnati area and Dayton area. Contact us for a tour or more information about all of our programs, class placements or therapies for your child today!
2570 Technical Drive Miamisburg, OH 45342
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Apraxia- Kids
http://www.apraxia-kids.org/
The national nonprofit organization representing the needs and interests of children and families affected by apraxia. We hope that you will want to learn more about us and join our efforts.
416 Lincoln Avenue 2nd Fl., Pittsburgh, PA 15209
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Arc of Chester County
http://arcofchestercounty.org
The mission of The Arc of Chester County is to advocate, educate and provide services to empower individuals with disabilities and their families to enhance the quality of their lives. The Arc offers programs and services in the following areas: early intervention, employment, advocacy, life skills training, community habilitation, camps, housing, transportation, autism training and support and housing options.
900 Lawrence Drive West Chester, PA 19380
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Arc of Illinois
https://www.thearcofil.org/
The Arc of Illinois truly believes that we are all people first and because of that, regardless of any developmental or intellectual differences, everyone deserves the same rights and opportunities. In order to do this we regularly host events that bring in family members, self advocates, and professionals in the field to educate them on the latest and best practices. The Arc of Illinois also provides updates on a daily basis on all issues involving individuals with intellectual and developmental disabilities. In addition to this, The Arc of Illinois has many different programs that are there to provide a plethora of resources to help each family member, advocate, and professional with their questions.
2200 South Main Street Suite 203 Lombard, IL 60148
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Arizona Center for the Blind and Visually Impaired
http://www.acbvi.org/
Arizona Center for the Blind and Visually Impaired (ACBVI) has been providing services for individuals since 1947. ACBVI is committed to “enhancing the quality of life for people who are blind or otherwise visually impaired.” Our services are available to adults who are legally blind or visually impaired as well as those who have a degenerative eye condition which may eventually become a visual impairment. These services are offered separately or concurrently according to the individual needs of the qualifying client.
3100 East Roosevelt St. Phoenix, AZ 85008
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Arizona Industries for the Blind
https://www.azifb.com
Arizona Industries for the Blind was established in 1952 to provide employment and training opportunities for Arizonans who are legally blind. Most individuals of working age who are legally blind can compete successfully for good jobs if they’re given the opportunity to develop skills and increase their self-confidence.
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Arizona- Raising Special Kids
http://www.raisingspecialkids.org
Raising Special Kids is a non-profit organization serving families of children with disabilities and special health needs in Arizona. All programs and services are provided to families free of charge. At all ages and stages of a child’s development.
5025 E. Washington St. #204 Phoenix, AZ 85034
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Arthritis Foundation – New Jersey Chapter
http://www.arthritis.org
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions. Founded in 1948, with headquarters in Atlanta, the Arthritis Foundation has multiple service points located throughout the country.
1330 W. Peachtree Street.; Suite 100 Atlanta, GA 30309
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Arthritis Society
http://www.arthritis.ca
The Arthritis Society offers a wide range of programs and resources dealing with arthritis. These services, including the examples below, can benefit people with arthritis as well as family members and caregivers.
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ASB, Associated Services for the Blind and Visually Impared
http://www.asb.org/main/index.htm
Our many divisions serve the local Philadelphia and Delaware Valley areas and beyond.It is our goal at ASB to help the blind and visually impaired regain their independence, self-esteem and confidence so that they may lead active, productive and healthy lives.
919 Walnut Street Philadelphia, PA 19107
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Aspergers Syndrome Coalition
2020 Pennsylvania Avenue NW, Box 771 Washington, DC 20006
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Assistive Technology Resource Centers of Hawaii
http://www.atrc.org
Assistive Technology Resource Centers of Hawaii (ATRC) is a 501 (c)(3) non-profit organization committed to linking people with technology and empowering individuals through its use.
200 North Vineyard Boulevard, Suite 430 Honolulu, HI 96817
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At Risk and Special Education Services
http://www.schools.utah.gov/sars/
We provide support to empower students with disabilities ages 3-21. Through Informatin and resources, Laws, Regulations and Polices, Family Invovement and Partnerships.
250 East 500 South Salt Lake City, UT 84111-3204
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Ataxia, A-T Childrens Project
http://www.communityatcp.org/NETCOMMUNITY/Page.aspx?pid=567&srcid=-2
The A-T Children’s Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.
5300 W. Hillsboro Blvd., Suite 105 Coconut Creek, FL 33073
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Autism Action Partnership
http://www.autismaction.org
Our Mission is to improve the quality of life of persons on the Autism Spectrum and their families through education, advocacy and support, thereby enabling them to be an integral part of the community. We provide a central clearinghouse for information pertaining to the diagnosis, treatment, and community resources for individuals diagnosed on the Autism Spectrum and their families. This information is available at (877) ASD-AAP1 or (402) 763-8830 during regular business hours and through our website at www.autismaction.org.
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Autism National Commitee
http://www.autcom.org/
This is the only autism advocacy organization dedicated to “Social Justice for All Citizens with Autism” through a shared vision and a commitment to positive approaches.
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Autism Resources
http://www.autism-resources.com
Welcome to Autism Resources, with information and links regarding the developmental disabilities autism and Asperger’s Syndrome.
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Autism Society of Alabama
http://www.autism-alabama.org
Mission Statement: To improve services for persons with Autism Spectrum Disorders and their families through education and advocacy. Constituency: Persons with Autism Spectrum Disorders and their families Principle Beliefs: Every individual has inherent worth and dignity Inclusion in the community is preferred over exclusion; Options and opportunities should be available for every person; Services should focus on the family and the individuals; Accessible, individualized, comprehensive services should be available; Services should strive to be a model of excellence and incorporate validated innovations; Consumers should expect and receive effective advocacy and leadership; Consumers deserve to receive current information on diverse therapeutic options.
4217 Dolly Ridge Road Birmingham, AL 35243
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Autism Society of America
http://www.autism-society.org/
The Autism Society was founded in 1965 by Bernard Rimland, Ph.D. His book,Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, was written in late 1964 and was one of the first of its kind. In 1968, Ruth Sullivan, Ph.D., became the organization’s first elected president. Over the last 40 years, the Society has grown from a handful of parents into the leading source of information, research, reference and support on the autism spectrum. The Autism Society is the oldest and largest grassroots organization within the autism community.
4340 East-West Hwy, Suite 350 Bethesda, Maryland 20814
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Autism Society of Greater New Orleans
http://www.autism-society.org/chapter168
Provides information and referrals, advocacy and support for individuals with Autism Spectrum Disorder (ASD) and their families: to help families identify qualified professionals in their communities; to assist families in securing benefits and services provided by law; and to promote lifelong opportunities for persons with Autism Spectrum Disorder in order to be fully included members of their communities.
New Orleans, LA 70186
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Autism Society of Greater Orlando
http://www.asgo.org
The Autism Society of Greater Orlando is a not-for-profit organization that was set up by families for families. Our mission is is that all individuals within the autism spectrum will be provided a lifetime network of opportunities to become fully accepted, included, and actively participating members of our community, through family support, education, and advocacy, and public awareness.
1650 West Sand Lake Road Suite #235, Orlando, FL 32809
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Autism Society of Southeastern Wisconsin
http://assew.org
Our Mission: To support people with Autism Spectrum Disorders, their families, professionals, and others, by sharing information, supporting research, providing networking opportunities and promoting awareness through education and training.
3720 N. 124th Street, Suite O Wauwatosa, WI 53222
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Autism Society of Wisconsin
http://www.asw4autism.org
The mission of the Autism Society of Wisconsin is to improve the lives of all affected by autism in Wisconsin.
4340 East-West Hwy, Suite 350 Bethesda, Maryland 20814
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Autism Speaks
http://www.autismspeaks.org/
Autism Speaks is an international consortium of researchers, philanthropists, government funding agencies, and participating families dedicated. At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders. We are dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis.
1 East 33rd Street 4th Floor New York, NY 10016
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Autism Spectrum and Developmental Disorders Resource Center
http://www.alexianbrothershealth.org/abbhh/ourservices/autism
Individuals within the autistic spectrum of developmental disorders often face a variety of unique mental health challenges throughout their lifetime. It can be confusing for parents and families to know how to locate the essential services, or even how to identify the services that their child, adolescent, or young adult needs. The Autism Spectrum and Developmental Disorders Resource Center can assist families through this confusing and sometimes frustrating process. Our expert Clinical Navigator of the Resource Center works with individuals and families to help assess their needs, and facilitate a triage of those vital services. The Autism Spectrum and Developmental Disorders Resource Center is made available to families in our community through the generosity of our individual and corporate partners. Families may then be directed to either services within the Alexian Brothers Health System, or they may be referred to services in the community.
800 Biesterfield Road Elk Grove Village, IL 60007
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Batten Disease Support and Research Association
https://bdsrafoundation.org
The Batten Disease Support and Research Association (BDSRA) began in 1987 by a group of parents looking for strength and support in a disease that only gives fear and uncertainty to those it affects. Our organization focuses on three things: Providing information, Supporting families, Promoting research efforts. We are the only family support organization in the United States, Canada, New Zealand, Australia, South Africa, as well as other nations, which is specific to Batten Disease.
1175 Dublin Road. Columbus, OH 43215
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Behavioral Perspective Inc. (BPI) Adult Services
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Bend Work Activity Center
http://www.ofco.org/
The Opportunity Foundation is a non-profit organization with the mission of providing life improvement services to Central Oregonians with disabilities. With the Opportunity Foundation’s support, adults with disabilities in Deschutes, Crook and Jefferson counties work toward their individual goals for meaningful work, a comfortable home and the opportunity to be an active part of the community.
Redmond, OR 97756
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Bipolar Disorder, Child and Adolescent Foundation
http://www.bpkids.org/site/PageServer
The Child & Adolescent Bipolar Foundation improves the lives of families raising children and teens living with bipolar disorder and related conditions.
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BiPolar Focus
http://www.pendulum.org/
Bipolar Disorder, formerly known as Manic Depression, is a highly disruptive brain disorder. Since 1994 Pendulum.org has been the web’s premier resource for bipolar information.
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Birth Defect Research for children
http://www.birthdefects.org
The National Birth Defect Registry is a research project designed through a collaboration of seven prominent scientists. The registry collects information on all categories of structural and functional birth defects as well as the health, genetic and environmental exposure histories of the mothers and fathers of these children.
976 Lake Baldwin Lane, Suite 104 Orlando FL 32814
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Blind Babies Foundation
https://www.wayfinderfamily.org/program/blind-babies-foundation
Young children in Central and Northern California who are blind or visually impaired and may have additional disabilities receive critical early intervention and education services from Blind Babies Foundation, a program of Wayfinder Family Services. Children increase visual functioning, sensory awareness, communication and social skills, as well as improve physical, cognitive and emotional development. Families learn to become successful advocates for their children’s education and care. Our vision impairment specialists collaborate with family members, medical professionals, caregivers and teachers.
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Brain Injury Alliance of WI
http://www.biaw.org
The Brain Injury Alliance of Wisconsin (BIAW) is a nonprofit, 501 (c) 3 organization committed to serving individuals with an acquired brain injury and their families. The association was formed in 1980 by a group of individuals with brain injury, their family members, friends and professionals in response to the lack of available services specific to the unique needs of individuals with brain injury. BIAW is a chartered member affiliate of the national Brain Injury Alliance, Inc.
N63 W23583 Main Street, Suite A Sussex, WI 53089
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Brain Injury Association of America
http://www.biausa.org
The Brain Injury Association of America’s mission is to be the voice of brain injury, and to offer help, hope and healing to people with brain injury, family members and the professionals that serve them. Founded in 1980, with a network of over 40 state affiliate offices around the country, it is the only national advocacy organization dedicated solely to people with brain injury
1608 Spring Hill Road, Suite 110 Vienna, VA 22182
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Brain Injury Association of Florida
http://www.biaf.org/
The mission of this Association is to improve the quality of life for persons with brain injury and their families by creating a better future through brain injury prevention, research, education, support services, and advocacy. BIAF is a non-profit organization, founded in 1985 by the mother of a young man who sustained a traumatic brain injury from an automobile crash. It is an organization of individuals with brain injuries, their families, and professionals working to help people cope with the long term effects of brain injury.
Florida 32308
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Brain Injury Association of Hawaii
http://www.biausa.org/Hawaii/
Welcome to the website of the Brain Injury Association of Hawaii, a non-profit 501(C)3 agency. We are dedicated to serving those affected by brain injury through advocacy, education, prevention, and support.
Hawaii
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Brain Injury Association of Illinois
www.biail.org
The Brain Injury Association of Illinois provides programs and services to children, teens and adults who have sustained an acquired brain injury, the families/caregivers, and professionals working with those individuals, as well as an injury prevention program to prevent the preventable injury. The BIA of IL provides an Information & Resource Center, Summer Camps for children and adults, support groups, educational programs, and annual educational conference.
Chicago, IL 60664
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Brain Injury Association of Utah, Inc.
http://biau.org/
The mission of the Brain Injury Association of Utah is to create a better future through brain injury prevention, research, education and advocacy.
5280 So.Commerce Dr. Suite E-190, Murray, UT 84107
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Brent Woodall Foundation for Exceptional Children
http://www.woodallkids.org
Since it is not realistic for the Foundation to provide even modest financial and hands-on technical assistance to all of the families affected by autism, even in the US, the Foundation focuses on a two part plan, with both prongs aimed primarily at the youngest children with autism.
3021 Gateway Drive, Suite 295 Irving, Texas 75063
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Brooks Memorial Hospital Rehabilitation Center
http://www.brooksrehab.org/
Brooks has a long-standing tradition of providing quality inpatient and outpatient rehabilitation care to Florida and Southeast Georgia. The 143-bed acute physical rehab hospital is unique in the region with a highly trained staff and an unmatched range of services. Brooks has an extensive network of 25 outpatient centers and an established home health services division, Brooks Home Care Advantage, which provides the best continuum of post-acute services possible to the communities served. Brooks also has a cutting-edge research facility offering over 20 clinical trials.
3599 University Blvd S Jacksonville, FL 32216
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C-4 Work Center
http://www.c4chicago.org/
Since 1972, C4 has been successfully helping individuals and families who are struggling with mental illness, emotional trauma, substance abuse and the aftermath of sexual assault recover and heal their lives. Through our compassionate and community-based services, we have helped them return to work or school, reestablish personal relationships, keep their homes, and live as good neighbors.
4740 North Clark St. Chicago, IL 60640
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C-CAD Center of United Cerebral Palsy of Metropolitan Dallas
http://www.abilityconnectiontexas.org/
What do we do? United Cerebral Palsy (UCP) is one of the nation’s leading organizations serving and advocating for more than 54 million Americans with disabilities. Many UCP consumers are people with disabilities other than cerebral palsy. Here in north Texas UCP offers services to individuals, families and communities, such as early childhood development and education, community living assistance and support services (CLASS), home and community support (HCS), consumer direct services (CDS), group homes, adult Impact program, and removing limits through technology with our assistive technology programs. Additionally, UCP of North Texas provides OT, PT, and speech therapy along with a vast array of adaptive equipment available through our equipment loan program.
8802 Harry Hines Blvd. Dallas, Texas 75235
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California- Parents Helping Parents
http://www.php.com
Parents Helping Parents (PHP) is a family resource and service center for parents of children with special needs and the professionals who serve them.
1400 Parkmoor Avenue Suite 100 San Jose, CA 95126
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Cancer- American Cancer Society
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CARF International
http://www.carf.org
CARF International is an independent, nonprofit accreditor of human service providers in the areas of aging services, behavioral health, child and youth services, employment and community services, medical rehabilitation, and opioid treatment programs. The CARF family of organizations currently accredits more than 5,400 providers at more than 19,000 locations in the United States, Canada, Western Europe, South America, and the South Pacific. For more information, visit www.carf.org or call (888) 281-6531.
6951 East Southpoint Road Tucson, AZ 85756-9407
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CASPAN: Chicago Asperger’s Adult Network
Chicago, IL
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Center for Autism Research at The Children’s Hospital of Philadelphia
http://www.centerforautismresearch.com
The Center for Autism Research (CAR) is a collaborative effort between The Children’s Hospital of Philadelphia and the University of Pennsylvania. CAR’s goals are to identify the causes of autism spectrum disorders (ASD) and develop effective treatments. CAR conducts research studies for infants at risk for being diagnosed with ASD (due to having a sibling already diagnosed) as well as toddlers and school-aged children on the autism spectrum. Families receive comprehensive assessment reports and are paid for their time and travel costs. Typically developing children and adults are also needed for comparison purposes. For more information, please visit http://www.centerforautismresearch.com.
3535 Market St # 3535, Philadelphia, PA 19104
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Center for Independent Futures
http://www.independentfutures.com/
The Center for Independent Futures is a not-for-profit organization that forms innovative partnerships to create product and service models that give adults with disabilities and their families the skills and opportunities to realize full lives. We use our proprietary processes to establish sustainable solutions through community living options, personal networks, lifelong planning and education.
1015 Davis Street Evanston, IL 60201
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Center for Persons with Disabilities
http://www.cpdusu.org/
The Center for Persons with Disabilities (CPD) is Utah’s University Center for Excellence in Developmental Disabilities Education, Research, and Services (UCEDD). Our mission statement expresses both our values and the ways in which we choose to work: “We collaborate with partners to strengthen families and individuals across the lifespan through education, policy, research and services.”
6800 Old Main Hill, Logan, UT 84322-6800
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Center for the Partially Blind
http://www.low-vision.org/
The mission of The Center for the Partially Sighted is to promote independent living for people of all ages with impaired sight.
6101 W. Centinela Ave. Suite 150 Culver City, CA 90230
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Central Florida Parent Center
http://centralfloridaparentcenter.org/
Our mission is to provide parents of children and young adults with all disabilities and special needs (ages 0-26) in central and northeast Florida with accurate information, interactive training, quality assistance, and empathetic support.
Palm Harbor, FL
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Cerebral Palsy Group
https://cerebralpalsygroup.com/cerebral-palsy/
Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, birth injuries, or brain injuries. Our team was created so we can provide answers and all types of assistance needed to help improve the quality of life for loved ones and family members with cerebral palsy.
https://cerebralpalsygroup.com/cerebral-palsy/
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Cerebral Palsy of Colorado
http://www.abilityconnectioncolorado.org/
Our Mission is to create, support, and encourage inclusive opportunities for Coloradoans of all abilities and their families, through early intervention, education, employment, statewide training, information and referral, advocacy, public education services and collaborative strategies with emphasis on diversity, dignity, quality of life and the advancement of human potential.
801 Yosemite Street Denver, CO 80230
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CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder)
http://www.chadd.org/
CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others.
4601 Presidents Drive, Suite 300 Lanham, MD 20706
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CHADD of Nassau County (Children and Adults with Attention Deficit Disorders)
http://www.chadd.net/105
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt organization providing education, advocacy and support for individuals with AD/HD. We are proud to be one of the longest standing affiliates in New York. Our local Nassau County chapter was founded in 1989 in order to support and educate the families in our community who were experiencing frustration and a sense of isolation when dealing with issues concerning AD/HD.
Levittown, NY 11756
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Child and Family Project
http://www.bu.edu/autism
The research programs conducted in our lab began about 25 years ago. Our research has been supported by grants from the National Institutes of Health and private foundations. We collaborate with colleagues at several other institutions both in the Boston area and elsewhere.
100 Cummington Mall Boston MA 02215
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Children and Adults with Attention Deficit Disorder of Northern Illinois
http://www.meetup.com/CHADD-Northern-Illinois/
CHADD is the nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. This group is facilitated by Eric Tivers, LCSW, MSSW. Eric Tivers is a Licensed Clinical Social Worker, and a Certified School Social Worker in private practice. He specializes in working with individuals and families living with ADD, autism spectrum disorders, and other related disorders. We hold monthly support group meetings for anyone living with AD/HD and/or caregivers, spouses/partners, educators, professionals, etc. looking for information, education, and understanding. Meetings are the 3rd Monday of every month at 6:45pm in McHenry. (See meetup.com page for details) Meetings are Free.
Grayslake, IL 60030
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Children and Adults with Hyperactivity/Attention Deficit Disorder
http://www.chadd.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt (Section 501 (c) (3) ) organization providing education, advocacy and support for individuals with AD/HD. In addition to our informative Web site, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with AD/HD. These materials include Attention! magazine, the CHADD Information and Resource Guide to AD/HD, News From CHADD, a free electronically mailed current events newsletter, as well as other publications of specific interest to educators, professionals and parents.
4601 Presidents Drive, Suite 300 Lanham, MD 20706
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Christopher & Diana Reeve Foundation Paralysis Resource Center
https://www.christopherreeve.org/living-with-paralysis/about-the-paralysis-resource-center
The Paralysis Resource Center (PRC) is the support side of the Reeve Foundation’s twin missions to provide “Today’s Care” and to strive for “Tomorrow’s Cure”. We are a free, comprehensive, national source of informational support for people living with paralysis and their caregivers. Our primary goals are to foster involvement in the community, promote health and improve quality of life. Our information specialists are trained to help anyone – from newly paralyzed individuals and their family members, to persons who have lived with disabilities for quite some time – as they attempt to navigate their changing world and the services available to them. We pull from a wide array of information and expertise to devise personalized plans and approaches to getting individuals living with paralysis back into their communities and a place of well-being quickly.
636 Morris Turnpike Suite 3A Short Hills, NJ 07078
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Citilink Fort Wayne
http://www.fwcitilink.com
Provides transportation to Fort Wayne City limits. Hours of operation are 5:45am-9:30pm Monday-Friday. Saturday hours are 7:30am-6:00pm. Also provides paratransit services during the same hours for those who are ADA eligible and certified.
801 Leesburg Road Fort Wayne, IN 46808
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Commonwealth Autism Service
http://www.autismva.org
The mission of Commonwealth Autism Service is to provide leadership in the implementation of a statewide system of services to maximize the potential and quality of life of each Virginian with autism across the lifespan. Our website includes information about autism, autism services, and providers, as well as helping you to keep up to date on policy and research.
4108 E. Parham Rd. Richmond, Va. 23228
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Community Enterprises
Provides supported education services in a community college setting, supported employment including job training, placement and folow up, transitional services from group homes and other settings to supported living within the community.
441 Pleasant Street, Northampton, MA 01060
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Conklin Center for the Blind
http://www.conklincenter.org/
The mission of the Florida Lions Conklin Center is to train, assist, and support individuals that are blind and have one or more other disabilities to obtain gainful employment, live independently, participate in community life and have the freedom to make their own choices with dignity. Our students may have been born blind or suffered an injury or illness that caused the loss of sight. they are also challenged by another physical or cognitive or developmental disability such as deafness, cerebral palsy, learning disabilities or borderline mental retardation, to name a few.
405 White St. Daytona Beach, FL 32114
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Countryside Association
https://greatnonprofits.org/org/countryside-association-for-people-with-disabilities-inc
The mission of Countryside Association for People with Disabilities is to advocate on behalf of persons with disabilities and their families and to support them in their efforts to live and work successfully in their chosen community. Countryside Association is a nonprofit organization located both in Palatine and Waukegan Illinois. The organization provides the spectrum of vocational services to individuals with developmental disabilities including job placement, sheltered employment, senior services and volunteer opportunities.
21154 West Shirley Palatine, IL 60074
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Craig Hospital
http://www.craighospital.org/
Craig Hospital in Denver, Colorado is world renowned as a premier center for specialty rehabilitation and research for people with spinal cord injury and traumatic brain injury.
3425 S. Clarkson St. Englewood, CO 80113
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CRTASA – International Registry of Therapy and Service Animals
Canadian Registry of Therapy Animal & Service Animals (CRTASA) is a centralized registry operating in Canada & US since 2010. It registers service & therapy animals and extends annual memberships to verified applicants that also receive a valid CRTASA Photo ID Card to readily confirm their rightful ownership of their official animal to a place of business. Service animals registered by CRTASA include guide dogs and other trained species (eg. helper monkeys, miniature seeing guide horses, etc..) CRTASA does not certify service animals – it only registers those already officially trained/certified to assist their owner with a disability. The standardized CRTASA Photo ID Card alleviates past confusion that variety of ID Cards (issued by different states, provinces and training facilities) posed for businesses across North America – many of whom were unfamiliar with the issuing body. CRTASA members also benefit from point of purchase discounts on animal products/services extended by participating CRTASA corporate fellows.
North York, Ontario M2H 1J8
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CSD
http://www.c-s-d.org
CSD (a.k.a. Communication Service for the Deaf, Inc.) was established in 1975, primarily to provide sign language interpreting services to deaf and hard of hearing adults in South Dakota. Today, CSD employs nearly 2,000 individuals in offices across the nation, providing a broad continuum of social and human services programs, as well as telecommunications relay and contact center services. CSD is a private nonprofit agency dedicated to providing quality services; ensuring public accessibility; and increasing awareness of issues affecting the deaf, hard of hearing and individuals with speech disabilities.
200 W. Cesar Chavez Ste 650, Austin TX 78701
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Cystic Fibrosis Foundation
http://www.cff.org/
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
6931 Arlington Road 2nd floor Bethesda, MD 20814
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Delano Regional Medical Center
http://www.drmc.com/
Delano Regional Medical Center (DRMC) is proud to be known throughout California and beyond as an innovative regional hospital, deeply rooted in the local communities and committed to providing an exceptional patient experience.
1401 Garces Highway, Delano, CA 93215
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Department of Social Services & Health Services
https://www.dshs.wa.gov
The Department of Social and Health Services (DSHS) is a helping hand and lifeline for one out of every four Washington residents.As a single agency, DSHS is able to provide services from several programs to meet the multiple needs of the majority of clients.
Tacoma, WA 98411-9905
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Depression and Bipolar Support Alliance
http://www.dbsalliance.org/site/PageServer?pagename=home
The Depression and Bipolar Support Alliance (DBSA) is the leading patient-directed national organization focusing on the most prevalent mental illnesses. The organization fosters an environment of understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically-based tools and information written in language the general public can understand. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments and discover a cure. The organization works to ensure that people living with mood disorders are treated equitably.
55 E. Jackson Blvd, Suite 490 Chicago, Illinois 60604
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Desert Regional Medical Center
https://www.desertregional.com/
As the regional medical center in the Coachella Valley, Desert Regional Medical Center’s vision is the continuous improvement of the health and well-being of the communities we serve. A commitment to clinical excellence shall be demonstrated through measurable quality outcomes, while ongoing financial stability will enable Desert Regional Medical Center to fulfill its mission and attain its vision.
1150 N INDIAN CANYON DR, PALM SPRINGS, CA 92262
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Designs for Change
http://www.designsforchange.org/sped.html
DFC’s Special Education Reform Program provides assistance to families, principals, teachers, Local School Councils, and social service agencies to assist them in creating appropriate educational programs for Chicago students with disabilities to ensure that students with disabilities are educated in the regular education program and master the regular education curriculum, consistent with the most current federal law (Individuals with Disabilities Education Act or IDEA) and with the Corey H. Settlement Agreements. The ABLE Coalition: Advocates Behind Legal Education DFC encourages parents of children with disabilities to take advantage of training opportunities and join a parent support group. A parent support group will provide needed emotional support and valuable feedback and information from other parents. You will also get a better idea of systemic issues and how they impact on other children with disabilities. Parent group meetings are a great place to compare strategies and share stories from the field!
29 East Madison, Suite 950, Chicago, IL 60602
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Devereux Santa Barbara
Santa Barbara, CA 93160
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Divsion of Specialized Care for Children, University of Illinois- Chicago Rockford Office
http://www.uic.edu/hsc/dscc/
DSCC’s mission focuses on public service, education and research as a basis to provide, promote and coordinate family-centered, community-based, culturally competent care for eligible children with special health care needs in Illinois.
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Doctors Baptist Hospital
https://baptisthealth.net/locations/hospitals/doctors-hospital
Baptist Health South Florida is the largest not-for-profit health care organization in the region. Affiliates of the Baptist Health include Baptist Hospital of Miami, Baptist Children’s Hospital, South Miami Hospital, Homestead Hospital, Mariners Hospital, Doctors Hospital and Baptist Cardiac & Vascular Institute. Baptist Health also offers a variety of health care services, such as outpatient diagnostic and treatment facilities and home health care.
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Doug Flutie, Jr. Foundation for Autism
http://www.flutiefoundation.org
Our primary goal is to promote awareness and support families affected by autism spectrum disorders. We are committed to funding organizations that provide direct services, family support grants, education, advocacy and recreational opportunities with the purpose of improving the quality of life for individuals with autism and their families.
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Down Syndrome Foundation of Florida
http://dsfflorida.org
The mission of The Foundation is to empower lives for a brighter future by facilitating projects that enhance the welfare, education, health, and artistic and athletic abilities of individuals with Down syndrome. The vision of The Foundation is to create an environment where people with Down syndrome are included in every facet of the community. The Foundation provides several scholarships, informational and training workshops and an internet resource room related to the information and needs of individuals with Down syndrome and their families, professionals, and caregivers.
Orlando, FL 32853-3462
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Down Syndrome Guild of Greater Kansas City
http://www.kcdsg.org
The Down Syndrome Guild of Greater Kansas City is a 501 c 3 nonprofit organization whose mission is to provide support and resources for individuals with Down syndrome and their families. DSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.
5960 Dearborn Street, Suite 100 Mission, KS 66202
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Down Syndrome Network
http://www.dsnetworkaz.org
The Down Syndrome Network’s mission is to provide comprehensive education, support and advocacy for individuals and families affected by Down syndrome.
Tempe AZ 85284
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Down Syndrome, National Association
http://www.nads.org/
NADS is the oldest organization in the country serving individuals with Down syndrome and their families.
1460 Renaissance Drive, Suite #405 Park Ridge, IL 60068
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Dyscalulia- Web Site
http://www.dyscalculia.org/
This web site list resources that are useful for the parents and educators working with children with Dyscalulia.
7420 Calhoun Street, Dearborn, Michigan, 48126
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Dyslexia-The Gift, Davis Dyslexia Association International
http://www.dyslexia.com/
Join us as we explore the positive talents that give rise to dyslexia, and share our knowledge about the best ways for dyslexic people to learn.
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Dyslexia, The International Association
http://www.interdys.org/
The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. Our goalis to provide the most comprhensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.
40 York Rd., 4th Floor
Baltimore, MD 21204
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Dyspraxia Foundation
http://www.dyspraxiafoundation.org.uk/
The Dyspraxia Foundation is a country Wide charity, founded in 1987 as the Dyspraxia Trust by two mothers who met at Great Ormond Street Hospital for Sick Children. After being told that their children had Dyspraxia they were astonished and dismayed to discover that no facilities existed to help or inform parents and children with the condition. They decided to form their own group to help others to help themselves.
8 West Alley, Hitchin, Herts, SG5 1EG.
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Dyspraxia USA NFP
http://www.dyspraxiausa.org
We are an organization that helps all people in the United states with Neuro Diverse learning conditions. We focus mainly on Dyspraxia a condition that affects 6 percent of the population and since I have the condition I decided it was time to make a stand for my people!We are here to educate,inform and make aware to all aspect of the community schooling and other sectors the hidden conditions that go unnoticed due to limited social know how!
4 Westover Road Highwood, IL 60040
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Easter Seals of Tennessee
http://www.tn.easter-seals.org
The mission of Easter Seals Tennessee is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their community.
750 Old Hickory Blvd, #2-260, Brentwood, TN 37027
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Easter Seals Wisconsin
https://www.eastersealswisconsin.com/
Easter Seals Wisconsin has been creating life-changing solutions for individuals with disabilities and their families for nearly seven decades. Whether providing recreational opportunities for children, respite care for families, assisting farmers continue to farm, or gaining greater independence in everyday living, Easter Seals Wisconsin offers a variety of services to address life’s challenges and achieve personal goals.
101 Nob Hill Rd, Suite 301 Madison, WI 53713
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Easter Seals, Bay Area
http://bayarea.easterseals.com/site/PageServer?pagename=CABY_whoweare&s_esLocation=wwa_
Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years. Whether helping someone improve physical mobility, return to work or simply gain greater independence for everyday living, Easter Seals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.
391 Taylor Boulevard, Suite 250, Pleasant Hill CA 94523
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Eastern Blind Rehabilitation Center
http://www.rehab.va.gov/blindrehab/
The mission of Blind Rehabilitation Service is to coordinate a healthcare service delivery system that provides a continuum of care for blinded veterans extending from their home environment to the local VA facility and to the appropriate rehabilitation setting. These services include adjustment to blindness counseling, patient and family education, benefits analysis, comprehensive residential inpatient training, outpatient rehabilitation services, the provision of assistive technology, and research.
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El Valor
https://www.elvalor.org//
El Valor is a non-profit community-based organization founded in 1973. El Valor is the first bilingual, bicultural rehabilitation center in Illinois. Their strategic goals are: to be the best in the nation in early childhood care in the Hispanic community; to become the premier organization developing leadership for the Hispanic community; and to be an international model for inclusion of people with disabilities in the Hispanic community.
1951 W, 19th Street Chicago, IL 60608
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Elwyn Delaware
elwyn.org
Elwyn is a unique organization. Founded in 1852, Elwyn has been providing services to people with special needs for over 150 years. Today, Elwyn is nationally recognized as a pioneer in developing groundbreaking programs for children and adults with disabilities and disadvantages. Our innovative culture and dedicated staff enable us to help more than 12,000 people build more independent, productive lives.
111 Elwyn Road, Media, PA 19063
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Empower Colorado
http://empowercolorado.org/
Empower Colorado is an organization created by families to support, educate, and provide resources for Advocacy for families. We define family as anyone who directly contributes to caring for children and youth who have, or are at risk for developing mental health disorders, also known as Brain Disorders. Children are not always diagnosed with a specific disorder but exhibit symptoms where they struggle with social, emotional, mental and/or behavioral challenges. Some of the common diagnoses our children have include: Bipolar Disorder, Major Depression, ADD/ADHD, Tourette’s Disorder, PDD Spectrum Disorder (Autism, Asperger’s Syndrome), Schizophrenia, Attachment Disorders (RAD), Fetal Alcohol Syndrome, PTSD and Trauma. Anxiety is one of the most common symptoms present in almost all of the diagnoses but in many cases it is also a disorder unto itself. Some of the common Anxiety Disorders seen in children include: Obsessive-Compulsive Disorder, Generalized Anxiety Disorder, Panic Disorder, Selective Mutism, Separation Anxiety Disorder and Phobic Disorders.
801 Yosemite St., Denver, CO 80230
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EP Magazine
http://www.eparent.com/
EP Global Communications, Inc. and Exceptional Parent magazine add perspective on the recent FDA public notification concerning adverse events reported in children with cerebral palsy who have received treatment with Botulinum Toxin (BOTOX®) injections.
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Epilepsy Foundation
http://www.epilepsyfoundation.org/
“The Epilepsy Foundation will ensure that people with seizures are able to participate in all experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services.”
8301 Professional Place East, Suite 200 Landover, MD 20785-2353
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Epilepsy Foundation North/Central Illinois
https://www.epilepsy.com/north-central-illinois-iowa-nebraska
The Epilepsy Foundation North/Central Illinois will ensure that people with seizures are able to participate in all life experiences; and will prevent, control, and cure epilepsy through services, education, advocacy and research. We serve the following counties in North/Central Illinois: Boone, Bureau, Carroll, DeKalb, Henry, Jo Daviess, Fulton, Henderson, Knox, LaSalle, Lee, McHenry, Marshall, McDonough, Mercer, Ogle, Peoria, Putnam, Rock Island, Stark, Stephenson, Warren, Whiteside, Winnebago.
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Epilepsy Foundation of Greater Chicago
http://www.epilepsychicago.org
Provides referral, education, outreach, advocacy, casemanagement, medical clinics, pharmaceutical assistance referral, vocational counseling, and support groups. Also provides employment and educational advocacy to those dealing with epilepsy and seizure disorder.
17 N. State Street Suite 650 Chicago, IL 60602
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Epilepsy Foundation of Hawaii, Inc.
http://www.epilepsyhawaii.org/
The Epilepsy Foundation of Hawaii (EFH) provides direct services to individuals with seizure disorders. It is estimated that over 18,000 Hawaii residents suffer from epilepsy and over 75,000 people are touched by it. For over 20 years the EFH has provided information and educational services to individuals and groups with questions pertaining to epilepsy. The EFH is a private, nonprofit agency, whose mission is to increase public awareness of epilepsy and to build a sense of community, enabling persons with epilepsy to participate fully in the community at large.
1050 Ala Moana Boulevard Suite 2550 Honolulu, HI 96814
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Epilepsy, The Network
http://theepilepsynetwork.com/
This corporation is a non-profit 501(c)(3) public benefit corporation, organized for charitable purposes.The specific purposes for which this corporation is organized are to provide education, charitable assistance, encouragement, support, information, referrals, and advocacy for those touched by epilepsy.
Dayton, OH 45475
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Evanston Citizens for Appropriate Special Education
http://evanstoncase.org
Evanston Citizens for Appropriate Special Education (CASE) is a community advocacy organization working to improve special education policies and programs in pre-school, elementary and high school.
Evanston, IL 60201
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Familial Dysautonomia Now
http://www.fdnow.org
What is FD NOW? Ann and Ken Slaw and other FD families and friends founded the FD NOW fund at Partnership for Cures, a 501c3, to raise funds to support research that will drive better treatments and cures for patients with FD in two years or less.
1170 Green Knolls Drive Buffalo Grove, IL 60089
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Families helping Families of SWLA
http://www.fhfswla.org
Our mission is to provide information and referral, education and training, peer support and advocacy skills to individuals with disabilities and their families. Our vision is that individuals with disabilities and their families will be strong, effective, informed advocates for themselves and others.
2927 Hodges Street Lake Charles, LA 70601
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Family Connection of South Carolina
http://www.familyconnectionsc.org
Having a baby is one of life’s greatest moments, and every parent dreams of having a happy, healthy one. So when a child with disabilities or special needs enters a family, at birth or diagnosis, it is rarely what the parents expected. Treasures are found in the unexpected, however, just as all children are a gift, Family Connection of South Carolina helps families recognize and celebrate the potential of that gift.
1800 St. Julian Place, Suite 104, Columbia, SC 29204
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Family Ideas Network for Down Syndrome (FINDS)
http://www.findsdownsyndrome.com
We are a parent support group providing education, support, community awareness to families with children with Down Syndrome in the McHenry County area.
Crystal Lake, IL, 60039-1441
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Family Network on Disabilities of Florida, Inc.
http://www.fndfl.org
Family Network on Disabilities of Florida, Inc. is a statewide network of families and individuals of all ages who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens. Our mission is to ensure through collaboration that Floridians have full access to family-driven support, education, information, resources, and advocacy and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities described in section 602(3) of IDEA.
2196 Main Street, Suite K, Dunedin, FL 34698
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Family Resource Associates, Inc.
http://www.frainc.org
Family Resource Associates (FRA) is a New Jersey non-profit agency located in Shrewsbury, NJ. FRA assists individuals of all ages who have developmental delays or disabilities. FRA provides home-based early intervention for infants, therapeutic recreation programs and assistive technology services (through TECHConnection), along with family and sibling support groups. TECHConnection @ FRA offers programs and services that can make using the computer easier for people of all abilities and ages.
35 Haddon Avenue, Shrewsbury, NJ 07702
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Family Support Network of North Carolina
http://www.fsnnc.org
Family Support Network of North Carolina promotes and provides support for families with children who have special needs. Families are in a unique position to offer information and support to other families. An experienced family member can share the most practical advice and help a parent navigate the complex service system.
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Family Ties of Massachusetts
http://www.massfamilyties.org
Family TIES of Massachusetts is a statewide information and parent-to-parent support project for families of children with special needs and chronic illness. It is administered by parent coordinators housed in each of the regional offices of the Massachusetts Department of Public Health.
5 Randolph Street Canton, MA 02021
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Family Ties of Nevada
http://www.familytiesnv.org
Increasing the hope, confidence and independence of people with disabilities of all ages and their circle of support through training, information, emotional support and advocacy. Discover helpful services & resources for you, your family or your clients with the Family TIES of Nevada Resource Directory.
3100 Mill Street, Suite 117 Reno, NV 89502
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Family to Family Network of Rhode Island
http://www.ric.edu/uap/F2F/home.html
Family to Family of Rhode Island is a network created by families for families of children and adults with special needs. We offer opportunities for families to connect with one another to share experiences, information, and/or support. Family to Family of Rhode Island is sponsored by Family Voices of RI and Paul V. Sherlock Center on Disabilities.
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FEGS Human and Health Services
http://www.fegs.org
Long Island, NY region ONLY. FEGS is a UJA Federation agency that provides health and human services across the board. With partial grant funding from the Butler Foundation through UJA Federation, the Family Advocacy Information and Referral (or FAIR) program allows for a list of services to families with children, of any age, who have intellectual (cognitive) and developmental delays and/or learning differences. Such services are: I/R (information and referral), guidance and advocacy for C(P)SE meetings, guidance and advocacy for navigating the government systems such as Medicaid and SS(D)I, transitional case management from Early Intervention through post high school planning, assistance in applying for OPWDD eligibility and other LIDDSO services. FAIR also provides workshops for parents and trainings for professionals related to any topic in the special needs arena.
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Fetal Alcohol Syndrome, National Orginization
http://www.nofas.org/
NOFAS is committed to raising public awareness of Fatel Alcohol Syndrome (FAS)- the leading known cause of menatl retardation- and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities throughout the nation.
1200 Eton Court, NW, Third Floor, Washington, D.C. 20007
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Floortime Repository
http://www.floortimerepository.com
Online Social network and support group was created for parents and professionals who want to share ideas for engagement, and collaborate on educational goals and strategies using the dirfloortime model.
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Florida Hospital Rehabilitation Center
https://www.floridahospital.com/rehabilitation
Our first responsibility as a Christian hospital is to extend the healing ministry of Christ to all patients who come to us. We endeavor to deliver high-quality service, showing concern for patients’ emotional and spiritual needs, as well as their physical condition. It is our desire to serve patients promptly, with consideration and dignity.
601 East Altamonte Drive Altamonte Springs, Florida 32701
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Florida Institute of Rehabilitation Education (FIRE)
FIRE is a nonprofit agency dedicated to assisting people who are visually impaired or blind to achieve a maximum level of independence in their lives. Free services are provided on an outreach (one on one) or group basis and are provided without charge, without regard to individual or family income level, race, creed, age, disability or national origin.
3071 Highland Oaks Terrace, Tallahassee, FL 32301
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Food Allergic Multicultural Society of Delaware
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Foundation Fighting Blindness
http://www.blindness.org
The urgent mission of the Foundation Fighting Blindness, Inc. (FFB) is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
7168 Columbia Gateway Drive, Suite 100, Columbia, MD 21046
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Fragile X Alliance of Ohio
http://www.fragilexohio.org/
The Goals of the group are to: 1. Provide mutual support and information to Fragile X families in Ohio. 2. Promote the education and awareness of Fragile X Syndrome to physicians, therapists, educators and the general public. 3. Support and promote research on Fragile X Syndrome.
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Fragile X Association of Alabama
Hoover, AL
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Fragile X Association of Central Illinois
Canton, IL
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Fragile X Association of Dallas Texas
http://www.fragilex.org/2013/community-support-network/fragile-x-walks-across-texas/
The Texas Fragile X Association is made up of families and professionals who share a common goal of providing resources and education to those seeking guidance on Fragile X issues. Our members understand the everyday challenges of providing for children and adults affected by Fragile X Syndrome and our families strive to further the understanding of Fragile X by participating in various carrier and effected studies.
Dallas, TX
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Fragile X Association of Georgia
http://www.fragilex.org/community/community-support-network/southeast/greater-atlanta-fragile-x/
The Fragile X Association of Georgia was formed in 1992 by Gail Heyman and Janet Schatten (parents) to provide resources and support for families and professionals who work with children and adults with fragile X syndrome. Working closely with research scientists from Emory University, Department of Human Genetics, the association sponsors a resource center, holds meetings for affected families, friends, teachers, and other professionals, and has established a Parents’ Network to provide support within the fragile X community.
Roswell, GA
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Fragile X Association of Michigan
Sterling Heights, MI
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Fragile X Association of Northern California
http://www.fragilex.org/
The Northern California Fragile X Association of California (NOCFXA) was formed by parents to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals. We also provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and to support scientific research on Fragile X Syndrome.
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Fragile X Association of Southern California
http://www.fraxsocal.org/
Our organization was formed to promote public awareness of Fragile X syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns and problems; and support scientific research on Fragile X syndrome.
Burbank CA 91510
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Fragile X Association of Washington State
Kenmore, WA
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Fragile X Resource Center of Missouri
http://www.fragilex.org/community/community-support-network/southwest/fragile-x-resource-center-of-missouri/
The Fragile X Resource Center of Missouri provides support and information to individuals with FXS and their families. The Center offers annual workshops for teachers, therapists and parents. The Center also sponsors fundraisers that support research to understand FXS and find a cure, and that develop educational methods to enhance the abilities of persons with FXS. The Center is a not-for-profit organization currently run by volunteer parents of children with Fragile X. Our center hosts support group meetings throughout the year.
St. Louis, MO
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Fragile X Resource Group of Maine
http://www.fragilex.org/
The Maine Fragile X Resource Group is dedicated to providing educational and emotional support for those affected by Fragile X, promoting public and professional awareness, and supporting research toward improved treatments and a cure for Fragile X Syndrome.
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Fragile X Resource Group of Maryland
http://www.mdfragilex.org/
The Maryland Fragile X Resource Group is a community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. We are a very active group providing mutual support and education, promoting awareness of Fragile X and actively participating in funding research on Fragile X. The group was founded in August of 1999 and currently supports 80 families. We welcome all who share this common interest and hope that you find the information presented on this site beneficial.
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Fragile X Resource Group of New Hampshire
http://www.fragilex.org/
The New Hampshire Fragile X Resource Group is devoted to providing information and support for families and friends of individuals with Fragile X syndrome. We strive to increase awareness of Fragile X within the community by advancing the education of physicians, other professionals, and the general public. We seek to increase identification, support progress in research, and find a cure for Fragile X syndrome.
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Fragile X Resource Group of South Florida
http://www.fragilex.org/community/community-support-network/southeast/central-florida-fragile-x/
The South Florida Fragile X Resource Group provides resources and support for families and professionals who work with children and adults with Fragile X syndrome in Broward, Miami-Dade, and Palm Beach counties. The group was begun in 2000 as part of Conquer Fragile X Foundation and since 2004 has been a shared resource of both National Fragile X Foundation and Conquer Fragile X Foundation.
Tampa, FL
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Fragile X Resource Group of The Twin Cites in Minnetsota
http://www.fragilex.org/
The Twin Cities Fragile X Resource Group is a group of Parents of children with Fragile X, their siblings, extended Families and their friends that provide support and information to each other. We are in the beginning stages but we are a wonderful group that is committed to raise awareness about the Fragile X Syndrome.
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Fragile X Society of Phoenix Arizona
http://www.fragilex.org/
The Fragile X Society of Arizona is represented by Cheryl Fisher who has a daughter with fragile X syndrome. She is a strong advocate and has successfully lobbied at the state and federal levels of government to improve funding for children with disabilities and for fragile X research. In an effort to raise awareness of fragile X in the local community, group members have participated in various programs including the Physician Residency Training Program and Pre-Service Teaching Program offered by Raising Special Kids.
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Franklin Skilled Nursing and Rehabilitation Center
https://franklingrovelivingandrehab.com
Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care. The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.
720 Orchard Avenue Rocky Mount, Virginia 24151
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Geneva Center for Autism
http://www.autism.net
Geneva Centre for Autism is an international leader in the development and delivery of training, support and clinical intervention services for individuals with Autism Spectrum Disorder.
112 Merton Street Toronto, Ontario Canada M4S 2Z8
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George Washington University Medical Center
http://www.gwdocs.com/
The George Washington University Medical Faculty Associates (MFA) is the largest multi-specialty physician practice in Washington, DC that is conveniently located in one building. We are committed to providing the best possible, most comprehensive, and most convenient care to our patients.
2150 Pennsylvania Avenue, NW Washington, DC 20037
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Glenkirk
http://www.glenkirk.org/
Glenkirk’s mission is to provide quality, lifetime supports and services which empower individuals with developmental disabilities to participate fully in all areas of community life. Glenkirk will advocate for and provide support and service based on the principles of informed choice, personal dignity, responsibility and individualization thereby enhancing the quality of life for all those whom Glenkirk serves.
3504 Commercial Avenue Northbrook, Illinois 60062
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Goleta Valley Cottage Hospital
http://www.cottagehealth.org/
This 122-bed acute care hospital was founded in 1966 to serve the growing community of Goleta Valley. Today, we admit more than 2,000 patients a year, and see more than 17,000 emergency visits. We are also recognized for our comprehensive Breast Care Center and our level IV trauma designation. We take great pride in fulfilling our goal of providing each patient with comfortable, personalized care.
400 W. Pueblo Street Santa Barbara, CA 93105
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Greater Baltimore Medical Center
http://www.gbmc.org/
GBMC includes Greater Baltimore Medical Center (GBMC), Central Maryland’s leading community hospital; Gilchrist Hospice Care, which provides comfort and care to patients with life-limiting illnesses; and the GBMC Foundation, which supports the GBMC mission by managing fundraising efforts. The 292-bed Medical Center, located on a beautiful suburban campus, serves nearly 22,000 inpatients annually as well as providing some 50,000 emergency room visits.
6701 North Charles Street Baltimore, MD 21204
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Green Door
http://www.greendoor.org/
Green Door is a community program that prepares women and men with schizophrenia, bipolar disorder, and other mental illnesses to work and live independently in the District of Columbia. Green Door is recognized nationally as one of the most successful programs for people with mental illness.
1221 Taylor Street, NW Washington DC 20011
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Hand In Hand Family Support
http://www.hihfs.org/
Our Purpose- Hand in Hand, Family Support helps families with…….Providing parent training, Meaningful parents involvement. Better communication between families and schools. Connecting families to TN Division of Special Education’s Regional Resource Center, Accessing State and National resources, Developing Special Education Family Advisory Committees, Identifying local needs and developing action plans
390 Kings Highway Brooklyn, NY 11223
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Hearing & Service Dogs of Minnesota
http://can-do-canines.org/
Hearing and Service Dogs of Minnesota has been helping people with disabilities through the use of assistance dogs since 1987. We work with individuals who are deaf, hard-of-hearing or physically disabled, pairing them with dogs specially trained to alert them to important sounds or assist them in the activities of daily living.
9440 Science Center Drive New Hope, MN 55428
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Helping Hands: Monkey Helpers for the Disabled, Inc.
http://www.monkeyhelpers.org
Helping Hands: Monkey Helpers for the Disabled, Inc. is a 501(c )3 non-profit organization that breeds, raises and trains capuchin monkeys as service animals for people living with paralysis due to spinal cord injury and mobility limiting disease. Established in 1979, Helping Hands provides service animals and lifetime support of each placement free of charge to recipients across the country.
541 Cambridge Street Boston, MA 02134
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Homestead Healthcare & Rehabilitation Center
https://www.homesteadhealthcareservices.com
Our nursing center provides a full range of medical services to treat the residents who live with us and the patients who come to us for short-term, episodic medical or rehabilitative care. The care we deliver includes daily nursing, pharmacy, dietary and social services for all residents and patients, as well as a range of specific services. We invite you to visit and see for yourself the face of quality care.
4735 South 54th Street Lincoln, NE 68516
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Hope Delivery Systems, Inc.
http://www.hopedeliverysystems.com
Hope Delivery Systems, Inc. is a social service organization providing private pay client service and consultation in the form of education, advocacy, and therapy to the community – specializing in families with children, and adults on the Autism Spectrum while simultaneously developing The Hope Delivery Systems Foundation for extended community outreach and development.
710 W. BUENA AVE. CHICAGO, IL 60613
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Horizons for the Blind
http://www.horizons-blind.org
A not-for-profit organization founded in 1977 to improve the quality of life for people who are blind or visually impaired by increasing acessibilty to culture, education, recreation and consumer information on a national basis.
125 Erick Street, A103 Crystal Lake, IL 60014
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Huntington’s Disease
http://hdsa.org/
Huntington’s Disease Society of America Help for Today. Hope for Tomorrow. HDSA Mission — The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington’s Disease and their families. To promote and support research and medical efforts to eradicate Huntington’s Disease. To assist people and families affected by Huntington’s Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington’s disease.
505 Eighth Avenue Suite 902 New York, NY 10018
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Idaho Commission For The Blind And Visually Impaired
http://www.icbvi.state.id.us/
Our mission is to empower persons who are blind or visually impaired by providing vocational rehabilitation training, skills training and educational opportunities to achieve self-fulfillment through quality employment and independent living; to serve as a resource to families and employers and to expand public awareness regarding the potential of all persons who are blind or visually impaired.
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Idaho Parent to Parent
http://www.familiestogether.org
Families Together is a nonprofit organization that believes family involvement and support are essential for individuals with disabilities to reach their potential and maintain a life that is secure and meaningful.
Moscow, ID 83843
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Illinios Valley Center For Independent Living
http://www.ivcil.com/
An organization made up of persons with disabilities who enlighten other persons with disabilities and their families about their rights; to empower persons with disabilities to assume maximum responsibility to realize their potentials; and to enrich the lives of all person in Bureau, LaSalle, Marshall, Putnam and Stark counties in Illinois, by working toward full inclusion of each individual in society. Services provided: Systems and Individual Advocacy, Peer Counseling, Independent Living Skills Training and Information and Referral. Programs offered: Deaf Services, Community Reintegration, Personal Assistant and Youth Services.
18 Gunia Drive LaSalle, IL 61301
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Illinois Branch of The International Dyslexia Association
http://www.readibida.org
We are dedicated to the study and remediation of dyslexia and to the support and encouragement of individuals with dyslexia and their families.
751 Roosevelt Road, Suite 116, Glen Ellyn, IL 60137-5905
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Imagine: Innovative Resources for Cognitive & Physical Challenges
http://www.imaginecolorado.org/
The mission of Imagine! is to create and offer innovative supports to people of all ages with cognitive, developmental, physical, and health related needs so they may live fulfilling lives of independence and quality in their homes and communities.
1400 Dixon Avenue, Lafayette, CO 80026-2790
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Indiana Parent Information Association
http://www.aboutspecialkids.org/
Welcome to About Special Kids (formerly the Indiana Parent Information Network)! About Special Kids is a “Parent to Parent” organization that works throughout the state of Indiana to answer questions and provide support, information and resources.
7172 GRAHAM ROAD SUITE 100 INDIANAPOLIS, IN 46250
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International Craniofacial Institute Family Forum
http://www.icifamilyforum.com
ICIFamilyForum.com is an online support group that helps patients and families deal with Craniofacial Syndromes and Conditions. It is a place where these special people can connect with one another and get support and advice.
11970 North Central Expressway, Suite 270, Dallas, Texas 75243
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International Mosaic Down Syndrome Association
http://www.imdsa.org
International Mosaic Down Syndrome Association is designed to provide support, information and research to individuals, families and professionals touched by mosaic Down syndrome.
Stow, MA 01775
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John Muir Medical Center
http://www.johnmuirhealth.com/
John Muir Health is proud to offer a wide array of inpatient clinical treatment services, advanced technologies, hospital and other medical facilities and equipment. We provide a broad spectrum of outpatient medical treatment services, medical research and community education and outreach programs and are dedicated to improving the health of the communities we serve.
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Kentucky Department for the Blind
http://www.blind.ky.gov/
The Kentucky Office for the Blind is a state government rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in hiring or accommodating workers who have a vision loss.
275 East Main Street Frankfort KY 40621
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Kids Health- Auditory Processing Disorder
http://www.kidshealth.com/parent/medical/ears/central_auditory.html
KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. Created by The Nemours Foundation’s Center for Children’s Health Media, the award-winning KidsHealth provides families with accurate, up-to-date, and jargon-free health information they can use. KidsHealth has been on the Web since 1995 — and has been accessed by about half a billion visitors. On a typical weekday, more than 500,000 visitors access KidsHealth’s reliable information.
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LD Online
http://www.ldonline.org/
LD OnLine seeks to help children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD.
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Learning Disabilities Association of America
http://www.ldanatl.org/
LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.
4156 Library Road Pittsburgh, PA 15234-1349
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Learning Disabilities, National Center for
http://www.ncld.org/
The site features content on implementing RTI from preschool to secondary; information for administrators, teachers, specialists, and families; unprecedented access to the nation’s top researchers and experienced implementers; as well as numerous networking opportunities to talk to colleagues nationwide.
32 Laight Street, Second Floor New York, NY 10013
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Madison Area Down Syndrome Society, Inc.
http://www.madss.org
MADSS is a 501 (c)3 non-profit organization affiliated with the National Down Syndrome Society, theNational Down Syndrome Congress and theDown Syndrome Affiliates in Action. We are parents, siblings and relatives of people with Down syndrome and community leaders who want to make a difference in the lives of individuals with Down syndrome in the greater Madison community.
Madison, WI 53744
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Maximum Potential Kids
5020 Mill Creek Ave Alpharetta, GA 30022
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Mesothelioma Cure
189 S. Orange Ave., Suite 1620 Orlando, FL 32801
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Mesothelioma Guide
https://www.mesotheliomaguide.com
Mesothelioma is a rare cancer caused by exposure to asbestos particles and affects the lining of the lungs, heart, and abdomen. The average latency period that mesothelioma takes to develop is anywhere from 20-40 years. Since this period is so long, mesothelioma usually affects older adults in their 60’s and 70’s. We specialize in connecting patients with doctors and treatment options that are best suited for them. Our information services and resources are 100% free to patients and family members.
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Miami Lighthouse for the Blind
http://www.miamilighthouse.com/
Miami Lighthouse has an experienced management team. Its CEO and other senior management have demonstrated outstanding professional acumen in their respective fields. This team is dedicated to offering the most effective state-of-the-art techniques and care to persons who are blind or severely visually impaired, as well as its new initiative in eye wellness.
601 SW 8th Avenue Miami, FL 33130
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Minnesota Pacer Center
http://www.pacer.org/
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
8161 Normandale Blvd., Bloomington, MN 55437
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Mitochondrial Disease, United Foundation
http://www.umdf.org/site/c.dnJEKLNqFoG/b.3041929/
The UMDF offers support to all sufferers of mitochondrial disorders regardless of diagnosis, suspected or confirmed. Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
8085 Saltsburg Road, Suite 201, Pittsburgh, PA 15239
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Mother Lode Rehabilitation Enterprises (MORE)
http://www.morerehab.org/
MORE is a private, non-profit organization dedicated to supporting persons with disabilities. MORE was established by a group of parents, educators, rehabilitation professionals and concerned citizens and first began serving adults with disabilities in 1973. The organization has grown from serving less than ten to now over 200 individuals on a daily basis. Our services include direct training in social, living and vocational skills. In addition, we assist the community in providing real life opportunities, including work, for those we serve.
399 Placerville Drive Placerville, CA 95667
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Mums National Parent to Parent Network (Mothers United for Moral Support)
http://www.netnet.net/mums
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. MUMS’ main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
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Muscular Dystophy Association
http://mda.org/
MDA is the world’s leading nonprofit health organization sponsoring research seeking the causes of and effective treatments for neuromuscular diseases. MDA research grants currently are supporting more than 250 projects worldwide.
222 S. Riverside Plaza, Suite 1500 Chicago, Illinois 60606
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NAMI Indiana
https://www.namiindiana.org
NAMI Indiana is a non-profit grassroots organization dedicated to improving the lives of people afflicted by serious and persistent mental illness. NAMI Indiana consists of families, consumers, and professionals. We are dedicated to helping families through a network of support, education, advocacy, and promotion of research.
3803 N. Fairfax Drive, Suite 100 Arlington, VA 22203
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NAMI of Wisconsin
http://www.namiwisconsin.org
The mission of NAMI Wisconsin is to improve the quality of life of people affected by mental illnesses and to promote recovery.
4233 W Beltline Hwy Madison, WI 53711
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NAMI-Utah (National Alliance for the Mentally Ill)
http://www.namiut.org/
NAMI Utah is Utah’s voice on mental illness. Our mission is to ensure dignity and improve the lives of those who suffer mental illness and their families through education, support, and advocacy.
1600 West 2200 South, Suite 202, West Valley City, Utah 84119
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National Alliance for the Mentally Ill
http://www.nami.org
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country.
3803 N. Fairfax Drive, Suite 100 Arlington, VA 22203
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National Alliance on Mental Illness
http://www.nami.org
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses. NAMI members and friends work to fulfill our mission by providing support, education, and advocacy.
3803 N. Fairfax Drive, Suite 100 Arlington, VA 22203
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National Aphasia Association
http://www.aphasia.org/
The NAA’s mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment.
Scarsdale, NY 10583
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National Association for Continence
http://www.nafc.org
National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders. NAFC’s purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence. NAFC sends out a free electronic newsletter and prints educational materials, including pamphlets,a Resource Guide, and booklets. These booklets are disease-specific, covering continence care of people living with Spinal Cord Injury, Parkinson’s Disease, and Multiple Sclerosis. Visit our web site to find out more: www.nafc.org.
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National Association of Private Special Education Centers
http://www.napsec.org/
Are you looking for an appropriate private special education placement for your child or client? Try NAPSEC’s free referral service! NAPSEC offers this service to parents and professionals who are looking for a placement for their child or client. Call (202) 408-3338 or e-mail napsec@aol.com
601 Pennsylvania Avenue, NW Suite 900 - South Building Washington, DC 20004
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National Ataxia Foundation
http://www.ataxia.org
The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
2600 Fernbrook Lane Suite 119 Minneapolis, MN 55447
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National Council for Community Behavioral Healthcare
http://www.thenationalcouncil.org/
National Council members serve nearly six million adults, children, and families in communities across America. We offer a vital safety net to some of the poorest and most vulnerable in our society — Medicaid beneficiaries, the uninsured, the destitute and homeless, children in foster care, older adults, those with HIV/AIDS, veterans, and those in our criminal and juvenile justice systems. The people our members treat live with their families or alone; some are in hospitals, jails, or juvenile detention facilities and others are in residential programs, foster care, or group homes.
1400 K Street NW, Suite 400 Washington DC, 20005
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National Down Syndrome Congress
http://www.ndsccenter.org
The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
30 Mansell Court, Suite 108 Roswell, GA 30076
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National Family Caregivers Association
http://www.thefamilycaregiver.org
America’s family caregivers are family, friends, partners, and neighbors. To better understand the experience and the meaning of being a family caregiver go to The National Family Caregiver Story Project. The NFCA Story Project is a collection of first-person accounts by family caregivers. It is the gateway to becoming part of a growing group of family caregivers who have reached out to share their thoughts, feelings and find solace in the words of others.
1130 Connecticut Ave, NW Suite 300 Washington, DC 20036
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National Institute of Arthritis & Musculoskeltal & Skin Diseases
http://www.niams.nih.gov
The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
Bethesda, MD 20892-3675
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National Institute of Mental Health
http://www.nimh.nih.gov/
The National Institute of Mental Health (NIMH) is the largest scientific organization in the world dedicated to research focused on the understanding, treatment, and prevention of mental disorders and the promotion of mental health. NIMH supports innovative science that will profoundly transform the diagnosis, treatment, and prevention of mental disorders, paving the way for a cure. The NIMH mission is to reduce the burden of mental illness and behavioral disorders through research on mind, brain, and behavior.
Bethesda, MD 20892-9663
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National Organization for Disorders of the Corpus Callosum
http://www.nodcc.org
The NODCC is a nonprofit organization established in 2002 by professionals, parents and individuals affected by a disorder of the corpus callosum. Our mission is to enhance the quality of life and promote opportunities for individuals affected by the disorder. We work to raise the profile, understanding and acceptance of these disorders through education, advocacy and networking. We disseminate information and newsletters, host family conferences and facilitate family networking through our family partnership programs.
PMB 363, 18032-C Lemon Dr. Yorba Linda, California 92886
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National Organization for Rare Diseases (NORD)
http://rarediseases.org/
Mission Statement: The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
55 Kenosia Avenue Danbury, CT 06810
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National Research & Training Center on Blindness Mississippi State University
http://www.blind.msstate.edu/
The mission of the RRTC is to enhance employment and independent living outcomes for individuals who are blind or visually impaired through research, training, education, and dissemination
108 Herbert South, Room 150 Industrial Education Department Building, Mississippi State University Mississippi State, MS 39762
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National Resource Center on ADHD
http://www.help4adhd.org
The National Resource Center on AD/HD: A Program of CHADD is the nation’s clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD). Funded through a cooperative agreement with the Centers for Disease Control and Prevention, the NRC provides information on this disorder which affects how millions of children and adults function on a daily basis. The NRC was created to meet the information needs of professionals and the general public.
4601 Presidents Drive, Suite 300 Lanham, MD 20706
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NCI Affiliates
http://www.nciaffiliates.org/
We at NCI Affiliates are dedicated to providing services that encourage and support individuals with disabilities, so that they may successfully achieve their personal and professional goals. To create caring and supportive pathway to success for people with disabilities so that they may build upon their individual strengths and gain the confidence they need to lead fulfilling and productive lives.
496 Linne Road Paso Robles, CA 93446
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New Jersey Commission for the Blind and Visually Impaired
http://www.state.nj.us/humanservices/cbvi/
Offers Services for the totally blind, legally blind, visually impaired, deaf blind and more with eye health, counseling, educational, recreational, computer training, amd vocational services.
Newark, NJ 07101-47017
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New Jersey Statewide Parent to Parent
http://www.spannj.org/support
SPAN provides support to parents/caregivers through: Offering emotional support and information to parents through a bilingual, multi-racial staff of parents of children with and without disabilities.Acting as a valuable resource to families, with targeted support to underserved families in Abbott districts and rural communities. Offering assistance in learning the necessary skills to help parents face the challenges of raising their child. Building a statewide network of parents supporting families of children with developmental delays, disabilities, and special health needs. Training parents of children with disabilities to help other parents.
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Noble
http://www.mynoblelife.org
Founded in 1953, Noble expands opportunities and enhances the quality of life for people with disabilities and their families through individualized services. We serve approximately 1,600 children, adults and families in Central and Eastern Indiana annually.
7701 East 21st Street Indianapolis, IN 46219
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Nonverbal Learning Disorder
http://www.nldline.com/
Educating the care givers and assciates of individuals with NLD is the prime goal of this web site.
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Nonverbal Learning Disorder Association
http://www.nlda.org/
NLDA is a non-profit corporation dedicated to research, education, and advocacy for nonverbal learning disorders.
507 Hopmeadow St. Simsbury, CT. 06070
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North Carolina Division of Services for the Blind
http://www.dhhs.state.nc.us/dsb/
Since 1935, the mission of the North Carolina Division of Services for the Blind has been to enable people who are blind or visually impaired to reach their goals of independence and employment.
2001 Mail Service Center Raleigh, NC 27699-2001
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Northpointe Resources Inc.
http://www.northpointeresources.org/
Northpointe Resources, Inc. is a not-for-profit, publicly-funded provider of developmental disability and behavioral health services. Founded in 1953 by a group of concerned parents with a desire for quality programming, Northpointe has continued to grow this vision through our belief in the power of people and community.
3441 Sheridan Rd, Zion, IL 60099
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Ohio Comission of Rehabilitation Agency
http://www.mih.ohio.gov/
The Commission is interested in funding projects which are innovative, culturally sensitive and specific in their approach toward reduction of the incidence and severity of those diseases or conditions which are responsible for excess morbidity and mortality in minority populations.
77 S. High Street, 18th Floor Columbus, Ohio 43215
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Oklahoma Family Network, Inc.
http://www.oklahomafamilynetwork.org
Oklahoma’s statewide nonprofit mentorship and resource referral network, empowering families who are raising children with special health care or disability needs.
800 NE 15TH Street, Suite 316 Oklahoma City, OK 73104
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Ontario Federation for Cerebral Palsy
http://www.ofcp.ca
Ontario Federation for Cerebral Palsy is a non-profit, charitable organization which strives to address the changing needs of people in Ontario with cerebral palsy by way of the following core activities. (1) Assisting people with cerebral palsy and their families with education, funding for equipment, planning for the future, and accessing community services. (2) Funding assistance for Member Groups who provide services to assist people with cerebral palsy and other physical disabilities. (3) Supporting and funding the most advanced and highest quality cerebral palsy medical research. (4) Advocating and promoting awareness, understanding, and acceptance of persons with cerebral palsy.
1630 Lawrence Ave W, Toronto, ON M6L, Canada
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Pacific Northwest Angelman Syndrome Foundation
http://www.pnwasf.org
Pacific Northwest Angelman Syndrome Foundation was formed in 1994 for the purposes of increasing public awareness of Angelman Syndrome (AS) and serving as a resource and source of support for individuals with AS and their families in the states of Washington, Oregon and Alaska. The organization is comprised of elected officers and directors, who serve on a strictly volunteer basis, and the membership is open to interested individuals, families and professionals. PNWASF is associated with the national organization, Angelman Syndrome Foundation (ASF) and has contacts with various other international AS organizations.
13036 SE Kent-Kangley Road, #375 Kent, WA 98031
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Parent to Parent of Colorado
http://www.p2p-co.org
We are a non-profit organization committed to quality Parent to Parent support across Colorado. We offer encouragement to each other on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking support with a support parent.
801 Yosemite Street Denver, CO 80230
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Parent to Parent of Connecticut
http://www.pathct.org
PATH was formed in 1986 as an information and support network of families who have experienced a difficult pregnancy, premature birth, the loss of a young child or who have a child with medical needs, developmental delays and/or disabilities.
Northford, CT 06472
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Parent to Parent of Maine
http://www.mpf.org
The Maine Parent Federation, Inc. is a statewide private non-profit organization that provides information, advocacy, education, and training to parents and professionals to benefit all children. We promote individual aspirations and community inclusion for people with disabilities. In existence since 1984, MPF is physically located in Augusta Maine, but assistance is available on a statewide basis.
Augusta, ME 04338
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Parent to Parent of New Hampshire
http://www.p2pnh.org
Learning that your child has special medical needs or a disability can be a traumatic experience. As a parent you may have questions and concerns about dealing with your child’s needs and your own feelings. You are not alone. We have been there.
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Parent to Parent of New York State
http://www.parenttoparentnys.org
Parent to Parent of NYS is a statewide not for profit organization with a mission to support and connect families of individuals with special needs. There are 9 offices located across NY, staffed by Regional Coordinators, who are parents or close relatives of individuals with special needs.
500 Balltown Road Schenectady, NY 12304
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Parent to Parent of Pennsylvania
http://www.parenttoparent.org
Parent to Parent of Pnnsylvania matches parents and family members of children and adults with disabilities or special needs, to supporting parents, on a one on one basis, according to condition or concerns.
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Parent to Parent of Virginia
https://ptpofva.wordpress.com/
Parent to Parent contact can help families regain their sense of strength, of purpose and of independence. Through its network of volunteers, and all of the staff of Parent to Parent of Virginia have a family member with disabilities and/or have a college degree in the field of disabilities.
Richmond, VA 23231
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Parent to Parent of Wisconsin
Milwaukee, WI 53226
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Parents Helping Parents
http://www.php.com
Parents Helping Parents (PHP) provides lifetime guidance, supports and services to families of children with any special need and the professionals who serve them.
1400 Parkmoor Avenue Suite 100 San Jose, CA 95126
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Parents in Toto Autism Resource Center
http://www.parentsintoto.org
Located in Pennsylvania, our center provides supports and products related to autism spectrum disorders and related conditions generally not available elsewhere in one location. Our vision is to create a comfortable, welcoming environment where parents, diagnosed individuals, families, and friends can gather socially, educationally, and spiritually without judgment or prejudice. Please consult our website for more information.
143 S. Main Street, Zelienople PA 16063
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Parents Reaching Out
http://www.parentsreachingout.org
Parents Reaching Out is a network of programs woven together to meet the ever changing needs of New Mexico families. We offer workshops and materials designed for families. We provide opportunities for connecting with other parents and resources in communities across our state. Our mission guides what we do to enhance outcomes for children and their families and build strong partnerships with the systems that touch their lives.
1920 Columbia Dr SE Albuquerque, NM 87106
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People Services
http://www.peopleservices.org/
The mission of People Services, Inc., is to serve as the local community agency, providing the delivery of quality services for people with disabilities. Our purpose it to improve the quality of life for people with disabilities by providing services that promote life exploration and informed choices. To offer an array of service options that are designed to meet the needs, wants and desires of the person served.
4195 Lakeshore Blvd. Lakeport CA. 95453
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PKU Organization of Illinois
http://www.pkuil.org
The understanding of the developments with PKU and coping with the issues of the diet are critical for our families. On a quarterly basis, we publish a newsletter, The PKU Press, which serves as a forum for the exchange of new information, ideas, recipes and encouragement. Additionally, the Organization sponsors PKU cooking schools to better enable families to offer more variety and flavor while complying with the diet. The PKU Organization of Illinois is committed to the support of appropriate research initiatives to better understand PKU and eventually find a cure. Research initiative such as the Maternal PKU Project and Gene Therapy projects are supported and followed by the Organization.
Palatine, IL 60078
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Porterville Sheltered Workshop
194 West Poplar Avenue Porterville, CA 93257
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Prader-willi Syndrome Association
http://www.pwsausa.org/
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members.
8588 Potter Park Drive, Suite 500 Sarasota, FL 34238
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Propionic Acidemia Foundation
http://www.pafoundation.com
The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.
1963 McCraren Rd. Highland Park, IL 60035
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Queens Special Education Parent Center (QSEPC)
http://www.uwsofny.org/info_page.php?pageid=11
The Mission of UWS/QSEPC is to promote in the community and school system attitudes and practices that are inclusive to persons with disabilities, who are culturally and linguistically responsive to diversity. Ensuring that parents are knowledgeable of their rights and responsibilities under the Individual with Disability Education Act “(IDEA”) and other statues and regulations.
91 Harrison Ave, Brooklyn, NY 11206
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Rehabilitation Associates
http://www.rehabassociatesinc.com/
Since our inception in 1979, our mission has remained consistent: to enhance the quality of life for all people who require our services. We want everyone to be able to reach his or her maximum potential in all aspects of life.
1931 Black Rock Tpk. Fairfield, CT 06825
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ResCare Premier Texas
http://www.rescarepremiertexas.com
ResCare Premier Texas is a unique group of interrelated treatment facilities that together form a comprehensive continuum of care. We offer a variety of programs and services to address the needs of individuals with brain injury and other neurological impairments. ResCare Premier Texas is a continuum of interrelated treatment programs dedicated to individuals with acquired brain injury and other neurological disorders. Our programs specialize in neurobehavioral rehabilitation, residential rehabilitation and long-term support services. Since 1978, ResCare Premier Texas has served over 1500 individuals with brain injury and other neurological disorders from across the United States, Canada and Guam.
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Resource Center
http://www.tgen.org
Translational genomics research is a relatively new field employing innovative advances arising from the Human Genome Project and applying them to the development of diagnostics, prognostics and therapies for cancer, neurological disorders, diabetes and other complex diseases.
445 N. Fifth Street, Phoenix, AZ 85004
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Resources for Community Living
http://www.rcl2bindependent.org
Resources for Community Living (RCL) offers adults with developmental and/or physical disabilities opportunities to achieve greater self-esteem, dignity and participation in all aspects of community life through affordable housing options, individualized skill instruction and necessary support services. RCL utilizes funds to offer innovative services targeted at increasing the independence as well as the quality of life with services that may include affordable housing, homeownership programs, individualized support programs, social groups, vocational services, and rent subsidy programs. To offer adults with developmental and/or physical disabilities opportunities to achieve greater self-esteem, dignity and participation in all aspects of community life through affordable housing options, individualized skill instruction and necessary support services.
4300 Lincoln Ave, Suite K Rolling Meadows, IL 60008
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Rimland Services NFP
http://www.rimland.org/
Since 1971 Rimland Services NFP has pioneered successful, community-based programs that support individuals with autism as they achieve their full human potential, living in the community of their choice to the maximum extent possible. Rimland has been at the forefront in lowering walls that separate individuals with autism. Over the years, Rimland has successfully established community living options for adults with autism in Des Plaines, Evanston, Highland Park, Maywood, and Mount Prospect.
1265 Hartrey Avenue, Evanston, IL 60202
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Roads To Freedom Center for Independent Living of N. Central PA
http://www.cilncp.org
We are a non-profit organization and provide services to people with all disabilities and their families, via Peer Counseling, Life Skills Training, Attendant Care Services, Nursing Home Transitions, IM4Q (that reaches out to people with cognitive disabilities) Information and Referral and cover the following counties in North Central Pennsylvania: Lycoming, Clinton, Centre, Snyder, Union, Northumberland, Montour, Tioga, Sullivan, Clearfield, McKean, Bradford, Columbia, Jefferson, Elk, Cameron, Potter, and Susquehanna.
24 E. 3rd Street Williamsport, PA 17701
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Rocky Mountain Disability and Business Technical Assistance Center
https://rockymountainada.org
The DBTAC Rocky Mountain ADA Center provides information on the Americans with Disabilities Act (ADA) to Colorado, Utah, Montana, Wyoming, North Dakota and South Dakota.
3630 Sinton Road, Suite 103 Colorado Springs, CO 80907
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Rocky Mountain MS Center
http://www.mscenter.org
The mission of the Rocky Mountain MS Center is to improve the lives of people with Multiple Sclerosis (MS) and their families through care, support, education and research. We are a patient centered organization striving to change how we think about and treat MS. For our patients and their families we incorporate wellness, exercise, diet and stress management, and supportive services in addition to the most progressive medical care.
8845 Wagner Street Westminster, CO 80031
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Rocky Mountain Resource & Training Institute
https://www.rmphtc.org
The DBTAC: Rocky Mountain ADA Center is one of 10 regional centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR). Our mission is to provide information on the Americans with Disabilities Act (ADA) to individuals and organizations. Our core services include: Materials dissemination, Technical assistance on the ADA, Training, Referrals to experts, and Research.
3630 Sinton Road, Suite 103 Colorado Springs, CO 80907
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Santa Clara Valley Blind Center, Inc.
http://www.visionbeyondsight.org/
For more than 50 years, SCVBC has provided support to individuals facing the uncertainties, fears, and challenges related to uncorrectable vision loss. We are a community-based organization dedicated to increasing the confidence, independence, and quality of life of the blind and visually impaired. SCVBC tackles complex vision loss issues comprehensively through rehabilitative, educational, and recreational services that ensure the long-term independence and empowerment of our clients.
101 North Bascom Avenue San Jose, CA 95128
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Schizophrenia.com
http://www.schizophrenia.com
Started in 1995, Schizophrenia.com is a leading non-profit web community dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia.
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Sensory Processing Disorder Resource Center
http://www.sensory-processing-disorder.com/
This is now one of the top online resources for parents, teachers, children, and other professionals who interact with children, about this often misunderstood and misdiagnosed NEUROLOGICAL DISORDER, otherwise known as a Sensory Processing Disorder.
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Sensory Processing Disorder, SENSORIZE
http://www.sensorize.com/
Toys, Products, Strategies, and Advice for dealing with Sensory Processing and Sensory Integration Issues.
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Smith-Magenis Syndrome, Parents and Researchers interested in- (PRISMS)
http://www.prisms.org/
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS) and fostering partnerships with professionals to increase awareness and understanding of SMS.
21800 Town Center Plaza, Suite #266A-633, Sterling, VA 20164
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Society for The Blind
http://www.societyfortheblind.org/
Society for the Blind serves thousands of blind and visually impaired people throughout the Sacramento area and surrounding counties. We are the only center in this region that trains blind and low vision people on Braille, life skills, computers and job skills. Our mission is to empower individuals who are blind or have low vision to live productively and independently by building confidence through training, tools and mentorship.
1238 S Street Sacramento, CA 95811
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South Bay Vocational Center
http://www.sbvc1.com/
South Bay Vocational Center is a 501(c)3 not-for-profit organization that was founded in 1952. Our mission is to provide vocational training, advocacy, counseling, and opportunities for individuals with disabilities.
20706 Main Street, Carson, CA. 90745
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South Dakota Parent Connection
http://www.sdparent.org
South Dakota Parent Connection, Inc., is a Parent Training and Information Center. We are a non-profit organization formed by parents, educators, and services personnel to provide information and training to parents of children with disabilities or special health care needs throughout the state of South Dakota.
3701 West 49th Street, Ste. 102, Sioux Falls, SD 57106
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Southeastern Rett Syndrome Alliance
http://www.serett.org
The Southeastern Rett Syndrome Alliance (SRSA) is a grassroots organization, established in January 2007, to provide a network of information and emotional support for families and caregivers of Rett Syndrome (RTT) children and adults; and to increase public awareness of Rett Syndrome. The southeastern location of the organization inspired the lineage to RTT families residing in the states of Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee. SRSA serves as an International Rett Syndrome Foundation regional representative, to provide direct support and advocacy at the local level. SRSA‘s purpose is to develop understanding and awareness of Rett Syndrome; to promote the general welfare of those with Rett Syndrome; to assist in indentifying persons with Rett Syndrome; to support families in coping with the disorder, and conduct activities aimed at prevention, treatment and eradication of Rett Syndrome.
7564 Windsong Dr Trussville AL 35173-1898
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Southern Arizona Network for Down Syndrome
http://www.sandsaz.org
Southern Arizona Network for Down Syndrome seeks to inspire, educate and support individuals, families and communities living with Down syndrome through out Southern Arizona. We belive that every individual with Down syndrome should be given the opportunity to reach their highest potential and live fulfilling and productive lives within our community.
Tucson, AZ 85731
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Southwestern Blind Rehabilitation Center
http://www.rehab.va.gov/blindrehab/
The mission of Blind Rehabilitation Service is to coordinate a healthcare service delivery system that provides a continuum of care for blinded veterans extending from their home environment to the local VA facility and to the appropriate rehabilitation setting. These services include adjustment to blindness counseling, patient and family education, benefits analysis, comprehensive residential inpatient training, outpatient rehabilitation services, the provision of assistive technology, and research.
3601 South Sixth Avenue Tucson, AZ 85723
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Speech Communication Assistance By Telephone, Inc.
http://www.speechtospeech.org
Do you have a speech disability and live in the USA (including the Virgin Islands and Puerto Rico)? If so, you can now use a free telephone service 24 hours a day. “Speech to Speech” (STS), provides communication assistants (CAs) for people with difficulty being understood by the public by telephone. Many STS users have Parkinson’s disease, cerebral palsy, ALS, multiple sclerosis, muscular dystrophy or stroke. Other users stutter or have had a laryngectomy.
515 P Street #207 Sacramento, California 95814
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Speech Disorder Resources for College Students
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Spina Bifida Association of America
http://spinabifidaassociation.org/
The Spina Bifida Association of America is to promote the prevention of Spina Bifida and to enhance the lives of all affected. The association was founded in 1973 to address the specific needs of the Spina Bifida community and serves as the national rep of almost 60 chapters.
1600 Wilson Blvd, Suite 800 Arlington, VA 22209
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Spina Bifida Association of Arizona
http://www.sbaaz.org
The Spina Bifida Assoc of Arizona serves people all over the state of Arizona. We provide programs such a Support Groups, Housing, Urinary Care Supplies, Lunch as Clinic, Holiday Parties, free bike events, welcome baby packets and soon to come a sleep over summer camp. SBAAZ’s mission is to promote the prevention of spina bifida abd enhance the lives of all affected. We do this through such programs as FSACT (Folic Acid and Spina Bifida Awarness Culinary Training), housing, free hand cycle events, support group, Welcome Baby program, Holiday Party, and so many more. Soon to come will be a sleep over Camp to open in 2011 for those with spina bifida in Arizona.
1001 East Fairmount Avenue Phoenix, Arizona 85014
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Spina Bifida Association of Greater New England
http://sbagreaterne.org/
The Spina Bifida Association of Massachusetts is dedicated to helping individuals with spina bifida in the Bay State achieve their maximum potential. A member of the Spina Bifida Association of America, the sbaMass was founded in 1973 to promote the prevention of spina bifida and to enhance the lives of all affected by it.
219 East Main St. Ste 100B Milford, MA 01757
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Spina Bifida Association of Illinois
http://www.sbail.org/
The Spina Bifida Association of Illinois® (SBA of IL) is a non-profit organization dedicated to improving the quality of life of people with Spina Bifida through direct services, information, referral, research, and public awareness. The SBA of IL is a 501(c)(3) nonprofit organization that was founded in 1969.
2211 N Oak Park Avenue, Chicago, IL 60707
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Spina Bifida Association of Iowa
http://www.spinabifidaia.com
The Mission of the Spina Bifida Association of Iowa is to promote the prevention of spina bifida and to enhance the lives of all affected.
8525 Douglas Avenue Suite 39 Urbandale, IA 50322
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Spina Bifida Association of Kentucky
http://www.sbak.org
The Spina Bifida Association of Kentucky (SBAK) began as a grassroots effort by parents and professionals concerned and affected by spina bifida. Since its beginning in 1982, the SBAK has offered services free of charge. Spina Bifida Association of Kentucky (SBAK) is a non-profit organization classified as a 501c3 and the Federal Tax Exempt number is 31-1081176. SBAK is a state chapter of the national organization Spina Bifida Association. www.sbaa.org Our Mission is to promote the prevention of spina bifida and to enhance the lives of all affected. We provide services for children with spina bifida, their families and adults with spina bifida.
982 Eastern Parkway, Box 18 Louisville, KY 40217
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Spina Bifida Association of Minnesota
http://www.sbamn.com
The Spina Bifida Association of Minnesota is a non-profit organization made up of volunteers. Our purpose is to increase awareness about Spina Bifida and enhance the lives of those affected.
Minneapolis, MN 55429
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St Jude Brain Injury Network
http://www.tbioc.org/
The St. Jude Brain Injury Network is a non-profit program that provides long-term planning and support services for adults 18 years and older living in Orange County who have experienced an external force traumatic brain injury (TBI). The network is grant-funded by the California State Department of Mental Health.
130 W. Bastanchury Rd. Fullerton, CA 92835
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St. Lawrence Rehabilitation Center
http://www.slrc.org/
Helping Our Patients Return to a Full & Active Life- We are a private, not-for-profit hospital sponsored by the Roman Catholic Diocese of Trenton, dedicated to meeting the physical, emotional, and spiritual needs of our patients. While we are receptive to changes in our community and the healthcare environment, our goal has always been and continues to be providing excellence in rehabilitative services.
2381 Lawrenceville Road Lawrenceville, NJ 08648
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Stand Among Friends Center
http://www.standamongfriends.org
Stand Among Friends is a 501(C)(3) non-profit organization that promotes opportunities for people with neurological disabilities to live a life without limits and experience the highest degree of independence and success in their communities. Stand Among Friends provides service and support through its comprehensive Web site, television programming, video resources and through the development of models and research design to improve quality of life daily.
777 Glades Road Bldg. NU84, Suite 120 Boca Raton, FL 33431
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Support for Families of Children with Disabilities
http://www.supportforfamilies.org
Is a parent-run San Francisco-based nonprofit organization founded in 1982. We support families of children with any kind of disability or special health care need as they face challenges.
1663 Mission Street 7th Floor San Francisco, CA 94103
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Talking About Curing Autism – TACA
http://talkaboutcuringautism.org/
Talk About Curing Autism (TACA) provides information, resources, and support to families affected by autism. For families who have just received the autism diagnosis, TACA aims to speed up the cycle time from the autism diagnosis to effective treatments. TACA helps to strengthen the autism community by connecting families and the professionals who can help them, allowing them to share stories and information to help people with autism be the best they can be.
2222 Martin St., Suite 140 Irvine, CA 92612
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Tennessee Adult Brothers and Sisters
http://kc.vanderbilt.edu/kennedy/community/adultsiblings.html
Through the Kennedy Center at Vanderbilt University in Nashville, TABS is a resource for adult brothers and sisters of those with Special Needs. We are focused on identifying the concerns and issues for this unique group of individuals and on providing resources to address those questions. As parents age, siblings often become more involved in care and planning and have both a desire and need to understand what’s involved and what resources are available. -Join TABS to stay informed about activities related to issues that affect adult brothers and sisters -Meet other siblings in Tennessee.
110 Magnolia Circle Nashville, TN 37203
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The Arc of Bergen & Passaic Counties
http://www.arcbergenpassaic.org/
The Arc of Bergen and Passaic Counties is a private not-for profit organization of families, self advocates, professionals and community members dedicated to assisting individuals with developmental disabilities and their families.
223 Moore Street Hackensack, NJ 07601
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The Arc of Gloucester County
http://www.thearcgloucester.org/
developmental disabilities and their families through education, advocacy and direct services. The vision of The Arc Gloucester is to enhance the quality of life for individuals with intellectual and related developmental disabilities thereby resulting in improved quality of life for the families.
1555 Gateway Blvd. West Deptford, NJ 08096
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The Arc of Racine
http://www.thearcofracine.org/
The Arc of Racine’s mission is to advocate for and provide information and services to improve lives. Our vision is that people with disabilities will exercise their civil rights by being fully integrated and included in the community with lives that are as independent, productive and self -determined as possible.
6214 Washington Ave, Suite C-9, Racine, WI 53406
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The Arc of Texas
https://www.thearcoftexas.org/
Founded in 1950 by a group of parents of children with intellectual and developmental disabilities, The Arc of Texas has been instrumental in the creation of virtually every program, service, right, and benefit that is now available to more than half a million Texans with intellectual and developmental disabilities. Today, The Arc of Texas continues to advocate for the human rights and self-determination of people with intellectual and developmental disabilities in all aspects of society.
12700 Hillcrest Road, Suite 200 Dallas, TX 75230
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The Arc of The United States
http://www.thearc.org
The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support for families and individuals and includes over 140,000 members affiliated through more than 850 state and local chapters across the nation. The Arc is devoted to promoting and improving supports and services for all people with intellectual and developmental disabilities.
1825 K Street, NW, Suite 1200, Washington, DC 20006
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The Autism Project
http://theautismproject.org
The Autism Project provides support and training for educators and families who have children with Autism Spectrum Disorders. Social Skills groups for ages 4 through adults, help teach our children how to navigate the social world.
1516 Atwood Avenue Johnston, RI 02919
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The Daniel Jordan Fiddle Foundation
http://www.djfiddlefoundation.org
The Daniel Jordan Fiddle Foundation is the national autism organization focused exclusively on adults living with Autism Spectrum Disorders(ASD). The mission is to develop and fund The Daniel Jordan Fiddle Foundation Signature Programs that address critical needs and gaps in services and supports for the diverse population of adults living with ASD.
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The National Alliance on Mental Illness
http://www.nami.org/
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses.
3803 N. Fairfax Drive, Suite 100 Arlington, VA 22203
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The National Down Syndrome Society
http://www1.ndss.org/
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.
666 Broadway, 8th Floor, New York, New York, 10012
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The Parent Care Solution
http://www.parentcaresolution.com
How do you care for your aging parents without financially or emotionally destroying your family? Fortunately there is a solution. The Parent Care Solutionª, can help today’s families prepare for tomorrow, preserving family wealth and even more important, preserving family relationships. The Parent Care Solution is a new tool for today. It is a proactive, caring process involving parents and their adult children specifically created to initiate this vital dialog and facilitate communication. Parent Care Specialistsª work with all family members in unison to develop and implement a total plan to strategically, lovingly solve the problem of caring for aging parents without financially or emotionally destroying the family. The Parent Care Solution helps preserve wealth and family relationships. It is an innovative solution to a serious problem. It effectively defuses the family relationship time bomb allowing you to leave… A Legacy of love.
1165 Chuck Dawley Blvd Suite 200 Mount Pleasant SC 29464
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The Simon Foundation for Continence
http://www.simonfoundation.org/index.html
The Simon Foundation for Continence is a non-profit 501(c)3 corporation dedicated to: Bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. The Simon Foundation is known throughout the world for its innovative educational projects and tireless efforts on behalf of people with loss of bladder and bowel control. Toll free Information Number: 1-800-23Simon (237-4666) or write us at info@simonfoundation.org.
Wilmette, Illinois 60091
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Tucson Association for the Blind and Visually Imparied
http://www.saavi.us/
SAAVI is a non-profit agency serving visually impaired adults in Southern Arizona since 1964. By promoting independence, SAAVI enhances the quality of life for those with vision loss through programs offering services, skills training and social and recreational opportunities.
3767 East Grant Road Tucson, AZ 85716
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Turner Syndrome Foundation, Inc.
http://TurnerSyndromeFoundation.org
Turner syndrome affects 1 in 2000 females. We can help. The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop educational programs which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome. Toll-free hotline: 800-594-4585.
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730
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UCP of Northeastern Pennsylvania
http://www.ucpnepa.org
UCP of Northeastern Pennsylvania provides an array of services for children and adults with various disabilities. Although we have expertise in the field of cerebral palsy, over 75% of the people receiving our services have disabilities other than cerebral palsy.
425 Wyoming Avenue Scranton, PA 18503
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United Cerebral Palsy
http://www.ucp.org/
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.
1825 K Street NW Suite 600 Washington, DC 20006
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United Cerebral Palsy Association Greater Chicagoland
http://www.ucpnet.org/
The mission of United Cerebral Palsy is to advance the independence of people with disabilities, enrich their lives, provide support to their families, and advocate for their inclusion in every facet of community life.
3100 S Central Ave, Cicero, IL 60804
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United Cerebral Palsy Association of Hawaii
http://www.ucpahi.org/
UCPA of Hawaii is part of a nationwide network of approximately 153 state and local affiliates which provide services, conduct public and professional education programs and support research in cerebral palsy. The local UCPA has been providing services in the islands since 1959.
414 Kuwili Street, Suite 105 Honolulu, Hawaii 96817-5362
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United Cerebral Palsy Associations of New Jersey
https://ucp.org
Cerebral Palsy of New Jersey is dedicated to changing lives and bringing independence to people with all types of disabilities. We believe in the innate potential in each person to achieve success. While you may see a person with a disability, Cerebral Palsy of New Jersey sees a citizen, a friend, a taxpayer, a voter, a lawyer, a parent, a child – a person with unlimited potential.
1005 Whitehead Road Extension, Suite 1, Ewing, New Jersey 08638
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United Cerebral Palsy of Mobile
http://www.ucpmobile.org/
UCP of Mobile is dedicated to advancing the independence of people with disabilities. UCP offers a wide range of services for people of all ages, starting with one of our early intervention programs and continuing through adulthood with our supported employment program.
3058 Dauphin Square Connector Mobile, AL 3660
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United Cerebral Palsy of Orange County
http://www.ucp-oc.org/UCP/
Founded in the early 1950s by parents and volunteers to serve the needs of children with cerebral palsy, UCP of Orange County now serves children with all types of developmental disabilities and provides vital support to families. Each year, we provide direct services to more than 3,800 people, with disabilities including cerebral palsy, autism, Down syndrome muscular dystrophy and other developmental disabilities. Our staff of highly trained professionals includes leaders in inclusion, early intervention, advocacy and community resources, providing services and materials in English, Spanish and Vietnamese.
980 Roosevelt, Suite 100 Irvine, CA 92620
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United Spinal Assocation
https://unitedspinal.org/
United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. United Spinal transforms the lives of people with SCI/D by:
- advocating for greater access to healthcare, mobility equipment, public transportation, rehabilitation, community services and supports, and the built environment
- Empowering our members with resources, one-on-one assistance, and peer support
- Promoting independence through employment opportunities and community integration of wheelchair users into mainstream society
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United Supports for Autism
http://www.unitedsupportsforautism.com
Dr. Brian Goldberg is a licensed psychologist and a board certified behavior analyst. He is the owner of United Supports for Autism, which consists of multiple professions. While United Supports for Autism specializes in autism spectrum disorders, the practice also provides services for individuals with other diagnoses, such as ADHD, oppositional defiant disorder, and anxiety disorders. United Supports for Autism also provides services for individuals who do not have a diagnosis, but exhibit problem behaviors (e.g., aggression, noncompliance, disruptions, tantrums, etc.) and/or developmental skill deficits (e.g., toileting, sleeping, feeding, self care, etc.).
283 Commack Road, Suite 205 Commack, NY 11725
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Upstate NY Families for Effective Autism Treatment
180 Linden Oaks Drive Rochester, NY 14625
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US Autism & Asperger Association
http://www.usautism.org/
The USAAA mission is to enhance the quality of life of individuals and their families/caregivers touched by autism spectrum disorders by providing educational and family support through conferences/seminars, published and electronic mediums, and research.
12180 S. 300 E. #532 Draper, UT 84020-0532
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Utah Birth Defect Network
http://hlunix.hl.state.ut.us/birthdefect/
The Utah Birth Defect Network (UBDN) seeks to prevent birth defects and secondary disabilities by monitoring occurrence, conducting research, providing education and outreach. We hope that the information on this Web site will meet your needs.
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Vanderbilt Kennedy Center for Excellence in Developmental Disabilities
https://vkc.vumc.org/vkc/ucedd
Provides exemplary model services and technical assistance, offers interdisciplinary training, conducts research, and disseminates information and resources related to developmental disabilities. Also a national Intelllectual and Developmental Disabilities Research Center. The Vanderbilt Kennedy Center is a University Center for Excellence in Developmental Disabilities Education, Research, and Service. We work with and for people with disabilities and family members, service providers and advocates, researchers and policy makers.
110 Magnolia Circle Nashville, TN 37203
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Variety, the Children’s Charity of Illinois
http://www.varietyofillinois.org
Variety’s mission is to provide funding and services for programs that strive to alleviate suffering and improve the quality of life for children who are mentally and physically challenged, abused, sick, homeless or underprivileged. Through a network of 43 chapters in 13 countries, Variety reaches into communities across the globe to offer financial assistance and services to children and organizations that serve children with disabilities.
1001 W 75th St. #153 Woodridge, IL 60517
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Vista Center for the Blind & Visually Impaired, Palo Alto
http://www.vistacenter.org/
Today we are Vista Center, the premier resource for individuals with vision loss in San Mateo, Santa Clara, San Benito and Santa Cruz counties. Serving more than 1,900 clients and families each year, Vista Center helps clients reach their highest potential through programs that promote independence and improve quality of life.
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Voulunteers of America
http://www.voasoutheast.org/
Volunteers of America was founded in 1896 by Christian social reformers Maud and Ballington Booth. They envisioned a spiritual movement in the United States in which devotion to God and country could be expressed through service to one’s fellow man. Volunteers of America is a national, nonprofit, spiritually based organization providing local human service programs and opportunities for individual and community involvement.
600 Azalea Road Mobile, Alabama 36609
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Walk Right In Ministries
http://www.walkrightin.org
Walk Right In Ministries equips people to connect and grow in Christ-centered communities while discovering adventure in life’s challenges. We have a special passion to encourage caregivers by helping them plug into relationships and resources that keep them growing with others and developing intimacy with Christ. We are also a Ministry Affiliate of Joni and Friends International, dedicated to enhancing disability awareness and ministry worldwide.
Maple Grove, MN 55311-6932
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Washington Department of Services for the Blind
http://www.dsb.wa.gov/
The Washington State Department of Services for the Blind (DSB) is a state rehabilitation agency that offers assistance to persons who are blind or visually impaired. We also provide various services for employers interested in accommodating or hiring workers with vision loss.
3411 S. Alaska Street Seattle, WA 98118
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Williams Syndrome Association
http://www.williams-syndrome.org/
The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. The WSA supports research into all facets of the syndrome, and the development of the most up to date educational materials regarding Williams syndrome.
570 Kirts Boulevard, Ste. 223 Troy, MI 48084-4156
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Williams Syndrome Changing Lives Foundation
http://www.wschanginglives.org/
The Williams Syndrome Changing Lives Foundation is a non-profit foundation centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians, and therapists. Resource materials available for download as well as a bi-monthly newsletter. No membership fees.
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Zacharias Center
http://www.zcenter.org
Zacharias Sexual Abuse Center provides 24-hour crisis intervention, counseling services and advocacy support for victims and their loved ones, of sexual assault, abuse and rape. The Center also offers educational prevention and awareness programs for Northeastern Illinois communities.
4275 Old Grand Avenue Gurnee, IL 60031